Cross Survey Comparison of Informal Caregiving to the Disabled Elderly in the US

美国残疾老年人非正式护理的交叉调查比较

• 批准号: 7405107
• 负责人: Erin Rand Giovannetti
• 金额: $ 2.89万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-09-30 至 2008-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7405107
• 关键词: Cross; Survey; Comparison; Informal; Caregiving

DESCRIPTION (provided by applicant): Informal caregivers are a critical part of the long-term care system in the US. Public health surveillance of informal caregivers in the United States is necessary to promote healthy aging in the community, inform public support systems and research the economic cost of long-term care. However, the surveillance methods for studying caregivers vary widely. Published estimates of the number of informal caregivers in this country range from 3.5 million to 44.4 million. This wide variation in estimates stems largely from a lack of consensus in the field regarding the definition of caregiving. The nature, scope and impact of caregiving may be particularly underestimated in racially and ethnically diverse communities. This proposed dissertation research will review current methods used to study caregivers in national data sets and explore how differences in definition and survey design influence the estimated prevalence and profile of caregivers in the United States. To date no researcher has compared caregiving across data sets. Findings from this study will inform future research on how concept definition and survey design can affect caregiving research, and serve as a guide for the interpretation of research from current caregiver data sets. The first aim (1) is to describe methodological differences in national surveys of caregivers in the United States, including key issues in the definition of caregiving and survey design methodology. The second aim (2) is to examine the implication of survey design methodology on prevalence estimates in three major national surveys used for caregiving estimates, the National Long Term Care Survey, Health and Retirement Survey and Survey of Income and Program Participation, when definition is held constant. Particularly of interest is the impact of survey methodology on the prevalence estimates of particular subgroups within the national caregiving population (e.g. racial and ethnic minorities, young adults, and male caregivers). The third aim (3) is to investigate how different definitions of caregiver affect estimates of caregiver numbers and characteristics.

描述(由申请人提供)：非正式照顾者是美国长期护理体系的重要组成部分。在美国，对非正式照顾者的公共卫生监测是必要的，以促进社区的健康老龄化，向公共支持系统提供信息，并研究长期护理的经济成本。然而，研究照顾者的监测方法差别很大。据已公布的估计，这个国家的非正式照顾者人数在350万到4440万之间。这种估计上的巨大差异在很大程度上源于该领域对照看的定义缺乏共识。在种族和族裔多元化的社区中，照料的性质、范围和影响可能被特别低估。这项拟议的论文研究将回顾目前在国家数据集中用于研究照顾者的方法，并探索定义和调查设计的差异如何影响美国照顾者的估计患病率和概况。到目前为止，还没有研究人员对不同数据集的护理进行比较。这项研究的结果将为未来关于概念定义和调查设计如何影响照顾者研究的研究提供信息，并作为从当前照顾者数据集解释研究的指南。第一个目标(1)是描述美国全国护理者调查的方法差异，包括护理者定义和调查设计方法中的关键问题。第二个目标(2)是在定义保持不变的情况下，检查调查设计方法对用于护理估计的三个主要国家调查--国家长期护理调查、健康和退休调查以及收入和方案参与度调查--患病率估计的影响。特别令人感兴趣的是，调查方法对全国照料人口中特定亚群(例如，种族和族裔少数群体、年轻人和男性照顾者)的流行率估计数的影响。第三个目标(3)是调查护理者的不同定义如何影响护理者数量和特征的估计。