First Bioethics Conference on Cancer Health Disparities Research: Celebrating Sch

描述（由申请人提供）：2005年，莫尔豪斯医学院、塔斯基吉大学和阿拉巴马大学伯明翰分校这三所拥有不同机构文化、特点和资源的学校同意合作，努力消除癌症负担的差距。可以预见，追求这一值得称赞的目标会带来一些沟通上的挑战。该伙伴关系由八个部分组成：(1)科学研究；(2)研究培训和职业发展；(3)癌症教育；(4)社区外展；(5)招聘；(6)评估；(7)生物统计学；(8)生物伦理。生物统计学和生物伦理学是伙伴关系内的共享资源。在塔斯基吉大学国家研究和卫生保健生物伦理中心的伦理和生物伦理专业知识和良心的指导下，生物伦理共享资源（BESR）在帮助伙伴关系在成长的痛苦中持续和进步方面发挥了重要作用（Sodeke, Turner, and Tarver 2010）。由于这样的记录，伙伴关系的项目指导委员会和NCI的项目官员强烈鼓励BESR小组举办一次全国会议，旨在帮助其他人解决癌症健康差异研究引发的伦理问题。为此，我们回应PA-10- 071 NIH R13会议和科学会议支持。将于2012年1月在塔斯基吉举行的第一届癌症健康差异研究生物伦理会议的具体目标是：(1)拓宽参与者对癌症健康差异研究的伦理问题的理解；(2)展示影响伦理问题解决的各种利益相关者和观点的意识；(3)更好地理解如何在适当关注背景问题、个人利益和根深蒂固的社区价值观的情况下，以伦理方式进行癌症健康差异研究，以消除差异。(4)计划利用所获得的知识和转化经验来消除家庭机构或新环境中的癌症健康差距。与会者将参与实验和体验式学习，并有机会展示他们的实验工作，并与同行互动，在一个支持性的环境中整理由这些工作引起的伦理问题。为了激发与会者的情感和各种道德观点，我们将使用亨丽埃塔·拉克斯的生活和联系的戏剧表演，由两位专业女演员表演；以及由塔斯基吉大学遗产博物馆设计和安装的海拉细胞展览，随后促进了深刻的反思和伦理分析。我们希望这些沉浸式体验对参与者来说是变革性的，这样他们对他人困境的敏感度就会增加，从而可以告知他们在癌症健康差异研究中改进道德判断的计划。我们计划将会议记录发表在专业杂志上，如《穷人和服务不足者的卫生保健杂志》。

DESCRIPTION (provided by applicant): In 2005, Morehouse School of Medicine, Tuskegee University, and University of Alabama at Birmingham, three schools with different institutional cultures, characters, and resources agreed to collaborate in efforts to eliminate the gap in cancer burden. Pursuing this laudable aim predictably involved some communication challenges. The Partnership is made up of eight components: (1) Scientific Research, (2) Research Training and Career Development, (3) Cancer Education, (4) Community Outreach, (5) Recruitment, and (6) Evaluation, (7) Biostatistics, and (8) Bioethics. Biostatistics and Bioethics served as shared resources within the Partnership. Guided by the ethical and bioethical expertise and conscience of the Tuskegee University National Center for Bioethics in Research and Health Care, the Bioethics Shared Resource (BESR) has been instrumental in helping the Partnership endure and progress through its growing pains (Sodeke, Turner, and Tarver 2010). Because of such a record, the Partnership's Program Steering Committee and the Project Officer at NCI strongly encouraged the BESR group to host a national conference, designed to assist others in addressing the ethical issues that cancer health disparities research raise. To this end, we respond to PA-10- 071 NIH R13 Support for Conferences and Scientific Meetings. The specific aims of the First Bioethics Conference on Cancer Health Disparities Research to be held at Tuskegee in January 2012 are: (1) Broaden participants' understanding of ethical issues specific to cancer health disparities research, (2) Demonstrate awareness of various stakeholders and perspectives impacting resolution of the ethical issues, (3) Gain a better understanding of how cancer health disparities research can be ethically conducted to eliminate disparities with due attention to contextual issues, individual interest, and entrenched community values, and (4) Plan to engage the knowledge and transforming experience gained to eliminate cancer health disparities in home institutions or new environments. Attendees will be engaged in experimental and experiential learning with the opportunity to present their experimental work and interact with peers to sort out the ethical issues raised by such work in a supportive environment. To engage the emotions and stimulate various ethical perspectives of the attendees, we will use a theatrical act of the life and connectedness of Henrietta Lacks performed by two professional actresses; and a HeLa Cell Exhibit to be designed and mounted by the Legacy Museum of Tuskegee University, followed by facilitated deep reflections and ethical analyses. We expect these immersion experiences to be transformative for participants, such that their increased sensitivity to the plight of others can inform their plans for improved moral judgments pertaining to ethical issues in cancer health disparities research. We plan to publish the proceedings of the conference in a professional journal such as the Journal of Health Care for the Poor and Underserved. PUBLIC HEALTH RELEVANCE: Research in cancer health disparities raises many ethical issues researchers must address in efforts to eliminate the disparities. Creative methods that are responsive to issues of race, ethnicity, gender, class, and spirituality of research participans as well as those of investigators, are required to understand and resolve relevant ethical issues. The proposed Bioethics Conference immersion experiences will likely result in increased sensitivity to the plight of others, and can inform attendees' plans for improved moral judgments as they do their work in new environments or home institutions.