New Hampshire Mammography Registry: Strategic Studies in Screening

我们提议的基础设施支持项目的总体目标是促进持续的数据收集 在新汉普郡乳房X光摄影网络(NHMN)中使用完善的重要基础设施 (全州乳房X光检查登记)，这样我们就可以进行和促进旨在 了解并解决NH及其他地区的乳腺癌问题。NHMN，这是 1996年实施，有效地获得了约90%的女性的人口统计、风险因素和放射学数据 在NH进行乳房X光检查，然后将乳房X光检查遇到的信息链接到乳房病理 结果。登记处已经成熟到可以更广泛地利用这一资源进行更多研究 是及时的，这将取决于对NHMN基础设施的持续支持。许多研究都是 使用NHMN进行了研究，并提交了其他几项研究，稍后将对此进行描述 这个应用程序。 我们的具体目标是：1)继续和完善目前的NHMN程序，包括数据收集， 病理链接，向乳房X光检查机构和放射科医生反馈报告，以及向 集中统计协调中心；2)在当地推广使用NHMN和联合体数据， 地区性的，地区性的。加入NHMN需要征得妇女的同意，才能访问她们的 医疗记录，并联系他们自己或他们的初级保健提供者以获得详细信息 关于他们的健康和未来的研究。我们有成功的记录来进行研究 妇女和她们的医疗保健提供者，包括乳房摄影技师、放射科医生、病理学家、 整个NH的乳房外科医生和初级卫生保健提供者。我们建议利用这些优势来 提高我们对乳腺癌检测的认识。

The overarching goal of our proposed infrastructure support project is to promote ongoing data collection using a well-established and vital infrastructure in the New Hampshire Mammography Network (NHMN) (statewide mammography registry) so that we can conduct and promote important research designed to understand and address the problem of breast cancer in NH and beyond. The NHMN, which was implemented in 1996 efficiently obtains demographic, risk factor, and radiologic data on ~ 90% of women having mammography in NH, and then links mammographic encounter information to breast pathology outcomes. The registry has matured to a point where expanded use .ofthis resource for additional research is timely, which will depend on continued support of the NHMN infrastructure. Many studies have been conducted using the NHMN and several more studies have been submitted, which will be described later in this application. Our Specific Aims are to: 1) Continue and refine current NHMN procedures, including data collection, pathology linkages, feedback reports to mammography facilities and radiologists, and data submissionsto a centralized statistical coordinating center; and 2) Promote the use of NHMN and Consortium data locally, regionally, and regionally. Enrollment in NHMN involves obtaining women's consent to allow access to their medical records and to having themselves or their primary care providers contacted for detailed information about their health and future research. We have a successful track record of conducting research with women and their healthcare providers, including mammographytechnologists, radiologists, pathologists, breast surgeons, and primary health care providers throughout NH. We propose to use these strengths to advance our understanding of breast cancer detection.