Is CIS Reaching CT Native Americans? Understanding Cancer Information Seeking

CIS 是否已覆盖 CT 美洲原住民？

• 批准号: 7295801
• 负责人: DIANE E WEINER
• 金额: $ 14.58万
• 依托单位: MASHANTUCKET PEQUOT TRIBAL NATION
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-09-27 至 2008-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7295801
• 关键词: Address; Advocate; Ally; American; Andro-Diane; Applications Grants; Awareness; Behavior; Cancer Center; Cancer Hospital; Cancer Information Service; Censuses; Collaborations; Communities; Connecticut; Data; Development; Early Diagnosis; Education; Educational Curriculum; Educational Materials; Ethnic group; Family; Foundations; Goals; Health; Health Educators; Health Personnel; Health Professional; Health Services Research; Human; Improve Access; Individual; Information Dissemination; Internet; Intervention; Interview; Learning; Life; Malignant Neoplasms; Methodology; Methods; Native Americans; New England; Participant; Patients; Pattern; Perception; Policy Maker; Population; Populations at Risk; Preferred Provider Organizations; Principal Investigator; Private Practice; Provider; Public Health; Questionnaires; Recommendation; Research Methodology; Research Personnel; Research Project Grants; Resources; Sampling; Services; Site; Surveys; Survival Rate; Telephone; Testing; Trainers Training; United States; base; cancer education; cancer prevention; improved; intergenerational; member; programs; promoter; survivorship; tool; tribal Nation; tribal community

DESCRIPTION (provided by applicant): Description: Native Americans have the poorest cancer survival rates of any racial or ethnic group in the United States. This study will focus on understanding who among Connecticut's Native Americans needs, seeks, and obtains cancer-related information. The results of this study will help the Cancer Information Service (CIS) to improve its service to Native Americans who currently underutilize the 1-800-4-CANCER phone service and Live Help web site (https://cissecure.nci.nih.gov/livehelp/welcome.asp), and to provide baseline data about health care providers' awareness and use of CIS. Additionally, we will investigate how members of this at- risk population share information within families and their communities. Finally, this exploratory study will examine how cancer information needs and behaviors of these Native American communities may provide formative data on which interventions will be developed, tested, and disseminated within the CIS network. In our collaborative efforts with CIS of New England, the information learned in this proposed study will be used to develop a culturally appropriate curriculum on cancer information dissemination among Native Americans in Connecticut. Education materials and associated research methods will be developed so they can be replicated and validated for use among other Native urban and tribal communities in Connecticut, the Northeast, and throughout the United States. The information learned as a result of this study will be used in the development of an R01 grant application to test the developed curriculum with a larger segment of the Northeastern Native American population. Relevance to Public Health: This proposed project will enhance the abilities of cancer advocates, researchers, health professionals, and policy makers alike to understand and assist the cancer education needs of Connecticut Native Americans. This community based research project should also increase utilization of CIS services by Connecticut Native Americans. Results will provide the foundation for Public Health educators throughout the nation to relocate and evaluate education materials and associated methodologies.

描述（由申请人提供）：描述：美洲原住民在美国任何种族或族裔群体中的癌症存活率最低。这项研究将侧重于了解康涅狄格州的美洲原住民中谁需要，寻求和获得癌症相关信息。这项研究的结果将有助于癌症信息服务（CIS）改善其对目前未充分利用1-800-4-CANCER电话服务和Live Help网站（https：//cissecure.nci.nih.gov/livehelp/welcome.asp）的美洲原住民的服务，并提供有关医疗保健提供者对CIS的认识和使用的基线数据。此外，我们还将调查这些高危人群的成员如何在家庭和社区内分享信息。最后，这项探索性研究将研究这些美洲原住民社区的癌症信息需求和行为如何提供形成性数据，这些数据将在CIS网络中开发，测试和传播干预措施。在我们与新英格兰的CIS的合作努力中，在这项拟议的研究中学到的信息将用于开发一个文化上适当的课程，在康涅狄格州的美洲原住民之间的癌症信息传播。将开发教育材料和相关的研究方法，以便它们可以复制和验证，供康涅狄格州，东北部和整个美国的其他土著城市和部落社区使用。作为这项研究的结果所学到的信息将被用于开发R 01赠款申请，以测试开发的课程与东北部美洲原住民人口的更大部分。与公共卫生的相关性：这个拟议的项目将提高癌症倡导者，研究人员，卫生专业人员和政策制定者的能力，以了解和协助康涅狄格州土著美国人的癌症教育需求。这个以社区为基础的研究项目也应该增加康涅狄格州土著美国人对CIS服务的利用。研究结果将为全国的公共卫生教育工作者重新安置和评估教育材料和相关方法奠定基础。

项目成果

How we design feasibility studies.

• DOI: 10.1016/j.amepre.2009.02.002
• 发表时间: 2009-05
• 期刊: AMERICAN JOURNAL OF PREVENTIVE MEDICINE
• 影响因子: 5.5
• 作者: Bowen, Deborah J.;Kreuter, Matthew;Spring, Bonnie;Cofta-Woerpel, Ludmila;Linnan, Laura;Weiner, Diane;Bakken, Suzanne;Kaplan, Cecilia Patrick;Squiers, Linda;Fabrizio, Cecilia;Fernandez, Maria
• 通讯作者: Fernandez, Maria