Development of a Quality Assessment Tool for Adult Congenital Heart Disease

成人先天性心脏病质量评估工具的开发

• 批准号: 8183768
• 负责人: Michelle Gurvitz
• 金额: $ 13.56万
• 依托单位: BOSTON CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-06-01 至 2015-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8183768
• 关键词: Accident and Emergency department; Active Learning; Adoption; Adult; Affect; Age; Applications Grants; Award; Canada; Cardiac Surgery procedures; Cardiology; Caring; Child; Childhood; Clinic; Clinical; Clinical Services; Complex; Congenital Abnormality; Data; Data Collection; Data Sources; Development; Education; Environment; Europe; Funding; Future; Generations; Goals; Guidelines; Health Policy; Health Services; Healthcare Systems; Heart; Hospitalization; K-Series Research Career Programs; Learning; Left; Live Birth; Measures; Medical; Medical Records; Medical center; Mentored Patient-Oriented Research Career Development Award; Methodology; Methods; Morbidity - disease rate; Newborn Infant; Operative Surgical Procedures; Outcome; Outcomes Research; Outpatients; Patient Recruitments; Patients; Pediatric Hospitals; Population; Population Research; Practice Guidelines; Principal Investigator; Process; Provider; Publications; Publishing; Quality Indicator; Quality of Care; Recommendation; Research; Research Methodology; Research Personnel; Resources; Review Literature; Series; Services; Severities; Specialist; Surveys; Techniques; Testing; Training; United States; Universities; Visit; Washington; abstracting; base; congenital heart disorder; design; experience; health care economics; health related quality of life; improved; interest; medical specialties; meetings; mortality; tool; validation studies

DESCRIPTION (provided by applicant): Congenital heart disease (CHD) is a common condition affecting 0.8% of live births. With new medical and surgical techniques, over 85% of these children survive to adulthood. Adult patients transitioning to adult providers from their pediatric specialists often suffer fragmented and inconsistent care, which may result in overall poor quality of care. My principal academic interests are improving the care for these adults with CHD, by assessing the quality of care received and evaluating the effect of providing appropriate, high quality care on patient and healthcare system outcomes. The education and research plans in this career development award are designed to support my own transition to an independent clinical and health services investigator studying quality of care and outcomes. The educational plan includes classes, directed learning, and experiential learning in quality of care assessment and outcomes research methods, advanced statistical design and analysis, and healthcare economics and health policy. The educational, research and clinical resources at the University of Washington and Children's Hospital and Regional Medical Center, with millions of dollars in research funding, hundreds of experienced researchers, and large, active cardiology divisions, provide an environment that will greatly assist me in realizing my goals. During this award period, I will develop, feasibility test and validate a comprehensive quality assessment tool for selected adult CHD conditions (QAT-ACHD). The tool will be comprised of quality indicators developed using the RAND QA Tools method. It will be feasibility tested at two adult CHD clinics. It will also be validated by comparing quality scores from the QAT-ACHD with outcomes, including health-related quality of life, hospitalizations and emergency department visits among the patients at 2 adult CHD clinics. In the long term, I plan to expand this type of research with further grant applications to study additional CHD conditions and different care environments. This type of quality assessment should facilitate future research on what services are needed in the healthcare system to provide high quality care to patients with CHD. Relevance: Adults born with heart conditions comprise about 1 million people in the United States and likely outnumber children with these conditions. The conditions vary in severity and treatment and care is often inconsistent when leaving childhood doctors which may result in poor outcomes. Quality assessment measures can help study and standardize high quality care, providing better outcomes for this large patient group.

描述（由申请人提供）：先天性心脏病（CHD）是一种常见疾病，影响0.8%的活产婴儿。在新的医疗和外科技术的帮助下，85%以上的儿童能够活到成年。从儿科专家过渡到成人提供者的成人患者通常会遭受分散和不一致的护理，这可能导致整体护理质量低下。我的主要学术兴趣是通过评估所接受的护理质量和评估提供适当的高质量护理对患者和医疗保健系统结果的影响，改善对这些成年CHD患者的护理。在这个职业发展奖的教育和研究计划旨在支持我自己的过渡到一个独立的临床和卫生服务调查研究护理质量和结果。教育计划包括课程，指导性学习和体验式学习，包括护理质量评估和成果研究方法，高级统计设计和分析，以及医疗经济学和卫生政策。华盛顿大学、儿童医院和地区医疗中心的教育、研究和临床资源，数百万美元的研究资金，数百名经验丰富的研究人员，以及大型、活跃的心脏病学部门，为我实现目标提供了一个极大的帮助。在此期间，我将开发，可行性测试和验证一个全面的质量评估工具，为选定的成人冠心病条件（QAT-ACHD）。该工具将包括使用兰德公司质量保证工具方法制定的质量指标。它将在两个成人CHD诊所进行可行性测试。还将通过比较QAT-ACHD的质量评分与结局进行验证，包括2家成人CHD诊所患者的健康相关生活质量、住院和急诊就诊。从长远来看，我计划通过进一步的拨款申请来扩大这种类型的研究，以研究额外的CHD条件和不同的护理环境。这种类型的质量评估应促进未来的研究，在医疗保健系统中需要什么服务，为冠心病患者提供高质量的护理。 相关性：在美国，出生时患有心脏病的成年人约有100万人，可能超过患有这些疾病的儿童。病情的严重程度各不相同，在离开儿童医生时，治疗和护理往往不一致，这可能导致不良结果。质量评估措施可以帮助研究和标准化高质量的护理，为这个庞大的患者群体提供更好的结果。