Health and Literacy in Child and Adult Assessment(RMI)

儿童和成人健康与素养评估（RMI）

• 批准号: 7285201
• 负责人: DARREN A DEWALT
• 金额: $ 136.01万
• 依托单位: UNIV OF NORTH CAROLINA CHAPEL HILL
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-28 至 2009-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7285201
• 关键词: Activities of Daily Living; Address; Adherence; Adult; Age; Age-Years; Asthma; Budgets; Child; Child health care; Childhood; Chronic; Chronic Disease; Clinic; Clinical; Clinical Research; Cognitive; Collaborations; Comprehension; Computers; Condition; Data; Data Collection; Development; Disease; Disease Outcome; Doctor of Philosophy; Emotional; Ensure; Ethnic Origin; Evaluation; Focus Groups; Gender; Generic Drugs; Health; Health Personnel; Husband; Individual; Instruction; Interview; Laboratories; Language; Language Tests; Leadership; Low Literacy Population; Measurement; Measures; Methodology; Nature; North Carolina; Numbers; Outcome Assessment; Outcome Measure; Parents; Patients; Population; Principal Investigator; Procedures; Process; Property; Published Comment; Quality of life; Questionnaires; Race; Range; Reading; Reporting; Research; Research Personnel; Sampling; Schools; Score; Site; Specific qualifier value; Surveys; Testing; Texas; Time; Universities; Wife; base; health literacy; human subject; improved; instrument; laptop; literacy; research study; response; skills; social; tool; validation studies

DESCRIPTION (provided by applicant): "Health and Literacy in Child and Adult Assessment," a proposal to become a PROMIS Primary Research Site by The University of North Carolina at Chapel Hill and its partners, addresses 3 important problems in using computer adaptive testing (CAT) to measure patient-reported chronic diseases outcomes (PROs) in clinical research: (1) PRO assessment in children 8-17 years of age (Independent Project), (2) Development and testing items in low literacy populations in English and Spanish, and (3) Rigorous assessment of variables (e.g., many aspects of functional capacity or adherence to treatment) most appropriately conceptualized as dyadic (e.g., wife-husband, parent-child) rather than individual. Our Independent Project will (1) use IRT to evaluate item parameters for the PedsQLTM4.0 in 8,000 children in 4 core domains (physical, emotional, social, school/cognitive) and an asthma-specific domain, taking this widely used instrument as a starting point for a pediatric item bank, (2) develop new items and collect data in 1,060 children in North Carolina and Texas, using IRT to estimate item parameters, (3) develop and pilot test a CAT tool and use it to survey 375 children in NC and Texas. Our long-term objective is to develop CAT to assess PROs in clinical research across a wide range of chronic childhood diseases. However, this initial data collection will be in children with asthma and in healthy children. Our Network Project on literacy proposes developing a methodology for creating and testing PRO items in English and Spanish that function consistently across languages and literacy levels. We will provide leadership for (1) assessing patient literacy, (2) testing item comprehension in low literacy populations, (3) devising a strategy to develop new items that can be understood by people with low literacy, (4) testing all items in diverse samples of English- or Spanish-speaking people to evaluate differential item functioning by language or literacy in our large ethnically diverse patient population representing all literacy levels. Our Network Project on dyadic assessment proposes (1) specifying health variables that are largely interpersonal, (2) identifying existing measures of these and assessing their validity, (3) modifying measures that fail to assess interpersonal processes in a way that captures their interpersonal nature, (4) assisting the Network in collecting data on the modified measures and assessing their validity.

描述（由申请人提供）：“儿童和成人评估中的健康和识字”，查佩尔山的北卡罗来纳州大学及其合作伙伴提出的成为PROMIS主要研究中心的建议，解决了在临床研究中使用计算机自适应测试（CAT）测量患者报告的慢性疾病结局（PRO）的3个重要问题：（1）在8-17岁儿童中进行PRO评估（独立项目），（2）在英语和西班牙语识字率低的人口中开发和测试项目，以及（3）严格评估变量（例如，功能能力或坚持治疗的许多方面）最适当地概念化为二元（例如，夫妻、亲子关系，而不是个人关系。我们的独立项目将（1）使用IRT评估PedsQLTM4.0在4个核心领域的8，000名儿童中的项目参数（身体、情感、社会、学校/认知）和哮喘特异性领域，将这种广泛使用的仪器作为儿科项目库的起点，（2）开发新项目并收集北卡罗来纳州和德克萨斯州1,060名儿童的数据，（3）开发CAT工具并进行初步测试，并对NC和Texas的375名儿童进行了问卷调查。我们的长期目标是开发CAT，以评估各种慢性儿童疾病临床研究中的PRO。然而，最初的数据收集将在哮喘儿童和健康儿童中进行。 我们的扫盲网络项目建议制定一种方法，以创建和测试英语和西班牙语的PRO项目，这些项目在不同语言和识字水平上都能持续发挥作用。我们将在以下方面发挥领导作用：（1）评估患者的读写能力，（2）测试低读写能力人群对项目的理解能力，（3）制定一项战略，开发能够被低读写能力人群理解的新项目，（4）测试英语或西班牙语的各种样本中的所有项目-说话的人来评估我们的大种族多样化的患者人群中的语言或识字能力的差异项目功能，识字水平。我们的二元评估网络项目建议：（1）指定主要是人际关系的健康变量，（2）确定这些变量的现有测量方法并评估其有效性，（3）修改无法评估人际关系过程的测量方法，以捕捉其人际关系的本质，（4）协助网络收集有关修改后的测量方法的数据并评估其有效性。