Communication and Health Outcomes in Adolescents and Young Adults with T1D

患有 T1D 的青少年和年轻人的沟通和健康结果

• 批准号: 8565232
• 负责人: Maureen Monaghan
• 金额: $ 14.28万
• 依托单位: CHILDREN'S RESEARCH INSTITUTE
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-09-01 至 2017-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8565232
• 关键词: Achievement; Adherence; Adolescence; Adolescent; Adult; Advocacy; Affect; Age; American; Attention; Award; Behavior Therapy; Behavioral; Behavioral Sciences; Caring; Child; Chronic; Chronic Disease; Clinic Visits; Clinical Trials Design; Code; Communication; Competence; Complications of Diabetes Mellitus; Data; Data Analyses; Deterioration; Development; Diabetes Mellitus; Disclosure; Disease; Disease Management; Ensure; Evaluation; Family; Foundations; Frequencies; Functional disorder; Goals; Grant; Growth; Guidelines; Health; Health Communication; Health Personnel; Healthcare Systems; Individual; Insulin-Dependent Diabetes Mellitus; Intervention; Interview; Knowledge; Lead; Longitudinal Studies; Measures; Medical; Medical center; Mentored Patient-Oriented Research Career Development Award; Mentors; Mentorship; Outcome; Parents; Patient Self-Report; Patients; Pattern; Policies; Population; Positioning Attribute; Preventive Intervention; Problem Solving; Public Health; Quality of life; Questionnaires; Readiness; Reporting; Research; Research Personnel; Research Training; Risk; Roter; Self Care; Self Efficacy; Testing; Time; Training; Universities; Visit; Writing; Youth; base; career; executive function; experience; follow-up; glycemic control; high risk; improved; independent self care; innovation; insight; meetings; meter; multidisciplinary; parental involvement; patient oriented research; prevent; public health relevance; skills; therapy development; young adult

DESCRIPTION (provided by applicant): The goal of this Mentored Patient-Oriented Research Career Development Award (K23) is to understand the development of health communication competence in adolescents and young adults (AYAs) with type 1 diabetes (T1D) and evaluate associations among health communication, self-care, and health outcomes in this population. AYAs with T1D are at high risk for negative health outcomes, including poor glycemic control, increased chronic complications, and poor quality of life. The deterioration of glycemic control occurs in parallel with the assumption of independent self-care skills, including responsibility fo medical care. Effective communication between AYAs and health care providers may be a critical, yet understudied, contributor to self-care skills. The proposed longitudinal study plans o examine the development of health communication skills in 75 adolescents and young adults (ages 16-20) with T1D over an 18 month period and evaluate high- quality health communication as a predictor of diabetes self-care and health outcomes. The candidate's long term goal is to develop and implement innovative preventive interventions to best prepare AYAs with chronic illnesses and their families for transition to independent self-care. Specific short-term training goals proposed for this award include: 1) Develop expertise in the assessment and evaluation of health communication in AYAs; 2) Expand knowledge of pathophysiology of T1D; and 3) Gain advanced behavioral science competencies, including advanced data analyses, clinical trial design, and grant writing. The research and training experiences proposed within this 4-year K23 award will be conducted at Children's National Medical Center and Johns Hopkins University and are supported by an outstanding multidisciplinary team of mentors and advisors, including Dr. Randi Streisand (Primary Mentor), Dr. Pamela Hinds (Co-Mentor), and Dr. Kristin Riekert (Co-Mentor). This focused mentorship and training will position the candidate to become a successful independent investigator in behavioral diabetes research. Results from this study have the potential to greatly improve self-care skills and reduce negative health outcomes in AYAs with T1D. Equipping adolescents and young adults with skills to enhance health communication may hasten the development of vital self-advocacy skills needed for independent self-care and in the adult health care system and, thus, establish a lasting pattern of positive health interactions.

描述（由申请人提供）：该指导以患者为导向的研究职业发展奖（K23）的目标是了解1型糖尿病（T1 D）青少年和年轻人（AYAs）健康沟通能力的发展，并评估该人群中健康沟通，自我护理和健康结果之间的关联。患有T1 D的AYA有很高的负面健康结果风险，包括血糖控制不良，慢性并发症增加和生活质量差。血糖控制的恶化与独立自我护理技能（包括医疗护理责任）的假设平行发生。AYAs和医疗保健提供者之间的有效沟通可能是自我保健技能的关键，但研究不足。拟议的纵向研究计划在18个月内检查75名T1 D青少年和年轻人（16-20岁）的健康沟通技能的发展，并评估高质量的健康沟通作为糖尿病自我护理和健康结局的预测因素。候选人的长期目标是制定和实施创新的预防干预措施，以最好地准备与慢性疾病和他们的家庭过渡到独立的自我保健的AYA。该奖项提出的具体短期培训目标包括：1）发展AYAs健康传播评估和评价的专业知识; 2）扩展T1 D病理生理学的知识; 3）获得先进的行为科学能力，包括先进的数据分析，临床试验设计和资助写作。在这个为期4年的K23奖项中提出的研究和培训经验将在儿童国家医学中心和约翰霍普金斯大学进行，并得到杰出的多学科导师和顾问团队的支持，包括Randi Streisand博士（主要导师），Pamela Hinds博士（共同导师）和Kristin Riekert博士（共同导师）。这种集中的指导和培训将使候选人成为行为糖尿病研究中成功的独立调查员。这项研究的结果有可能大大提高自我护理技能，减少患有T1 D的AYA的负面健康结果。为青少年和年轻人提供加强健康沟通的技能，可以加快发展独立自我保健和成人保健系统所需的重要自我宣传技能，从而建立一种持久的积极健康互动模式。