课题基金 / 基金详情

Patient Data and Sample Collection and Distribution

Patient Data and Sample Collection and Distribution
患者数据和样本采集和分发
批准号：
7118391
负责人：
LOUISE C STRONG
金额：
$27.6万
依托单位：
UNIVERSITY OF TX MD ANDERSON CAN CTR
依托单位国家：
美国
项目类别：
财政年份：
2006
资助国家：
美国
项目状态：
已结题
起止时间：
2006-04-01 至 2011-04-30
来源：
https://reporter.nih.gov/project-details/7118391
关键词：
Li Fraumeni syndromeWilms&apos tumorcancer riskdata managementfamily geneticsgene mutationgenetic counselinghistopathologyhuman genetic material taghuman subjectmedical outreach /case findingneoplasm /cancer educationneoplasm /cancer geneticspatient /disease registrypediatric neoplasm /cancersample collectiontissue resource /registry

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英文摘要
This core facility provides the essential interface with the patients and family members who are critical to the success of each of the research projects. It is the responsibility of this core to provide all the relevant clinical data, biologic specimens, and systematic pathology review to the individual research projects. This core has also developed a psychsocial study that provides educational materials and genetic counseling to participants, with a measure of the effectiveness of the educational intervention. Interventions such as this may be effective as an initial outreach and educational method for families considering genetic testing for Li Fraumeni Syndrome, and may improve their knowledge and psychological outcomes.
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会议论文
A Mutational Model for Childhood Cancer
Genetic Epidemiology of Familial Childhood Cancer
New Global Function for a Rare Disease Gene
CORE--PATIENT DATA & SAMPLE COLLECTION, DISTRIBUTION AND PATHOLOGY REVIEW