Community-Academic Partnership: Building an Infrastructure to Improve Health for

社区学术合作：建设基础设施以改善健康

• 批准号: 8006929
• 负责人: BETH A MARKS
• 金额: $ 99.23万
• 依托单位: UNIVERSITY OF ILLINOIS AT CHICAGO
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-09-01 至 2013-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8006929
• 关键词: Adoption; Advocacy; Advocate; Affect; Aging; Attitude; Caregivers; Caring; Charge; Chicago; Collaborations; Commit; Communication; Communities; Community Health; Community Health Centers; Community Networks; Community Participation; Community Services; Data; Development; Developmental Disabilities; Diffusion of Innovation; Distance Learning; Education; Educational Curriculum; Educational workshop; Ensure; Evidence based practice; Family; Foundations; Funding Opportunities; Health; Health Policy; Health Professional; Health Promotion; Health Services; Health Services Research; Health Status; Health system; Healthcare; Illinois; Individual; Institution; International; Journals; Learning; Life; Life Style; Link; Longevity; Manuals; Mission; Needs Assessment; New Mexico; Outcome; Outcome Assessment; Peer Review; Persons; Policy Maker; Population; Postdoctoral Fellow; Process; Public Health; Public Health Practice; Publishing; Research; Research Design; Research Infrastructure; Research Project Grants; Research Training; Resources; Self Efficacy; Services; Structure; Surveys; Training; Translating; Translational Research; Translations; Underserved Population; Universities; Vision; Work; base; care delivery; community based participatory research; community based practice; community organizations; data sharing; design; digital; dissemination research; empowered; evidence base; experience; health care delivery; health disparity; health equity; health science research; improved; innovation; knowledge translation; outreach; programs; research to practice; theories; volunteer; web site

DESCRIPTION (provided by applicant): This project seeks to create an infrastructure for a collaborative community-academic health center (AHC) partnership to enhance health status and optimize full community participation of people with developmental disabilities (DD) across the lifespan. While the value of community-academic partnerships to AHCs continues to be viewed with skepticism in the academic community, studies continue to demonstrate the benefits of community-academic partnerships (CAP) to develop and strengthen community capacity for the provision of culturally relevant health care in local settings while simultaneously enhancing the AHC's mission of research, education, and health care practice. Currently, for people aging with DD, little data exists regarding the translation of health promotion research into public health practice with an emphasis on achieving health equity. The lack of experience in working with people with DD and the limitations related to the translation of knowledge and best practices for caregivers and health professionals often translates into negative attitudes and implementation barriers that compromise the provision of proven culturally appropriate, accessible, acceptable, and equitable health care. This project is exceptionally relevant to public health because it seeks to improve health and functioning outcomes in a poor, underserved population that experiences significant health disparities using a community-academic partnership that assists community-based organizations in formulating research as a foundation for quality service delivery. Because community based organizations (CBOs) have a wealth of experience providing day-to- day services, they can facilitate the bi-directionality of the research to practice process by participating in the development of culturally relevant research questions and being more directly committed to the translation and dissemination of evidence-based practice. A strong CAP infrastructure will ensure the culturally and linguistically appropriateness of survey instruments, that research findings are disseminated to community stakeholders, and bridge gaps in practice outcomes that tend to maintain the status quo in health disparities. By building capacity among staff in CBOs we can better facilitate health care delivery by linking a hard-to-reach population through outreach and referral initiatives. CAP for Persons Aging with DD (CAP: PADD) will continue an ongoing relationship between North Pointe Resources, Inc (NRI) and ARCA, private non-profit CBOs providing day/residential services to persons with DD and the University of Illinois at Chicago (UIC). NRI and ARCA have working relationships with statewide networks providing day/residential services to persons with DD living in Illinois and New Mexico. Through CAP: PADD, we will hire a Community Research Associate (CRA) at each CBO, who will be a community representative and serve as a primary liaison facilitating communication and collaboration between the academic health center and the local community. An additional hire of a Research Associate at the University will allow a seamless coordination of the CAP: PADD Core Group and the Network of CBOs in Illinois and New Mexico. The CAP: PADD will create ProjectiSHIP.org as a free online Center of Digital Excellence for community networking and generating research questions; volunteering for research projects; and reviewing, publishing, and disseminating evidence-based products of the CAP: PADD Network for the interactive Sustainable Health Initiatives Programs (iSHIP). The ProjectiSHIP.org will provide an interactive forum for identifying relevant community-based research and training opportunities to participate in health promotion research initiatives aimed at the following activities: 1) workforce development in CBOs serving persons with DD, 2) health promotion and advocacy for people with DD, and 3) capacity building among health professionals to care for persons with DD. The network and website will also provide products in interactive forms, such as, videos, training manuals, curricula, and products developed through service-learning, community-based participatory research, and other community-engaged work. Lastly, we will provide announcements on funding opportunities related to community-based health promotion projects. Diffusion of Innovations Theory will guide the CAP: PADD across three levels (CBO capacity, direct support professionals' capacity, and persons with DD) to influence the translation, transfer, reach, dissemination, and adoption of evidence-based health promotion practices for persons aging with DD. CAP: PADD can create an open line of communication between the AHC and people with DD by engaging other CBOs in the research enterprise through active participation (both staff and people with DD) in formulating research questions, designing, and conducting research; translation and application of research findings to community-based practice and public health initiatives. The proposed three (3) year demonstration project will provide a much needed infrastructure for CAP: PADD to build capacity on ways to promote and maintain healthy lifestyles among persons aging with DD. CAP: PADD will engage the community, health policy makers and the service community to: 1) identify relevant stakeholders, partners, and advocates; 2) provide assistance workshops on program implementation and outcomes assessment; 3) support data sharing and needs assessment information; and 4) identify best practices for the public health system to integrate health promotion for people with DD that can be disseminated in presentations, peer reviewed and trade journals, and websites.

