Training for Providers of an Evidence-Based AD Family Caregiver Intervention

为循证 AD 家庭护理人员干预提供者提供培训

• 批准号: 7999007
• 负责人: John V Hobday
• 金额: $ 35.5万
• 依托单位: HEALTHCARE INTERACTIVE, INC.
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-09-01 至 2011-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7999007
• 关键词: Alzheimer' s Disease; Archives; Authorization documentation; Award; Caregivers; Caring; Case Study; Child; Chronic Disease; Client; Clinical; Clinical Research; Comb animal structure; Communities; Consultations; Continuing Education; Control Groups; Cost Savings; Counseling; Data Analyses; Dementia; Development; Dictionary; Disease; Education; Educational Intervention; Evidence based intervention; Family; Family Caregiver; Family Nursing; Family member; Future; Goals; Hair; Health Benefit; Healthcare Systems; Home environment; Hour; Household; Human Resources; Husband; Intake; International; Internet; Intervention; Interview; Lead; Learning; Life; London; Marketing; Mental Depression; Methods; Minnesota; Modeling; Multimedia; National Institute of Mental Health; Nature; Neighborhoods; New York; Nursing Homes; Outcome; Persons; Phase; Population; Pre-Post Tests; Principal Investigator; Protocols documentation; Provider; Public Health; Randomized Controlled Trials; Relative (related person); Research Personnel; Resources; Rest; Risk; Rural; Social Work; Societies; Spouse Caregiver; Stress; Technology; Telephone; Testing; Text; Time; Training; Training Programs; Training and Education; Unemployment; United States National Institutes of Health; Universities; Vision; Visual; Work; base; cost; eighth grade; evidence base; experience; forgetting; improved; innovation; loved ones; member; patient home care; physical conditioning; pregnant; programs; prototype; psychologic; psychosocial; public health relevance; tool

DESCRIPTION (provided by applicant): Alzheimer's disease and related disorders (ADRD) constitute urgent challenges to U.S. Healthcare systems as well as enormous burdens on society as a whole. Nearly 75% of the care for persons with ADRD is delivered at home, and family caregivers need ongoing support to manage the daunting physical and psychological effects of care demands. As ADRD progresses, family caregivers are increasingly vulnerable to stress and depression, which may lead them to reluctantly place their relatives in nursing homes. PI Mittelman and colleagues, in a 20+ year randomized controlled trial, tested a psychosocial intervention for spouse caregivers, called the NYU Caregiver Intervention (NYUCI) and demonstrated long-term positive outcomes for people with ADRD and their family members. Most notably, the RCT 1) substantiated reduced depression and improved physical health for caregivers and 2) significantly extended the time persons with ADRD were able to remain at home-an average of 1.5 years longer than control group members (Mittelman et al., AG14634, formerly MH42216; See www.nrepp.samhsa.gov/programfulldetails.asp?PROGRAM_ID=122). This Phase I effort, "Training for Providers of an Evidence-Based AD Family Caregiver Intervention," proposes to create, develop, and test feasibility of a prototype of 4 of an eventual 12 modules of an innovative Internet-Based Multimedia Education (IBME) training program targeted to providers in community agencies seeking to learn how to implement the (NYUCI) model. Requests for NYUCI implementation training have become too numerous to satisfy in person, which led project investigators to conceive of this Phase I IBME. They hypothesize the proposed effort has the power to provide effective training with the aid of the Internet so that fidelity to the NYUCI content, protocols, and outcomes can be achieved efficiently. Moreover, in this form, it can be modified and kept up-to-date with new information and experiences of those implementing the intervention in different communities. Because the NYUCI assures support to family caregivers for the life of loved ones with ADRD, this proposed IBME has the potential to transform not only ADRD home care but also U.S. healthcare systems as it disseminates access to the 20+ years of clinical research validating the NYUCI model to many more agencies than would be possible without an IBME format. The project's innovation derives from a unique vision, multilevel intervention, and creative combination of the NYUCI itself, the professional experience of PI Hobday, PI Mittelman, and other key project personnel in the fields of family care, ADRD, and IBME development. In addition to its strong present commercial potential, this IBME may be also useful as a template for future training to support family caregivers of persons with chronic diseases other than ADRD. PUBLIC HEALTH RELEVANCE: This Phase I effort creates and develops an Internet-based training for social service providers implementing the evidence-based New York University Caregiver Intervention (NYUCI) model, a psychosocial intervention for families of those with Alzheimer's disease (AD). This effort is highly relevant to U.S. public health because the NYUCI has been shown to reduce depression in caregivers and delay nursing home placement by, on average, 1.5 years. Wider implementation of NYUCI model, to be facilitated by the proposed training intervention, could support the 9.8 million family caregivers delivering nearly 75% of the home care for those with AD (Alzheimer's Association, p. 15) as well as potentially saving the health care system hundreds of millions of dollars.

