Children's Experiences Following Traumatic Brain Injury

描述（由申请人提供）：创伤性脑损伤（TBI）是儿童死亡和发病的主要原因之一。许多脑损伤的儿童患有各种认知，行为，社会，情感和身体残疾，使他们难以融入家庭和社区。先前的研究已经通过生存指数、损伤严重程度、功能能力或神经心理状态来定义TBI的结果。虽然父母通常被用作TBI后的代理人（他们代表孩子完成自我报告措施），但他们可能无法完全了解孩子的生活经历。值得注意的是，缺乏研究，重点是儿童自己的日常生活的看法受伤后。这是一个描述性的现象学研究的儿童8- 12岁谁是生活在家里，谁是从3至12个月后TBI。目的是描述TBI后儿童的生活经历，以及儿童认为对其健康和福祉重要的因素。还将对父母进行采访，以了解他们对TBI后孩子生活的代理版本。这项研究将有助于描述儿童如何看待TBI后的生活，以及父母如何能够近似他们的孩子的观点。从这项研究中获得的知识将是必不可少的，以确定相关的护理治疗，以提高与TBI儿童的福祉和恢复。

DESCRIPTION (provided by applicant): Traumatic brain injury (TBI) is one of the leading causes of mortality and morbidity in children. Many brain-injured children suffer a variety of cognitive, behavioral, social, emotional, and physical disabilities that makes it difficult for them to integrate back into their family and community. Prior studies have defined outcomes of TBI by indices of survival, injury severity, functional ability, or neuro-psychological status. While parents are commonly used as proxy after a TBI (they complete self-report measures on behalf of their child), they may not have a complete understanding of their child's lived experiences. Noticeably lacking are studies that focus on the child's own perceptions of daily life after injury. This is a descriptive phenomenological study of children 8-1 2 years of age who are living at home and who are from 3 to 12 months post TBI. The purpose is to describe the lived experiences of children following TBI, and the factors children deem important to their health and well-being. Interviews with parents will also be conducted to understand their proxy version of what life post TBI is like for their child. This study will be instrumental in describing how children perceive their life after TBI and how well parents are able to approximate their child's perspective. The knowledge gained from this study will be essential to defining nursing therapeutics that are relevant to enhancing the well-being and recovery of children living with TBI.