描述（由申请人提供）：该项目旨在为协作社区-学术健康中心（AHC）伙伴关系创建基础设施，以提高健康状况并优化发育障碍（DD）人群在整个生命周期中的全面社区参与。虽然社区学术合作伙伴关系的价值，以AHC继续被视为在学术界持怀疑态度，研究继续证明社区学术合作伙伴关系（CAP）的好处，以发展和加强社区的能力，在当地环境中提供文化相关的医疗保健，同时提高AHC的研究，教育和医疗保健实践的使命。目前，对于DD老年人，关于将健康促进研究转化为公共卫生实践的数据很少，重点是实现健康公平。缺乏与DD患者合作的经验，以及与护理人员和卫生专业人员的知识和最佳实践转化相关的限制，通常会转化为负面态度和实施障碍，从而影响提供经证明的文化上适当的，可获得的，可接受的和公平的医疗保健。该项目与公共卫生特别相关，因为它寻求通过社区-学术伙伴关系，帮助社区组织制定研究成果，作为提供优质服务的基础，改善健康差距很大的贫穷、得不到充分服务的人口的健康和功能成果。由于社区组织（CBO）有丰富的经验，提供日常服务，他们可以通过参与文化相关的研究问题的发展，并更直接地致力于翻译和传播循证实践，促进研究实践过程的双向性。一个强有力的联合呼吁程序基础设施将确保调查工具在文化和语言上的适当性，确保研究结果传播给社区利益攸关方，并弥合实践结果中的差距，这些差距往往会维持健康差距的现状。通过社区组织工作人员的能力建设，我们可以通过外联和转诊举措将难以接触到的人群联系起来，从而更好地促进保健服务的提供。老年人与DD的CAP（CAP：PADD）将继续与北角资源公司（NRI）和ARCA之间的持续关系，ARCA是为DD和芝加哥伊利诺斯大学（UIC）的人提供日间/住宅服务的私人非营利CBO。NRI和ARCA与全州网络建立了工作关系，为居住在伊利诺伊州和新墨西哥州的DD患者提供日间/住宅服务。通过CAP：PADD，我们将聘请社区研究助理（CRA）在每个CBO，谁将是一个社区代表，并作为促进学术健康中心和当地社区之间的沟通和合作的主要联络。在大学的一个研究助理的额外雇用将允许一个无缝的协调CAP：PADD核心组和网络的社区组织在伊利诺伊州和新墨西哥州。CAP：PADD将创建ProjectiSHIP.org作为一个免费的在线数字卓越中心，用于社区网络和生成研究问题;志愿参与研究项目;以及审查，出版和传播CAP：PADD网络的循证产品，用于交互式可持续健康倡议计划（iSHIP）。ProjectiSHIP.org将提供一个互动论坛，以确定相关的基于社区的研究和培训机会，参与旨在开展以下活动的健康促进研究倡议：1）社区组织为DD患者服务的劳动力发展，2）DD患者的健康促进和宣传，以及3）卫生专业人员护理DD患者的能力建设。该网络和网站还将提供互动形式的产品，如录像、培训手册、课程以及通过服务学习、社区参与式研究和其他社区参与的工作开发的产品。最后，我们会公布与社区健康促进计划有关的资助机会。创新理论的传播将指导CAP：PADD跨越三个层面（CBO能力，直接支持专业人员的能力，DD患者），以影响DD患者循证健康促进实践的翻译，转移，覆盖，传播和采用。CAP：PADD可以通过积极参与（工作人员和DD患者）制定研究问题，设计和开展研究，在AHC和DD患者之间建立开放的沟通渠道，让其他社区组织参与研究企业;将研究结果翻译和应用于基于社区的实践和公共卫生举措。拟议的三（3）年示范项目将为CAP：PADD提供急需的基础设施，以建立促进和维持DD老年人健康生活方式的能力。CAP：PADD将使社区、卫生政策制定者和服务社区参与：1）确定相关的利益相关者、合作伙伴和倡导者; 2）提供有关方案实施和成果评估的援助讲习班; 3）支持数据共享和需求评估信息;以及4）确定公共卫生系统的最佳实践，以整合可在演示文稿中传播的DD患者的健康促进，同行评审和贸易期刊以及网站。