5-INDEX NATIONAL HEALTH-RELATED QUALITY OF LIFE SURVEY

五指数全国健康相关生活质量调查

• 批准号: 7481068
• 负责人: DENNIS G. FRYBACK
• 金额: $ 21.47万
• 依托单位: UNIVERSITY OF WISCONSIN-MADISON
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/7481068
• 关键词: Adult; African American; Age; Behavioral; Benchmarking; Calculi; Characteristics; Chronic; Computer Assisted; Condition; Data; Data Files; Data Set; Demographic Factors; Digit structure; Discrimination; Disease; Disease regression; Effectiveness; Elderly; Equation; Ethnic Origin; Gender; Generic Drugs; Goals; Health; Healthcare; Healthy People 2010; Household; Individual; Internet; Intervention; Interview; Knowledge; Life; Living Wills; Measurement; Measures; Medical; Medical Surveillance; Names; National Health Interview Survey; Outcome Study; Participant; Patient Self-Report; Personal Satisfaction; Persons; Population; Psychological Factors; Quality of life; Questionnaires; Race; Randomized; Relative (related person); Reporting; Research; Research Personnel; Risk; Sampling; Score; Socioeconomic Status; Standards of Weights and Measures; Surveys; System; Telephone; Variant; Walking; Well in self; age related; aged; aging population; community living; cost effectiveness; demographics; disability; health disparity; health related quality of life; indexing; instrument; response; socioeconomics

In response to national needs for generic summary measures of health-related quality of life (HRQOL), this project will establish US benchmarks for 5 widely used HRQOL instruments in the community-living US population aged 35-89y. Standardized measures of HRQOL will be important to assessing progress on Health People 2010 goals, assessing health disparities in the US population, and to understand and evaluate changes in health in older adults and effectiveness of healthcare interventions in age-related disease. This project will simultaneously use five standard measurement instruments, the Medical Outcomes Study SF-36v2, the EuroQol EQ-SD, the Quality of Well-being scale (QWB-SA), the Health Utilities Indexes (HUI2 and HUI3), and the Health and Activities Limitations Index (HALex), to assess the HRQOL of a national random-digit dialed telephone sample of 2800 non-institutionalized adults ages 35-89y, interviewed at their choice in English or Spanish. An over-sample of 1000 African Americans will be included. Other information about common chronic health conditions, psychological well-being, and socioeconomic and demographic factors will be collected. The goals of the survey are (1) to produce national means by age and gender for Blacks and for the entire population on each HRQOL measure; (2) to develop "cross-walk" equations to cross-calibrate the 5 measures; (3) to better understand the relationships of these measures to underlying health, HRQOL, and psychological well-being; and (4)to explore relationship of measured HRQOL to differences in race, and socioeconomic and demographic factors. A public use data set will be made available via the internet for other researchers by the end of this project.

为了满足国家对健康相关生活质量（HRQOL）的一般概括性测量的需求，本项目将为美国35- 89岁社区生活人群中广泛使用的5种HRQOL工具建立美国基准。HRQOL的标准化测量对于评估健康人2010年目标的进展、评估美国人口的健康差异、了解和评估老年人健康状况的变化以及年龄相关疾病医疗干预的有效性将非常重要。该项目将同时使用五个标准测量工具，医学结局研究SF-36 v2、EuroQol EQ-SD、幸福质量量表（QWB-SA）、健康效用指数（HUI 2和HUI 3）和健康和活动限制指数（HALex），以评估2800名年龄35- 89岁的非机构化成年人的全国随机数字拨号电话样本的HRQOL，在他们的采访中， 选择英语或西班牙语。将包括1000名非裔美国人的额外样本。其他 将收集关于常见慢性健康状况、心理健康以及社会经济和人口因素的信息。调查的目的是：（1）为黑人和整个人群的每个HRQOL指标提供按年龄和性别划分的全国平均值;（2）开发“交叉步行”方程，以交叉校准5个指标;（3）更好地了解这些指标与基础健康、HRQOL和心理健康的关系;（4）探讨HRQOL与种族、社会经济和人口学因素的关系。在该项目结束时，将通过互联网向其他研究人员提供一个公共使用的数据集。