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Designing interventions to improve delivery of health care for children with inherited metabolic diseases: family and provider perspectives

Designing interventions to improve delivery of health care for children with inherited metabolic diseases: family and provider perspectives
设计干预措施以改善遗传性代谢疾病儿童的医疗保健服务：家庭和提供者的观点
批准号：
357123
负责人：
Potter Elizabeth K
金额：
$53.78万
依托单位：
University of Ottawa
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2016
资助国家：
加拿大
项目状态：
已结题
起止时间：
2016-10-01 至 2019-10-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=357123&lang=en
关键词：
Health Care Coordination Inherited Metabolic Diseases Patient Centred Care Patient-Oriented Research Pediatrics Rare Diseases

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中文摘要
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英文摘要
Children with rare inherited metabolic diseases (IMD) are among the small number of children who have disproportionately high needs for care, both in the hospital and in the community. This has important impacts on their families and on the health system.
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海外基金