EXTENDING ACCESS TO DATA FROM DEMOGRAPHIC SURVEILLANCE SYSTEM SITES IN AFRICA

扩大对非洲人口监测系统站点数据的访问

• 批准号: 7132086
• 负责人: SAMUEL J CLARK
• 金额: $ 5.65万
• 依托单位: UNIVERSITY OF COLORADO
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-09-15 至 2008-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7132086
• 关键词: Africa; archives; clinical research; computer data analysis; data management; data quality /integrity; epidemiology; geographic site; human data; information dissemination; information systems; longitudinal human study; technology /technique development

DESCRIPTION (provided by applicant): Much of Africa is experiencing a dramatic epidemiological transition driven in opposite directions by continuing improvements in the management of traditional infectious diseases, concurrent exploding HIV and TB epidemics, the continuing impact of malaria, and swift increases in the prevalence of chronic non- communicable diseases. Tragically there are very few representative, reliable data to illuminate these remarkable changes, or more importantly to guide the design and measure the effects of interventions aimed at improving the situation. A rapidly growing group of demographic surveillance system (DSS) sites is collecting valuable population-based, longitudinal data describing both the health and social dimensions of this epidemiological transition, and many of the roughly twenty DSS sites in Africa also conduct population-based health intervention testing and drugs trials. This data-archiving and data-use project fits into a long-term plan of the INDEPTH Network of DSS sites which has the overall goal of making the unique and valuable health and population data generated by DSS sites widely available and representative of larger populations that are more relevant to designing interventions and formulating policy. Together with an ongoing pilot of identical physical and cognitive function modules in several African and Asian DSS sites, this project contributes to the foundation of an envisaged multi-site study of adult health and aging in Africa. The specific aims of this project are to develop, prototype and pilot: 1) standards for the definition and management of DSS data, 2) policy, procedures and technology to make the data from one or more DSS sites widely available, 3) standardized, automated routines to calculate commonly used indices, rates and measures relating to longitudinal population data, 4) database designs and GIS tools to fully integrate health and demographic data with spatial and geographic information, and 5) methods to manage concurrent paper and electronic archives of DSS data. The Agincourt Demographic and Health Surveillance system site in South Africa has volunteered itself for this pilot project and is committed to providing access to its data at the end of the project using tools developed by the project and under the policies formulated as part of the project. Additional outcomes of this project will include: 1) piloted prototypes of the technology, tools, policies and procedures necessary to widely disseminate DSS data; 2) prototype routines to calculate standard measures from DSS data; 3) designs and tools to fully integrate DSS and geographic information; and 4) tools to tightly coordinate the management of concurrent paper and electronic archives of DSS data.

描述（由申请人提供）：由于传统传染病管理的不断改进、艾滋病毒和结核病同时爆发、疟疾的持续影响以及慢性非传染性疾病流行率的迅速增加，非洲大部分地区正在经历一场由相反方向推动的戏剧性流行病学转变。可悲的是，很少有代表性的、可靠的数据来说明这些显著的变化，或者更重要的是，指导设计和衡量旨在改善这种情况的干预措施的效果。人口监测系统（DSS）站点的数量正在迅速增加，这些站点正在收集有价值的基于人口的纵向数据，描述这种流行病学转变的健康和社会层面，非洲大约20个人口监测系统站点中的许多站点也进行基于人口的健康干预测试和药物试验。这一数据存档和数据使用项目符合发展支助服务场址INDEPTH网络的长期计划，该网络的总目标是广泛提供发展支助服务场址产生的独特和有价值的健康和人口数据，并代表与设计干预措施和制定政策更相关的更多人口。该项目与正在非洲和亚洲几个发展支助服务地点进行的相同身体和认知功能模块试点一起，有助于为设想的非洲成人健康和老龄化多地点研究奠定基础。该项目的具体目标是开发、原型和试验：1)定义和管理DSS数据的标准；2)使一个或多个DSS站点的数据广泛可用的政策、程序和技术；3)计算与纵向人口数据有关的常用指数、比率和措施的标准化、自动化程序；4)数据库设计和GIS工具，使健康和人口数据与空间和地理信息充分整合；5)管理DSS数据的同时纸质和电子档案的方法。南非阿金库尔人口和健康监测系统站点自愿参加这个试点项目，并承诺在项目结束时使用项目开发的工具和根据作为项目一部分制定的政策提供对其数据的访问。该项目的其他成果将包括：1)广泛传播发展支助事务数据所需的技术、工具、政策和程序的试点原型；2)从DSS数据中计算标准测度的原型例程；3) DSS与地理信息充分融合的设计和工具；4)紧密协调DSS数据纸质和电子同步档案管理的工具。