How does engaging in meaningful occupation facilitate the experience and expression of belonging in young people with profound and multiple learning d

从事有意义的休闲活动如何促进具有深刻和多元学习能力的年轻人的归属感体验和表达

• 批准号: 2750920
• 金额: --
• 依托单位: University of Southampton
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2022
• 资助国家: 英国
• 起止时间: 2022 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2750920
• 关键词: How; does; engaging; meaningful; occupation

People with profound and multiple learning disabilities (PMLD) are amongst the most marginalised insociety. This exclusion is perpetuated in policy and research where their voices are described as missing,or in some cases silenced. Understanding the perspectives of young people with PMLD particularly hasbeen identified as a priority for research. This study aims to address this by working collaboratively withtwo young people with PMLD to establish an understanding of the relationship between engaging inmeaningful occupations and the experience of belonging.A qualitative, longitudinal, ethnographic case study methodology will be adopted. Data will be collectediteratively over the course of a year. A plurality of voices will likely be needed to articulate the life-worldof the young person and participant recruitment will be widened to include the person with disabilitiesthemselves and their support networks, creating 'research collectives'.In-depth participant observation will be complemented by the participatory research method'Photovoice'. Additionally, alongside sensitive consideration of the ethics involved, data will be collectedvia body-cameras worn by the participants with PMLD.The multimodal nature of the data will necessitate a systematic approach to analysis. An iterativethematic analysis process will be applied which will alternate between emergent readings of the data andreflexive use of relevant models and theories. Findings from this study will influence the standards ofcare for people with PMLD, develop the evidence base for occupational therapy and challenge theexclusion of those with the most profound disabilities from research.

患有严重和多重学习障碍的人是社会上最边缘化的人。这种排斥在政策和研究中长期存在，他们的声音被描述为缺失，或在某些情况下被压制。特别是了解患有PMLD的年轻人的观点已被确定为研究的优先事项。本研究采用定性、纵向、民族志的个案研究方法，通过对两名PMLD青少年的调查，探讨其从事无意义职业与职业体验之间的关系。数据将在一年的时间内收集。可能需要多种声音来表达年轻人的生活世界，将扩大参与者招募范围，包括残疾人本人及其支持网络，建立“研究集体”，将通过参与性研究方法“照片声音”补充深入的参与者观察。此外，除了敏感地考虑所涉及的伦理问题，数据将通过PMLD参与者佩戴的身体摄像机收集。数据的多模态性质将需要系统的分析方法。一个迭代的道德分析过程将被应用，这将在数据的紧急阅读和相关模型和理论的自反使用之间交替。这项研究的结果将影响PMLD患者的护理标准，为职业治疗建立证据基础，并挑战将最严重残疾的人排除在研究之外的做法。