Enhancing Confidentiality of Research Files Based on Medicare Data

增强基于医疗保险数据的研究文件的保密性

• 批准号: 9444716
• 负责人: Thomas MaCurdy
• 金额: $ 59.4万
• 依托单位: ACUMEN, LLC
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-09-01 至 2018-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9444716
• 关键词: Access to Information; American; Communities; Consult; Data; Data Element; Data Files; Data Quality; Data Set; Data Storage and Retrieval; Discipline; Documentation; Eligibility Determination; Fee-for-Service Plans; Feedback; Grant; Health; Health Care Research; Health Services Accessibility; Information Centers; Instruction; Life Style; Link; Maps; Masks; Medicaid; Medical; Medicare; Medicare claim; Medicare/Medicaid; Participant; Pattern; Personally Identifiable Information; Phase; Privacy; Procedures; Process; Production; Registries; Regulation; Research; Research Personnel; Retirement; Secure; Small Business Innovation Research Grant; Structure; Surveys; United States Centers for Medicare and Medicaid Services; United States National Institutes of Health; base; beneficiary; computer infrastructure; data structure; demographics; design; distributed data; encryption; geographic difference; health care quality; health economics; improved; panel study of income dynamics; social

DESCRIPTION (provided by applicant): In the "Enhancing Confidentiality of Research Files Based on Medicare Data" project, Acumen, LLC aims to expand the overall capabilities of researchers to use survey-linked Medicare claims data. Currently the process for obtaining approval from the Centers for Medicare & Medicaid Services (CMS) to access these files entails significant paperwork and delays, which imposes a substantial burden on researchers. To facilitate access to high-quality data, Acumen will create survey-linked Medicare claims-level files that meet CMS's expedited DUA process requirements. This process allows researchers to forego components of the standard procedures required to obtain data with personally identifiable information (PII). The Limited Data Set (LDS) files currently available under the expedited process, however, have significant shortcomings. Specifically, the LDS files encrypt, mask, or omit a large number of data elements. Further, the variable do not contain sufficient information to permit linking to survey data, stratified analyses, or the study of geographic variation, among other research purposes. By creating more detailed survey-linked claim-level files available through the expedited process, Acumen will not only reduce the demand for PII data (thus, enhancing beneficiary confidentiality), but also will allow more researchers to access detailed CMS data. To create these enhanced survey-linked Medicare files, Acumen will leverage our existing Medicare/Medicaid Research Information Center (MedRIC). MedRIC is Acumen's established mechanism for creating and distributing survey-data linked to various CMS administrative files. To meet researcher demand and CMS regulations, Acumen will closely collaborate with NIA surveys and the CMS to accomplish the following Phase I aims: 1. Review CMS data structure and variable encryption criteria for the expedited DUA process 2. Design candidate data structures that comply with the CMS expedited DUA regulations 3. Consult with NIA surveys to refine candidate data structures 4. Secure CMS approval for finalized data structure 5. Establish a design for a data request process with NIA surveys and CMS 6. Determine additional computer infrastructure needed for data storage and extraction In Phase II of this Fast Track application, Acumen will build the data file designed in Phase I, create documentation, begin data distribution, and obtain user feedback. The creation of these files aims to shift research community's data use paradigm by improving researcher access to CMS data while enhancing beneficiary confidentiality protections.

描述（由申请人提供）：在“增强基于医疗保险数据的研究文件的保密性”项目中，Acumen, LLC 旨在扩展研究人员使用与调查相关的医疗保险索赔数据的整体能力。目前，获得医疗保险和医疗补助服务中心 (CMS) 批准访问这些文件的过程需要大量的文书工作和延误，这给研究人员带来了沉重的负担。为了方便获取高质量数据，Acumen 将创建与调查相关的 Medicare 索赔级别文件，以满足 CMS 的快速 DUA 流程要求。此过程允许研究人员放弃获取包含个人身份信息 (PII) 的数据所需的标准程序的组成部分。然而，当前在快速流程下可用的有限数据集 (LDS) 文件存在重大缺陷。具体来说，LDS 文件加密、屏蔽或省略大量数据元素。此外，该变量不包含足够的信息来允许链接到调查数据、分层分析或地理变化研究以及其他研究目的。通过快速流程创建更详细的与调查相关的索赔级文件，Acumen 不仅会减少对 PII 数据的需求（从而提高受益人的机密性），而且还允许更多研究人员访问详细的 CMS 数据。 为了创建这些增强的与调查相关的医疗保险文件，Acumen 将利用我们现有的医疗保险/医疗补助研究信息中心 (MedRIC)。 MedRIC 是 Acumen 建立的机制，用于创建和分发与各种 CMS 管理文件相关的调查数据。为了满 NIA 调查和 CMS 的数据请求流程 6. 确定数据存储和提取所需的额外计算机基础设施 在此快速通道应用程序的第二阶段，Acumen 将构建第一阶段设计的数据文件、创建文档、开始数据分发并获取用户反馈。创建这些文件的目的是通过改善研究人员对 CMS 数据的访问，同时增强受益人的机密性保护，来改变研究界的数据使用范式。