In their own words: Experiences of Cerebral Palsy and Multiple Sclerosis in Britain between 1980 and 2010.

用他们自己的话说：1980 年至 2010 年间英国脑瘫和多发性硬化症的经历。

• 批准号: 2767268
• 金额: --
• 依托单位: University of Kent
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2022
• 资助国家: 英国
• 起止时间: 2022 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2767268
• 关键词: their; own; words; Experiences; Cerebral

The period 1980 to 2010 has been considered a key moment in the lives of people with physical disabilities in Britain. Many have assumed that the high levels of disability activism, increased awareness, the 1981 foundation of the 'International Year of Disabled People', and legislative change as part of the 1995 Disability Discrimination Act (DDA) led to dramatic improvements in the quality of life for those with physical disabilities, and yet few studies to date have analysed the impact of such changes on their lives. This project seeks to change this. Conducting oral history interviews with people living with physical disabilities, their families/ carers, charities, and activists from the period, this project examines the lived experience of physical disability in Britain during 1980 to 2010, assessing to what extent experiences changed during this supposedly radical period of reform. With British society's drive towards equality and inclusivity, the voices of those with disabilities have been, and remain silenced; this project raises their voices, contributing to the growing discipline of disability history.Whilst studies on lived experiences do exist, they are limited in scope and chronology. Addressing the period 1980 to 2010 allows comparison of experiences before the DDA's passage and after, allowing an examination of its impact. Studies conducted on behalf of the Department of Health and Pensions in 2002, and Office for Disability Issues in 2006, investigated experiences and discrimination against disabled people in Britain, but did not cover the full period of supposed change. The official nature of such studies often had the effect of reinforcing barriers through medical models of disability. The 2002 report "Disabled for Life?" sought to 'inform Government policies' rather than provide direct improvements (Grewal, Joy, Lewis, Swales, and Woodfield, 2002, p. 1). Conversely, this study will examine the varied lived experiences of physical disability in Britain across two decades of perceived change. Drawing on oral histories, amongst other sources, this project will analyse the extent to which people with disabilities continued to face barriers during this period. Assessing the impact of disability activism, charity campaigns, and Government legislation on the removal of barriers such as social perceptions, treatment of disability, accessibility, and inclusivity, this study will not only provide greater historical insight into the lives of those in this period than hitherto exists but will also impact future change. It is through such a historical study that change can be implemented, making this fundamental to the future of disability visibility, agency, and societal inclusion.

1980年至2010年期间被认为是英国身体残疾人生活中的关键时刻。许多人认为，高水平的残疾人行动主义，提高认识，1981年成立的“国际残疾人年”，以及作为1995年《残疾歧视法》（DDA）一部分的立法改革，导致了身体残疾人生活质量的显著改善，但迄今为止，很少有研究分析了这些变化对他们生活的影响。这个项目试图改变这一点。进行口述历史采访的人与身体残疾，他们的家庭/照顾者，慈善机构，和活动家从这个时期，这个项目研究了身体残疾的生活经验在英国在1980年至2010年，评估在什么程度上改变了经验，在这个所谓的激进时期的改革。随着英国社会对平等和包容性的推动，残疾人的声音一直被压制，并将继续被压制;该项目提高了他们的声音，为残疾史的不断发展做出了贡献。虽然确实存在对生活经历的研究，但它们在范围和时间顺序上都是有限的。以1980年至2010年这一时期为研究对象，可以比较《多哈发展议程》通过前后的经验，从而审查其影响。2002年代表卫生和养老金部以及2006年代表残疾人问题办公室进行的研究调查了英国残疾人的经历和歧视，但没有涵盖所谓变化的整个时期。这类研究的官方性质往往具有通过残疾医学模型强化障碍的效果。2002年报告“终身残疾？“试图”告知政府政策“，而不是提供直接的改进（Grewal，Joy，刘易斯，Swales和Woodfield，2002年，第1页）。相反，这项研究将探讨在英国的身体残疾在二十年的感知变化的各种生活经验。除其他来源外，该项目将利用口述历史，分析残疾人在此期间继续面临障碍的程度。评估残疾人活动，慈善运动和政府立法对消除社会观念，残疾人待遇，无障碍环境和包容性等障碍的影响，这项研究不仅将提供比迄今为止更深入的历史见解，了解这一时期的生活，而且还将影响未来的变化。正是通过这样的历史研究，可以实施变革，使这对残疾可见性，机构和社会包容的未来至关重要。