8th International Myotonic Dystrophy Consortium Meeting

第八届国际强直性肌营养不良联盟会议

基本信息

批准号：
8248432
负责人：
RICHARD T MOXLEY
金额：
$ 3.3万
依托单位：
UNIVERSITY OF ROCHESTER
依托单位国家：
美国
项目类别：
财政年份：
2011
资助国家：
美国
起止时间：
2011-09-30 至 2012-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8248432
关键词：
19q13.3 3&apos Untranslated Regions 3q21 Advocacy Advocate Anesthesiology Animal Model Basic Science Brain Cardiology Cardiovascular system Caregivers Caring Cell model Clinical Clinical Investigator Clinical Research Clinical Trials Collaborations Data Development Development Plans Devices Disease Disease Management Disease Progression Distal Endocrine system Environment European Eye Family Caregiver Family member Florida Foundations Functional disorder Funding Funding Agency Future Genes Genetic Germany Goals Grant Growth Industry Interdisciplinary Study International Introns Investigation Lead Letters Mind Modality Molecular Biology Mutation Myotonia Myotonic Disorders Myotonic Dystrophy Neurobiology Neurology Outcome Measure Pathology Patient Care Patients Peer Review Pharmaceutical Preparations Progress Reports Provider Proximal Myotonic Myopathy Research Research Infrastructure Research Personnel Schedule Scientist Senior Scientist Smooth Muscle Structure Symptoms Therapeutic Translational Research Work abstracting career clinical care early onset efficacy testing innovation interest lectures medical specialties meetings multidisciplinary novel strategies patient advocacy group patient oriented posters symposium therapeutic development wasting

项目摘要

DESCRIPTION (provided by applicant): This application proposes funding for the 8th meeting of the International Myotonic Dystrophy Consortium (IDMC-8). IDMC-8 is scheduled to convene in Clearwater, Florida from November 30th to December 3rd, 2011. IDMC-8 will bring together top scientists from around the world to discuss high-impact, interdisciplinary research on myotonic dystrophy (DM). The objective of the conference is to promote scientific discussion and facilitate interdisciplinary exchange. This meeting brings together leading basic researchers in the field with clinicians and clinical investigators representing a broad range of specialties including: neurology, cardiology, anesthesiology, clinical trials, neurobiology, pathology, genetics and molecular biology. Their interactions and discussions stimulate new approaches to research and clinical care and provide opportunities to develop and strengthen collaborative studies. Researchers and clinicians having special interest and expertise in DM will serve as co-chairs of the scientific sessions during the meeting. The first day of IDMC-8 will include: registration; a satellite symposium on outcome measures to assess disease progression in myotonic dystrophy; keynote lectures; and a welcoming reception. The subsequent three days of the meeting will be devoted to scientific sessions in which researchers and clinicians present peer-reviewed, selected abstracts on basic, clinical and translational research topics. The scientific sessions begin at 8:00 AM and conclude between 5:30 to 7:30 PM each day. There will be two formal poster sessions. Posters will be displayed during the entire meeting. All the sessions at IDMC-8 will focus on "cutting edge" topics and research, such as, disease mechanisms of myotonic dystrophy, animal and cell models, clinical aspects and management of disease symptoms, and therapeutic development. On the final day, there will be patient-oriented sessions to promote discussion among patients, care-givers, representatives of patient advocacy groups, clinicians, and investigators. These sessions will be in "lay" terms to encourage interaction and exchanges of ideas among patients and investigators. The final afternoon will begin with highlights from the previous sessions, followed by advocacy group presentations, and a session for questions from patients and family members. PUBLIC HEALTH RELEVANCE: This application proposes funding for the 8th meeting of the International Myotonic Dystrophy Consortium (IDMC-8). Its goal is to facilitate discussions between clinical and bench researchers, and interface them with scientists and clinicians of related fields, representatives of regulatory and grant funding agencies, patient advocacy groups, patients with myotonic dystrophies and their families and caregivers. The IDMC meeting is the only conference in the world that brings together such a diverse group of attendees, including the leading experts in the field dedicated to the study, treatment and cure of myotonic dystrophy.

描述（由申请人提供）：本申请为国际肌发育症联盟（IDMC-8）举行的第八届会议提出了资金。 IDMC-8计划于11月30日至2011年12月3日在佛罗里达州的Clearwater举行召集。IDMC-8将召集来自世界各地的顶级科学家，讨论有关肌动症（DM）的高影响力，跨学科研究。会议的目的是促进科学讨论并促进跨学科交流。这次会议汇集了该领域的主要基础研究人员与临床医生和临床研究人员，代表了广泛的专业：神经病学，心脏病学，麻醉学，临床试验，神经生物学，病理学，遗传学和分子生物学。他们的互动和讨论刺激了研究和临床护理的新方法，并提供了发展和加强协作研究的机会。在会议期间，在DM方面具有特殊兴趣和专业知识的研究人员和临床医生将担任科学会议的共同主席。 IDMC-8的第一天将包括：注册；关于评估肌营养不良症疾病进展的结果指标的卫星研讨会；主题演讲；和热情的接待。随后的会议的三天将致力于科学会议，研究人员和临床医生在同行评审的基础，临床和翻译研究主题中精选摘要。科学会议从上午8:00开始，每天下午5:30至7:30结束。将有两个正式的海报会议。海报将在整个会议期间显示。 IDMC-8的所有课程都将着重于“最前沿”主题和研究，例如，肌发育症，动物和细胞模型的疾病机制，临床方面以及疾病症状的管理以及治疗性发育。在最后一天，将举行以患者为导向的课程，以促进患者，护理人员，患者倡导组织，临床医生和研究人员之间的讨论。这些会议将以“外行”术语为鼓励患者和研究人员之间的互动和思想交流。最后一个下午将从以前的会议中的亮点开始，然后是倡导小组演讲，以及有关患者和家人的问题的会议。公共卫生相关性：该申请为国际肌病性营养不良财团（IDMC-8）举行的第八届会议提出了资金。它的目标是促进临床和替补研究人员之间的讨论，并与相关领域的科学家和临床医生，监管机构和赠款机构的代表，患者倡导组织，患有肌发育不良的患者及其家人及其护理人员进行互动。 IDMC会议是世界上唯一汇集了如此多样化的与会者的会议，其中包括专门用于研究，治疗和治愈肌发育症的领域的主要专家。