描述（由申请人提供）：阿尔茨海默病和相关疾病（ADRD）对美国医疗保健系统构成了紧迫的挑战，也给整个社会带来了巨大的负担。近75%的ADRD患者的护理是在家中提供的，家庭护理人员需要持续的支持，以管理护理需求带来的令人生畏的身体和心理影响。随着ADRD的进展，家庭照顾者越来越容易受到压力和抑郁的影响，这可能导致他们不情愿地将亲属安置在养老院。PI Mittelman及其同事在一项为期20多年的随机对照试验中，测试了一种针对配偶照顾者的心理社会干预，称为纽约大学照顾者干预（NYUCI），并证明了ADRD患者及其家庭成员的长期积极结果。最值得注意的是，随机对照试验1）证实了护理人员的抑郁减少和身体健康改善，2）显著延长了ADRD患者能够留在家中的时间-比对照组成员平均长1.5年（Mittelman等人，AG 14634，以前称为MH 42216;见www.nrepp.samhsa.gov/programfulldetails.asp? ID=122）。这第一阶段的努力，“基于证据的AD家庭护理干预提供者的培训”，建议创建，开发和测试的原型的可行性，最终12个模块的创新的基于互联网的多媒体教育（IBME）培训计划，针对社区机构的供应商寻求学习如何实施（NYUCI）模型。对NYUCI实施培训的要求太多，无法亲自满足，这导致项目调查人员构思了第一阶段IBME。他们假设拟议的努力有能力在互联网的帮助下提供有效的培训，以便有效地实现对NYUCI内容、协议和结果的忠实。此外，在这种形式下，它可以进行修改，并随时更新不同社区实施干预措施的人员的新信息和经验。由于NYUCI确保支持家庭护理人员为ADRD亲人的生活提供支持，因此拟议的IBME不仅有可能改变ADRD家庭护理，而且还有可能改变美国医疗保健系统，因为它将20多年的临床研究验证NYUCI模型传播给更多的机构，而不是没有IBME格式。该项目的创新源于独特的愿景，多层次的干预，以及NYUCI本身，PI Hobday，PI Mittelman和其他关键项目人员在家庭护理，ADRD和IBME发展领域的专业经验的创造性结合。除了其强大的商业潜力，这IBME也可能是有用的模板，为未来的培训，以支持家庭照顾者的慢性疾病以外的ADRD。 公共卫生相关性：第一阶段的工作是为实施循证纽约大学护理人员干预（NYUCI）模式的社会服务提供者创建和开发基于互联网的培训，这是一种针对阿尔茨海默病（AD）家庭的心理社会干预。这一努力与美国公共卫生高度相关，因为NYUCI已被证明可以减少护理人员的抑郁症，并将养老院的安置时间平均推迟1.5年。通过拟议的培训干预促进NYUCI模式的更广泛实施，可以支持980万家庭护理人员为AD患者提供近75%的家庭护理（阿尔茨海默氏症协会，第15页），并可能为医疗保健系统节省数亿美元。