Communication and Health Outcomes in Adolescents and Young Adults with T1D

描述(由申请者提供)：这个以患者为导向的研究职业发展奖(K23)的目标是了解患有1型糖尿病(T1D)的青少年和年轻人(AYA)的健康沟通能力的发展，并评估这一人群中健康沟通、自我护理和健康结果之间的关联。患有T1D的AYA患者的不良健康结局风险很高，包括血糖控制不佳、慢性并发症增加和生活质量不佳。血糖控制的恶化与独立的自我护理技能，包括对医疗护理的责任的承担是平行的。AYA和医疗保健提供者之间的有效沟通可能是自我保健技能的关键，但尚未得到充分研究。这项拟议的纵向研究计划在18个月的时间里检查75名患有T1D的青少年和年轻人(16-20岁)的健康沟通技能的发展，并评估高质量的健康沟通作为糖尿病自我护理和健康结果的预测因素。候选人的长期目标是开发和实施创新的预防干预措施，使患有慢性病的AYA及其家人为过渡到独立的自我护理做好最好的准备。为这一奖项提出的具体短期培训目标包括：1)发展AYA健康传播评估和评估方面的专业知识；2)扩大T1D的病理生理学知识；3)获得高级行为科学能力，包括高级数据分析、临床试验设计和拨款撰写。这项为期4年的K23奖项建议的研究和培训经验将在国家儿童医学中心和约翰霍普金斯大学进行，并由一支杰出的多学科导师和顾问团队提供支持，其中包括Randi Streisand博士(主要导师)、Pamela Hinds博士(共同导师)和Kristin Riekert博士(共同导师)。这种有重点的指导和培训将使候选人成为行为糖尿病研究中成功的独立调查者。这项研究的结果有可能极大地提高患有T1D的AYAS患者的自我护理技能，减少负面健康后果。让青少年和年轻人掌握加强健康交流的技能，可能会加速发展独立自我护理和成人保健系统所需的重要自我宣传技能，从而建立一种积极健康互动的持久模式。

DESCRIPTION (provided by applicant): The goal of this Mentored Patient-Oriented Research Career Development Award (K23) is to understand the development of health communication competence in adolescents and young adults (AYAs) with type 1 diabetes (T1D) and evaluate associations among health communication, self-care, and health outcomes in this population. AYAs with T1D are at high risk for negative health outcomes, including poor glycemic control, increased chronic complications, and poor quality of life. The deterioration of glycemic control occurs in parallel with the assumption of independent self-care skills, including responsibility fo medical care. Effective communication between AYAs and health care providers may be a critical, yet understudied, contributor to self-care skills. The proposed longitudinal study plans o examine the development of health communication skills in 75 adolescents and young adults (ages 16-20) with T1D over an 18 month period and evaluate high- quality health communication as a predictor of diabetes self-care and health outcomes. The candidate's long term goal is to develop and implement innovative preventive interventions to best prepare AYAs with chronic illnesses and their families for transition to independent self-care. Specific short-term training goals proposed for this award include: 1) Develop expertise in the assessment and evaluation of health communication in AYAs; 2) Expand knowledge of pathophysiology of T1D; and 3) Gain advanced behavioral science competencies, including advanced data analyses, clinical trial design, and grant writing. The research and training experiences proposed within this 4-year K23 award will be conducted at Children's National Medical Center and Johns Hopkins University and are supported by an outstanding multidisciplinary team of mentors and advisors, including Dr. Randi Streisand (Primary Mentor), Dr. Pamela Hinds (Co-Mentor), and Dr. Kristin Riekert (Co-Mentor). This focused mentorship and training will position the candidate to become a successful independent investigator in behavioral diabetes research. Results from this study have the potential to greatly improve self-care skills and reduce negative health outcomes in AYAs with T1D. Equipping adolescents and young adults with skills to enhance health communication may hasten the development of vital self-advocacy skills needed for independent self-care and in the adult health care system and, thus, establish a lasting pattern of positive health interactions.