New Strategies for Reducing Cancer Disparities in the Deaf Community

减少聋人社区癌症差异的新策略

• 批准号: 7433950
• 负责人: Georgia Robins Sadler
• 金额: $ 32.4万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN DIEGO
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-09-11 至 2013-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7433950
• 关键词: Access to Information; Address; Advanced Malignant Neoplasm; Affinity; American Cancer Society; Cancer Information Service; Caring; Certification; Charge; Client; Communities; Community Clinical Oncology Program; Consensus; Diagnosis; Early Diagnosis; Education; Face; Foundations; Glossary; Health; Health Promotion; Healthcare; Hearing Impaired Persons; Knowledge; Language; Leadership; Learning; Libraries; Malignant Neoplasms; Medical; Numbers; Process; Psychological reinforcement; Reading; Registries; Resources; Series; Sign Language; Solutions; Sorting - Cell Movement; Surveys; Terminology; Testing; Training; Training Programs; Translating; Universities; Writing; cancer education; cancer health disparity; cancer prevention; concept; coping; experience; improved; literacy; member; oncology; programs; skills; survivorship; symposium

DESCRIPTION (provided by applicant): Gaining up-to-date cancer prevention and early detection knowledge is difficult for everyone. Perhaps more difficult is sorting through the information needed to make informed decisions quickly. This process becomes even harder when language and cultural barriers exist. The Deaf community is like all other communities who face cultural barriers, as well as language and reading barriers associated with using English when it is an acquired second language. However, few health promotion programs are available to serve them. An ongoing project of this partnership, of Deaf affinity organizations, is to create cancer education videos in American Sign Language (ASL) for the Deaf community. This proposal will test a new strategy for improving the Deaf community's access to cancer information and care. It addresses the need for more medical terminology signs within American Sign Language (ASL) and for ASL interpreters to have a better understanding of oncology when translating. One of the partnership agencies, the Registry of Interpreters for the Deaf (RID), recognized that these same videos could be the foundation of an oncology training program disseminated to ASL interpreters nationwide. As they use their more advanced cancer knowledge and interpreting skills with clients coping with cancer, interpreters will also be able to direct their clients to the existing library of cancer education videos, thereby further disseminating knowledge and use of those existing resources. This project will: 1) maintain an on-going consensus building discussion to identify or develop the best signs to explain cancer, cancer prevention, diagnosis, treatment, survivorship, and palliation; 2) create and promote an on-line glossary of medical terms and their parallel ASL signs that the consensus panel recommends for use by the Deaf community and the interpreters who serve them; 3) cross promote the ASL cancer education videos on the ASL cancer glossary website and cross promote the ASL cancer glossary website on the ASL cancer education videos website; 4) define the foundation of basic cancer knowledge and scientific literacy that would facilitate ASL interpreters' ability to produce clearer interpretations for their clients when translating cancer-related interactions; 5) create educational modules on DVD that will give the interpreter an understanding of the most common cancer and scientific concepts and treatment options, plus develop pre- and post-training surveys intended to assess the degree of interpreters' change in knowledge following completion of each training module; 6) invite ASL interpreters to use the modules and pre- and post-education surveys to test whether the modules and supplementary training materials succeed in raising the interpreters' knowledge of essential cancer information; 7) take at least 250 interpreters nationwide through the final training modules to reach a tipping point in the number of ASL interpreters who would be prepared to undertake an ASL Oncology Certification Exam; and 8) turn over the developed ASL Oncology Program to RID or other agency then responsible administering training and certification exams.

描述（由申请人提供）：获得最新的癌症预防和早期检测知识对每个人来说都很困难。也许更困难的是整理快速做出明智决策所需的信息。当存在语言和文化障碍时，这个过程变得更加困难。聋人社区与所有其他社区一样，面临着文化障碍，以及与使用英语（当英语作为后天第二语言时）相关的语言和阅读障碍。然而，很少有健康促进计划可以为他们服务。聋人亲和组织合作伙伴关系正在进行的一个项目是为聋人社区制作美国手语 (ASL) 的癌症教育视频。该提案将测试一项新策略，以改善聋人社区获得癌症信息和护理的机会。它解决了美国手语 (ASL) 中对更多医学术语符号的需求，以及 ASL 口译员在翻译时更好地理解肿瘤学的需求。合作机构之一，聋人口译员登记处 (RID) 认识到，这些视频可以成为向全国 ASL 口译员传播的肿瘤学培训计划的基础。当口译员利用更先进的癌症知识和口译技能与客户应对癌症时，他们还能够引导客户访问现有的癌症教育视频库，从而进一步传播知识和利用这些现有资源。该项目将： 1) 保持持续的共识建设讨论，以确定或开发解释癌症、癌症预防、诊断、治疗、生存和姑息治疗的最佳迹象； 2) 创建并推广在线医学术语及其对应的 ASL 符号词汇表，共识小组建议聋人社区和为他们服务的口译员使用该词汇表； 3) 在 ASL 癌症词汇网站上交叉推广 ASL 癌症教育视频，并在 ASL 癌症教育视频网站上交叉推广 ASL 癌症词汇网站； 4) 明确基本癌症知识和科学素养的基础，这将有助于 ASL 口译员在翻译与癌症相关的互动时为客户提供更清晰的解释； 5) 在 DVD 上创建教育模块，让口译员了解最常见的癌症、科学概念和治疗方案，并开展培训前和培训后调查，旨在评估口译员完成每个培训模块后知识变化的程度； 6) 邀请 ASL 口译员使用这些模块以及教育前和教育后调查，以测试这些模块和补充培训材料是否成功提高了口译员对基本癌症信息的了解； 7) 让全国至少 250 名口译员完成最终培训模块，以达到准备参加 ASL 肿瘤学认证考试的 ASL 口译员数量的临界点； 8) 将制定的 ASL 肿瘤学计划移交给 RID 或其他机构，然后负责管理培训和认证考试。