Main Project

主要工程

• 批准号: 8180884
• 负责人: Elvia Barboa
• 金额: $ 13.6万
• 依托单位: PARENTS AGAINST CANCER
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-09-30 至 2014-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8180884
• 关键词: Address; Adolescent; Advisory Committees; Affect; Cancer Survivorship; Caring; Childhood; Collaborations; Communities; Comprehensive Cancer Center; Coupled; Development; Educational Intervention; Effectiveness; Effectiveness of Interventions; Eye; Family; Grant; Healthy People 2010; Hispanics; Improve Access; Institute of Medicine (U.S.); Instruction; Intervention; Knowledge; Late Effects; Latino; Leadership; Malignant Childhood Neoplasm; Malignant Neoplasms; Minority-Serving Institution; Modeling; Morbidity - disease rate; Outcome Study; Parents; President' s Cancer Panel; Quality of life; Reporting; Research; Research Infrastructure; Resources; Risk; Staging; Stigmata; Survivors; Testing; Training; Training and Education; Work; base; cancer therapy; childhood cancer survivor; community based participatory research; community setting; empowerment; experience; health disparity; improved; meetings; member; mortality; programs; social stigma; survivorship; young adult

This proposal will be building upon a prior positive collaborative working relationship between the community-based, minority serving institution, Padres Contra El Cancer [Parents Against Cancer] (PADRES) and the Childhood Cancer Survivorship Program at UCLA's Jonsson Comprehensive Cancer Center (JCCC). The four years of the grant will establish infrastructure support required to sustain the ongoing research collaboration. PADRES and UCLA will synergy their efforts to better understand and address the needs of Latino childhood cancer survivors and their families. The objectives for the overall research strategy include: (1) formalize the infrastructure of the community-academic research partnership between PADRES and the JCCC in order to understand how to best develop culturally-relevant survivorship educational interventions for the Latino pediatric, adolescent, and young adult survivorship community given their risk for late effects; (2) to test the effectiveness of this intervention developed through this collaborative research partnership and disseminate the significant findings nationally for the mutual benefits of both partners; (3) through the development of the formalized research infrastructure, leadership within the PADRES/JCCC partnership will be able provide education, training, and empowerment to its diverse groups of members regarding how to improve access to cancer survivorship care through the model of community-based participatory research and be a resource for guidance to other programs nationally. This partnership will bring together the expertise and experience of the Internal Advisory Committee and Community Advisory Board to develop a culturally-relevant survivorship educational intervention during the implementation stage. The intervention will be tested for its acceptability and feasibility for delivery in the community setting. The expected outcome of this study is to develop the intervention in the form of a photonovela which can then be tested nationally in the Latino survivor community for its effectiveness to decrease stigma and improve families' survivorship care discussions and knowledge about the importance of survivorship care planning.

这项提议将建立在两国之间先前积极的合作工作关系的基础上 以社区为基础的少数族裔服务机构，牧师抗癌[父母抗癌](牧师) 和加州大学洛杉矶分校琼森综合癌症中心的儿童癌症生存计划 (JCCC)。赠款的四年将建立维持正在进行的 研究合作。教士和加州大学洛杉矶分校将协同努力，更好地理解和解决 拉美裔儿童癌症幸存者及其家人的需求。总体研究战略的目标 包括：(1)正式确定教士之间社区-学术研究伙伴关系的基础设施 和JCCC，以便了解如何最好地发展与文化相关的生存教育 考虑到拉丁裔儿童、青少年和年轻人的生存风险，对他们的干预措施 后期效应；(2)测试通过合作研究开发的干预措施的有效性 结成伙伴关系，并在全国范围内传播重大成果，对双方都有利；(3) 通过发展正式的研究基础设施，教士/少年团的领导层 伙伴关系将能够向其不同成员群体提供教育、培训和赋权 关于如何通过以社区为基础的模式改善获得癌症生存护理的机会 参与性研究，并成为指导国家其他项目的资源。这一伙伴关系将 汇集内部咨询委员会和社区咨询的专门知识和经验 委员会在实施阶段制定了与文化相关的生存教育干预措施。 将测试干预措施在社区环境中提供的可接受性和可行性。这个 这项研究的预期结果是以光卵母细胞的形式开发干预，然后可以 在拉丁裔幸存者社区进行的全国范围内的测试表明，它在减少污名和改善方面的有效性 家庭的生存护理讨论和关于生存护理规划重要性的知识。