Integrating Prevention Services for Bleeding & Clottiing

科罗拉多大学健康科学中心和山区州地区血友病 血栓形成中心从1973年开始提供全面的血友病医疗和心理社会护理。利用这种由多个学科的专家提供的同样的护理模式，2001年开始为血栓形成和血栓形成人群以及出血妇女提供服务。在第一阶段的筹资期间，为成人和儿童建立了妇女和血栓形成诊所的基础设施。服务包括诊断、住院和门诊护理、后续护理、教育、家庭外展诊断和教育、社区教育以及与患者倡导团体的互动。这 合作协议将使该计划继续发展，开发更多的教育材料，扩大我们的研究努力，并为全国血友病和血栓病诊所提供一个协调一致的模式。 该项目的目标是： 1)确定为血友病患者、其他遗传性出血性疾病患者、包括患有出血性疾病的妇女和嗜血栓患者提供跨学科综合护理和预防服务的效果，以减少与出血和凝血疾病有关的发病率和死亡率； 2)评估在提供服务方面未得到满足的需求，并确定旨在改善获得护理机会的外联战略； 3)制定有效的信息，以管理和预防疾病；以及 4)促进制定培训方案，以提高提供止血和血栓护理的提供者技能。 将通过问卷从参与调查的患者那里收集数据，以计划未来的预防活动。

The University of Colorado Health Sciences Center and Mountain States Regional Hemophilia & Thrombosis Center have provided comprehensive hemophilia medical and psychosocial care beginning in 1973. Using this same model of care with specialists in multiple disciplines, services to the thrombophilia & thrombosis population as well as women with bleeding began in 2001. During the first phase of funding, the infrastructure of the women's and thrombosis clinics was established with both the adult and pediatric populations. Services include diagnosis, in- and out-patient care, follow-up care, education, family outreach for diagnosis and education, community education and interaction with the patient advocacy group. This cooperative agreement will enable the program to continue to grow, develop more educational materials, expand our research efforts and provide a model for coordinated hemophilia and thrombophilia clinics nationally. The goals of this project are: 1) determine the efficacy of integrated interdisciplinary care and prevention services for persons with hemophilia, other hereditary bleeding disorders including women with bleeding disorders, and thrombophilia to reduce morbidity and mortality associated with bleeding and Clotting diseases; 2) assess unmet needs for service delivery and identify outreach strategies designed to improve access to care; 3) develop effective messages aimed at disease management and prevention; and 4) foster the development of training programs to enhance provider skills for the delivery of hemostasis and thrombosis care. Data will be collected by questionnaire from participating patients to plan future prevention activities.