My MediHealth: A Paradigm for Children-centered Medication Management

描述（由申请人提供）：药物使用系统的最后一英里需要工具来帮助患者遵守药物管理规则并监测副作用。个人健康记录（PHR）和新兴的用户采用的通信工具有望改变药物管理的格局。MyMediHealth项目的首要目标是研究PHR和支持的应用程序如何提高药物输送的安全性和质量。由家长、患者和学校/诊所卫生服务提供者组成的团队在这一领域的初步工作为MyMediHealth（下一代药物管理系统）创造了一个愿景。MyMediHealth的设想是让家庭护理人员成为一种工具，以确保安全有效的药物输送。这一愿景的特点是为有特殊医疗保健需求的儿童提供及时的药物提醒，以及双向通信，以记录何时给药。然而，大部分工作都是使用原型，故事板和视觉视频完成的。该项目的目标是通过MyMediHealth增强范德比尔特患者门户网站，并检验以下假设：当患有慢性疾病的儿童及其家庭获得MyMediHealth系统的授权时，可以改善儿童和家庭的药物依从性和疾病负担。认识到这一愿景不能进行没有重大变化的过程和政策，该项目的目的是评估MyMediHealth的药物依从性，家庭动态，疾病控制的影响，并对照顾者远离家庭，从医疗保健提供者到照顾者在学校设置。

DESCRIPTION (provided by applicant): The last mile of the medication use system requires tools to help patients comply with medication administration rules and monitor for side effects. Personal health records (PHR) and emerging user adopted communication tools promise to change the landscape of medication management. The overarching goal of the MyMediHealth project is to investigate ways in which PHRs and supported applications can improve the safety and quality of medication delivery. Preliminary work in this area by a team of parents, patients and school/clinic health providers created a vision for MyMediHealth, a next-generation medication management system. MyMediHealth was envisioned to allow home-based, caregivers a tool to ensure safe and effective medication delivery. This vision featured just-in-time medication reminders to children with special health care needs and two-way communication to log when doses have been administered. However, much of this work was done using prototypes, storyboards, and vision videos. The goal of this project is to augment the Vanderbilt patient portal with MyMediHealth, and to test the hypothesis that medication adherence and disease burden on the child and family can be improved when children with chronic illnesses and their families are empowered with the MyMediHealth system. Recognizing that this vision cannot be carried out without significant changes in processes and policies, the project is designed to evaluate the impact of MyMediHealth on medication adherence, family dynamics, disease control, and on caregivers away from the home-from healthcare providers to caregivers in the school setting.