Remote-Access Data Enclave for HRS/PSID Analysis

用于 HRS/PSID 分析的远程访问数据飞地

• 批准号: 8455883
• 负责人: Thomas MaCurdy
• 金额: $ 14.96万
• 依托单位: ACUMEN, LLC
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-03-15 至 2013-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8455883
• 关键词: Agreement; Algorithms; American; Communities; Computer Security; Computer software; Confidential Information; Data; Data Analyses; Data Files; Data Security; Data Set; Disclosure; Documentation; Effectiveness; Electronic Mail; Environment; Equipment; Faculty; Forensic Medicine; Funding; Grant; Health; Health Services Research; Health Status; Health Surveys; Healthcare; Home Health Agency; Income; Individual; Information Centers; Internet; Link; Location; Medicaid; Medical; Medicare; Medicare/Medicaid; Methods; Monitor; Nursing Homes; Outcome Assessment; Patients; Personal Computers; Pharmaceutical Services; Phase; Physicians; Policies; Postdoctoral Fellow; Preparation; Privacy; Procedures; Process; Protocols documentation; Reporting; Research; Research Infrastructure; Research Personnel; Respondent; Retirement; Risk; Risk Assessment; Secure; Security; Series; Services; Small Business Innovation Research Grant; Structure; Surveys; System; Telephone; Training; United States Centers for Medicare and Medicaid Services; United States National Institutes of Health; Validation; Work; design; firewall; graduate student; health economics; improved; public health relevance; service utilization; social; tool; web based interface; web page; web site

DESCRIPTION (provided by applicant): To enhance the utility of federally-funded surveys, Acumen-through a project entitled the Medicare/Medicaid Research Information Center (MedRIC)-has pursued adding individual-linked administrative data from the Centers for Medicare & Medicaid Services (CMS) to supplement information in these survey data. Two prominent surveys are the Health and Retirement Survey (HRS) and the Panel Study of Income Dynamics (PSID), both of which provide a wealth of longitudinal data for conducting research on a wide range of economic, health, retirement and social circumstances of the American public. MedRIC has created comprehensive CMS-linked research files for these surveys that include all forms of information from Medicare and Medicaid claims for institutional, physician, and pharmaceutical services. In addition, MedRIC has produced linked files integrating information from CMS assessment datasets, which report numerous health and functional assessments for patients entering certified nursing homes and home health agencies. Under this SBIR application, Acumen will develop and launch a data enclave as a service of MedRIC that will provide for secure remote access to researchers and policy analysts, enabling them to conduct statistical analyses utilizing the linked CMS-HRS and CMS-PSID data. We expect availability of the MedRIC Enclave to markedly expand use of Medicare and Medicaid healthcare data in both scholarly and policy studies using the HRS and PSID, while making empirical work easier and less expensive. Enclave users will not need to acquire either the computing capacities or the facilities required to analyze the data and to protect against disclosures of confidential information. Moreover, overall data security will be substantially enhanced over alternative access methods since no personally identifying information will be distributed and the use of such information will be fully controllable at the individual researcher level. The design and use of the MedRIC Enclave will fully comply with the Data Use Agreement (DUA) procedures and data security protocols established by CMS and HRS/PSID. The Enclave's internet interface and computing infrastructure will support a broad array of privacy policies through remote access. Further, the Enclave will incorporate a series of statistical/data algorithms that limit disclosure of confidential information. Because of these security features, it will be possible to extend access to users currently excluded by the restrictions imposed by CMS and HRS/PSID, which will especially benefit junior faculty, post-doctoral scholars, graduate students, and policy analysts.

描述（由申请人提供）：为了提高联邦政府资助的调查的效用，Acumen通过一个名为医疗保险/医疗补助研究信息中心（MedRIC）的项目，一直致力于从医疗保险和医疗补助服务中心（CMS）添加与个人相关的管理数据，以补充这些调查数据中的信息。两项著名的调查是健康和退休调查（HRS）和收入动态小组研究（PSID），这两项调查都为研究美国公众的经济，健康，退休和社会环境提供了丰富的纵向数据。MedRIC为这些调查创建了全面的CMS相关研究文件，其中包括医疗保险和医疗补助机构，医生和制药服务索赔的所有形式的信息。此外，MedRIC还制作了链接文件，整合了CMS评估数据集的信息，这些数据集报告了进入认证疗养院和家庭健康机构的患者的许多健康和功能评估。 根据SBIR应用程序，Acumen将开发和推出一个数据飞地作为MedRIC的服务，为研究人员和政策分析人员提供安全的远程访问，使他们能够利用CMS-HRS和CMS-PSID数据进行统计分析。我们预计MedRIC飞地的可用性将显着扩大医疗保险和医疗补助医疗保健数据在学术和政策研究中使用HRS和PSID，同时使实证工作更容易，更便宜。飞地用户将不需要获得分析数据和防止机密信息泄露所需的计算能力或设施。此外，与其他存取方法相比，总体数据安全性将大大提高，因为不会分发个人身份信息，而且在个人研究人员一级，对这些信息的使用将完全可控。 设计和使用 MedRIC Enclave的将完全遵守CMS和HRS/PSID制定的数据使用协议（DUA）程序和数据安全协议。Enclave的互联网接口和计算基础设施将通过远程访问支持广泛的隐私政策。此外，Enclave将采用一系列统计/数据算法，限制机密信息的披露。由于这些安全功能，将有可能扩展到目前被CMS和HRS/PSID所施加的限制排除在外的用户，这将特别有利于初级教师，博士后学者，研究生和政策制定者。 分析机构的