LONGITUDINAL STUDY OF UREA CYCLE DISORDERS

尿素循环障碍的纵向研究

• 批准号: 7951104
• 负责人: Uta Lichter-Konecki
• 金额: $ 3.24万
• 依托单位: CHILDREN'S RESEARCH INSTITUTE
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-12-01 至 2010-11-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7951104
• 关键词: Age; Clinical Research; Computer Retrieval of Information on Scientific Projects Database; Disease; Enrollment; Funding; Grant; Institution; Investigation; Longitudinal Studies; Morbidity - disease rate; Natural History; Participant; Research; Research Personnel; Resources; Source; United States National Institutes of Health; mortality; multidisciplinary; urea cycle

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The purpose of this study is to conduct a longitudinal multidisciplinary investigation of the natural history, morbidity, and mortality in people with Urea Cycle Disorders (UCD). The total number of subjects will be 200. Approximately 30 participants will be enrolled per year. Age can range from 1day to 99 years. The duration of the study will be 20 years.

该子项目是利用该技术的众多研究子项目之一 资源由 NIH/NCRR 资助的中心拨款提供。子项目和 研究者 (PI) 可能已从 NIH 的另一个来源获得主要资金， 因此可以在其他 CRISP 条目中表示。列出的机构是 对于中心来说，它不一定是研究者的机构。 本研究的目的是对尿素循环障碍 (UCD) 患者的自然史、发病率和死亡率进行纵向多学科调查。科目总数为 200 人。每年大约招收 30 名参与者。年龄范围从 1 天到 99 岁。研究期限为20年。