Midwest Partners for Success Intervention for Youth and Young Adults with FASDs

摘要 这项建议的目的是实施一种创新的家庭治疗加宣传干预 解决16-25岁青年和青年人生活技能失调的继发性残疾， 患有FAS或FASD。使用生态学方法进行干预，前瞻性两组随机 一项对照试验将跟踪100名青年和年轻成人（在整个过程中被描述为“焦点个体”）， 通过为期12个月的干预和为期6个月的随访评估，将患者视为患有FAS/FASD。 研究参与者将接受社区标准治疗（CSC）或社区标准治疗加 成功干预伙伴（PFS）。主要分析将考虑护理类型（CSC）的影响 与PFS相比）对（a）破坏性行为和（B）应对和解决问题技能的影响。次要分析将 考虑作为社区护理标准接受的服务类型对主要结果的影响。 我们还将研究干预措施对改善父母应对和解决问题技能的影响， 提高工作绩效（主管绩效评级）或提高学校绩效（教师评级）。 PFS将为家庭或主要照顾者提供专门的家庭治疗和宣传培训， 为指定给协调人的案件辩护人提供专门的辩护培训。 该提案发展了两个更大的CDC目的：将研究与健康实践联系起来， 促进社区卫生服务不足的人群。由于圣刘易斯大学（SLU）是家庭的 CDC资助的中西部地区胎儿酒精培训中心（MRFASTC），该提案概述了 一个有前途的FAS试点干预计划的说明书。MRFASTC是一个以社区为基础的培训中心，专注于 传播最新的研究，预防，诊断和条件管理的那些生活在 FAS/FASD向卫生和社会服务从业人员/教育工作者提供。需要将知识/研究联系起来 卫生实践，MRFASTC的前景和PFS干预共享内的机构定位 圣刘易斯大学是连接科学研究和实践服务的逻辑进程-一个链接， 历史上充满了许多障碍。最后，由于缺乏针对性的服务， 在圣刘易斯大都会区患有FAS/FASD的年轻成年人中，该提案提供了一个适当的环境， 为这些服务不足的人群建立一个新的“服务井”-实现疾病预防控制中心的目标， 提高生活质量，预防继发性残疾的发展，并提供支持和 整个生命周期的帮助。这项研究的结果将直接为未来的研究提供信息， PFS干预适用于更大的FAS/FASD青年和年轻成人群体。符合 根据U84资助机制的目的，本提案的具体目标包括随机对照研究 旨在产生初步结果。

Abstract The objective of this proposal is to implement an innovative, family therapy plus advocacy intervention to address the secondary disabilities of dysfunctional life skills among youths and young adults ages 16-25 that have FAS or FASD. Using an ecological approach to the intervention, a prospective two-group randomized controlled trial will follow 100 youth and young adults (described throughout as the 'focal individual') identified as having FAS/FASDs through a twelve-month intervention with a six month follow-up assessment. Participants in the study will receive community standard care (CSC) or the community standard care plus the Partners for Success Intervention (PFS). Primary analysis will consider the influence of type of care (CSC versus PFS) on (a) disruptive behaviors and (b) coping and problem-solving skills. Secondary analysis will consider the influence of the type of service received as community standard of care on the primary outcomes. We will also examine impact of the intervention on improving parent coping and problem solving skills, improved job performance (supervisor performance ratings), or improved school performance (teacher ratings). The PFS will offer specialized family therapy plus advocacy training for the family or primary caregiver(s) and specialized advocacy training for the case advocate assigned to the focal individual. This proposal develops two greater CDC purposes: connecting research with health practice and promoting community health to underserved populations. As Saint Louis University (SLU) is the home for the CDC funded Midwest Regional Fetal Alcohol Training Center (MRFASTC), this proposal outlines the prospectus of a promising FAS pilot intervention. MRFASTC is a community-based training center, focused on disseminating the latest research on prevention, diagnosis, and condition management for those living with FAS/FASD to health and social service practitioners/educators. In the need for connecting knowledge/research to health practice, the prospect of MRFASTC and the PFS intervention sharing institutional orientation within Saint Louis University is a logical progression for bridging scientific study and practice services- a link which has historically been filled with many barriers. Lastly, given the absence of any tailored services targeting young adults with FAS/FASD in the Saint Louis metro-area, the proposal provides an appropriate setting to establishing a new 'service-well' for this underserved population-fulfilling the goals of the CDC towards improving quality of life, preventing development of secondary disabling conditions, and providing support and assistance throughout the lifespan. Findings from this study will directly inform a future study that will expand the PFS intervention to a larger group of youth and young adults with FAS/FASDs. Consistent with the purposes of the U84 grant mechanism, the specific aims of this proposal include a randomized control study designed to generate preliminary results.