How does engaging in meaningful occupation facilitate the experience and expression of belonging in young people with profound and multiple learning d

深度和多重学习障碍(PMLD)的人是社会上最边缘化的群体之一。这种排斥在政策和研究中长期存在，他们的声音被描述为缺失，或者在某些情况下被沉默。了解患有PMLD的年轻人的观点已被确定为研究的优先事项。这项研究旨在通过与两名患有PMLD的年轻人合作来解决这一问题，以建立对从事无意义职业与归属感体验之间关系的理解。将采用定性的、纵向的、民族志的个案研究方法。数据将在一年内反复收集。可能需要多种声音来阐明年轻人的生活世界，将扩大参与者招募范围，将残疾人本身及其支持网络包括在内，创建“研究集体”。深入的参与者观察将得到参与性研究方法“照片声音”的补充。此外，除了对涉及的道德问题进行敏感考虑外，还将通过佩戴PMLD的参与者佩戴的随身相机收集数据。数据的多模式性质将需要采用系统的方法进行分析。将采用迭代的主题分析过程，在紧急读取数据和反身使用相关模型和理论之间交替进行。这项研究的发现将影响PMLD患者的护理标准，为职业治疗发展证据基础，并挑战将那些最严重残疾的人排除在研究之外。

People with profound and multiple learning disabilities (PMLD) are amongst the most marginalised insociety. This exclusion is perpetuated in policy and research where their voices are described as missing,or in some cases silenced. Understanding the perspectives of young people with PMLD particularly hasbeen identified as a priority for research. This study aims to address this by working collaboratively withtwo young people with PMLD to establish an understanding of the relationship between engaging inmeaningful occupations and the experience of belonging.A qualitative, longitudinal, ethnographic case study methodology will be adopted. Data will be collectediteratively over the course of a year. A plurality of voices will likely be needed to articulate the life-worldof the young person and participant recruitment will be widened to include the person with disabilitiesthemselves and their support networks, creating 'research collectives'.In-depth participant observation will be complemented by the participatory research method'Photovoice'. Additionally, alongside sensitive consideration of the ethics involved, data will be collectedvia body-cameras worn by the participants with PMLD.The multimodal nature of the data will necessitate a systematic approach to analysis. An iterativethematic analysis process will be applied which will alternate between emergent readings of the data andreflexive use of relevant models and theories. Findings from this study will influence the standards ofcare for people with PMLD, develop the evidence base for occupational therapy and challenge theexclusion of those with the most profound disabilities from research.