Collaborating to improve bereavement support provision in the UK, particularly for minoritised and marginalised ethnic groups

背景：英国每年约有 600 万人受到丧亲之痛的影响。英国丧亲委员会最近发现，近五分之一的人在丧亲之痛中得不到朋友和家人的支持，超过三分之一的人不知道可以获得哪些支持。来自少数族裔群体的人（他们的需求可能被忽视，或者他们在社会中的权力可能较小）在获得支持方面面临额外的障碍。这可能使他们容易遭受丧亲之痛的不良后果。在丧亲之痛中获得以人为本、文化上适当的支持至关重要，因为随着时间的推移，它可以帮助改善生活质量和心理健康。该项目：通过这个项目，我们将进一步了解丧亲经历以及可能帮助和阻碍人们获得所需支持的事情。具体来说，我们将重点关注已经在努力获得丧亲支持的少数族裔社区和非英语国家。第一阶段将审查这些群体丧亲经历的现有证据以及现有的丧亲理论。我们将确定可以改进现有丧亲支持的提供和获取的领域。第二阶段将是新的研究。我们将与来自不同少数族裔群体的人们进行多次焦点小组讨论。我们将询问他们有关丧亲、死亡、临终和支持的问题。我们将进行最多 20 个焦点小组，人数为 5-8 人。我们将使用翻译，或在网上进行小组，以帮助人们感到安心。我们将分析这些焦点小组，寻找需求和经验的相似点和差异。我们将与每个小组合作以提取关键发现。最后，我们将利用前两个阶段的研究结果来发展一种新的少数化丧亲经历理论。然后，我们将为专业人士和公众开发一套资源，以改善少数族裔群体获得丧亲支持的机会。社区参与与合作：除此之外，我们还将创建一个由不同社区成员组成的咨询小组，就这一被忽视领域的研究项目和其他研究项目提供建议。这将有助于确保研究仍然集中于目标社区的优先事项。该项目将由伦敦国王学院（大学）西塞莉·桑德斯姑息治疗、政策和康复研究所和西塞莉·桑德斯国际慈善机构合作开展。西塞莉·桑德斯国际是一家慈善机构，其使命是改善对每一个面临晚期疾病和丧亲之痛的人的护理和支持。

Background: Around 6 million people in the UK are affected by bereavement each year. The recent UK Commission on Bereavement found that almost one in five people had no support from friends and family in bereavement, and over one in three did not know what support was available. Those from minoritised ethnic groups (whose needs may be overlooked, or who may have less power within society)have additional barriers to accessing support. This can leave them vulnerable to poor outcomes in bereavement. Access to person-centered, culturally appropriate support in bereavement is vital, as it can help improve quality of life and mental wellbeing over time.The project: Through this project, we will further knowledge of bereavement experiences and the things that may help and hinder people from accessing the support they need. Specifically, we will be focusing on minoritised ethnic communities and non-English speakers who already struggle to access bereavement support.The first stage will be to examine the existing evidence on bereavement experiences for these groups, alongside existing bereavement theories. We will identify areas where delivery of, and access to, existing bereavement support could be improved. The second stage will be new research. We will conduct a number of focus groups with people from different minoritised ethnic groups. We will ask them about bereavement, death, dying and support. We will do up to 20 focus groups, with 5-8 people. We will use translators, or conduct groups online, to help people to feel at ease. We will analyse these focus groups looking for similarities and differences in the needs and experiences. We will work with each group to extract key findings. Lastly, we will use the findings from the first two stages to develop a new theory of minoritised bereavement experience. Then we will develop a set of resources for professionals and the public to improve access to bereavement support for minoritised ethnic groups.Community engagement and collaboration: Alongside this, we will create an advisory panel made up off diverse community members to advise on this and other research projects in this neglected field. This will help to make sure the research remains focused on the priorities of the target communities. This project will be conducted as a collaboration between the Cicely Saunders Institute of Palliative Care, Policy, and Rehabilitation at King's College London (the university) and Cicely Saunders International, a charity whose mission is to improve care and support for everyone who is facing advanced illness and bereavement.