Children's Experiences Following Traumatic Brain Injury

儿童脑外伤后的经历

• 批准号: 7266878
• 负责人: Cecelia I Roscigno
• 金额: $ 3.29万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-09-16 至 2007-09-15
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7266878
• 关键词: adolescence (12-20); behavioral /social science research tag; brain injury; clinical research; experience; functional ability; human subject; interview; longitudinal human study; middle childhood (6-11); nursing research; parents; perception; predoctoral investigator; quality of life; trauma

DESCRIPTION (provided by applicant): Traumatic brain injury (TBI) is one of the leading causes of mortality and morbidity in children. Many brain-injured children suffer a variety of cognitive, behavioral, social, emotional, and physical disabilities that makes it difficult for them to integrate back into their family and community. Prior studies have defined outcomes of TBI by indices of survival, injury severity, functional ability, or neuro-psychological status. While parents are commonly used as proxy after a TBI (they complete self-report measures on behalf of their child), they may not have a complete understanding of their child's lived experiences. Noticeably lacking are studies that focus on the child's own perceptions of daily life after injury. This is a descriptive phenomenological study of children 8-1 2 years of age who are living at home and who are from 3 to 12 months post TBI. The purpose is to describe the lived experiences of children following TBI, and the factors children deem important to their health and well-being. Interviews with parents will also be conducted to understand their proxy version of what life post TBI is like for their child. This study will be instrumental in describing how children perceive their life after TBI and how well parents are able to approximate their child's perspective. The knowledge gained from this study will be essential to defining nursing therapeutics that are relevant to enhancing the well-being and recovery of children living with TBI.

描述（由申请人提供）：创伤性脑损伤（TBI）是儿童死亡率和发病率的主要原因之一。许多脑部受伤的孩子遭受了各种认知，行为，社会，情感和身体残疾，这使他们很难将其融入家庭和社区。先前的研究通过生存，伤害严重程度，功能能力或神经心理状态的指标定义了TBI的结果。尽管父母通常在TBI之后被用作代理人（他们代表孩子采取自我报告措施），但他们可能对孩子的生活经历没有完全的了解。明显缺乏研究的研究重点是受伤后孩子对日常生活的看法。这是对儿童的描述性现象学研究8-1 2岁，他们住在家里，在TBI后3到12个月。目的是描述儿童在TBI之后的生活经历，以及儿童认为对健康和福祉至关重要的因素。还将与父母进行访谈，以了解他们的孩子对孩子的生活的代理版本。这项研究将有助于描述孩子在TBI之后的看法以及父母如何能够近似孩子的观点。从这项研究中获得的知识对于定义与增强TBI儿童的福祉和康复有关的护理治疗剂至关重要。

项目成果

Pushed to the margins and pushing back: a case study of one adult's reflections on social interactions after a traumatic brain injury sustained as an adolescent.

被推到边缘又被推回：一个成年人在青少年时期遭受创伤性脑损伤后对社交互动的反思的案例研究。

• DOI: 10.1097/01376517-200808000-00005
• 发表时间: 2008
• 期刊: The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses
• 作者: Roscigno,CeceliaI;VanLiew,Kevin
• 通讯作者: VanLiew,Kevin

Longing for everydayness: life after traumatic brain injury in children.

渴望日常生活：儿童脑外伤后的生活。

• 发表时间: 2008
• 期刊: Communicating nursing research
• 作者: Roscigno,CeceliaI