From patient-centred to family-centred care: A new conceptual framework and doctor training to involve family caregivers in cancer consultations

从以患者为中心到以家庭为中心的护理：新的概念框架和医生培训，让家庭护理人员参与癌症咨询

• 批准号: DP140103838
• 负责人: A/Prof Ilona Juraskova
• 金额: $ 23.4万
• 依托单位: The University of Sydney
• 依托单位国家: 澳大利亚
• 项目类别: Discovery Projects
• 财政年份: 2014
• 资助国家: 澳大利亚
• 起止时间: 2014-09-15 至 2018-12-15
• 项目状态: 已结题
• 来源: https://dataportal.arc.gov.au/RGS/Web/Grants/DP140103838
• 关键词: patient; centred; family; care; new

Cancer has an enormous impact on patients and families. Family caregivers play a critical role in supporting patients and participating in treatment decision-making. Yet there are no guidelines or training to optimise family caregivers' involvement in health care, and current practice is poor. This project aims to develop the first Conceptual Framework and Strategies Document for involving family caregivers in communication and decision-making within cancer consultations and to evaluate the feasibility, acceptability and potential efficacy of a novel doctor-patient-family (triadic) intervention for oncologists. By extending patient-centred to family-centred care, this project may transform the field of clinical communication.

癌症对患者和家庭都有很大的影响。家庭照顾者在支持患者和参与治疗决策方面发挥着关键作用。 然而，没有指导方针或培训来优化家庭照顾者参与医疗保健，目前的做法很差。该项目旨在制定第一个概念框架和战略文件，让家庭照顾者参与癌症咨询中的沟通和决策，并评估肿瘤学家新型医生-患者-家庭（三元）干预的可行性，可接受性和潜在疗效。通过将以患者为中心的护理扩展到以家庭为中心的护理，该项目可能会改变临床交流领域。