Archiving and Dissemination of NLTCS Medicaid Data

NLTCS 医疗补助数据的存档和传播

• 批准号: 8370893
• 负责人: P.J. ERIC STALLARD
• 金额: $ 7.85万
• 依托单位: DUKE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-08-01 至 2013-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8370893
• 关键词: Administrative Supplement; Agreement; Archives; Area; Calendar; Censuses; Chronic; Communities; Data; Data Set; Elderly; Eligibility Determination; Ensure; Funding; Grant; Health; Health Insurance Portability and Accountability Act; Health Services; Home environment; Hospitals; Individual; Inpatients; Laws; Lead; Link; Long-Term Care; Longitudinal Surveys; Mediation; Medicaid; Medicare; Nursing Homes; Outcome Assessment; Participant; Persons; Privacy; Protocols documentation; Records; Research; Research Personnel; Respondent; Sampling; Services; Source; Surveys; Time; United States National Institutes of Health; Universities; Work; computerized data processing; cost; disability; meetings; operation; payment

DESCRIPTION (provided by applicant): The 2004 National Long Term Care Survey (NLTCS) was the sixth and final round of a nationally representative longitudinal survey of elderly Medicare enrollees, and the fourth round of the survey conducted by Duke University. Field operations for all rounds were handled by the U.S. Census Bureau. The 1982 and 1984 rounds were conducted by CMS (HCFA) in conjunction with ASPE. The 1989, 1994, 1999, and 2004 rounds were conducted by Duke University with funding from NIH/NIA, with supplemental funding by ASPE. NLTCS records from all rounds were linked to Medicare records beginning in 1982 and extending forward in time to the latest available calendar year. Partially de-identified versions of the linked Medicare files were and continue to be edited and prepared for use by researchers who meet the CMS requirements for Data Use Agreements covering the use of such data under the HIPAA Privacy Rule. The specific aim of this one-year R03 application is to perform corresponding file editing and data processing needed to enable similar data release protocols to be put in place for Medicaid files (i.e., the 2004-2009 MDS and OASIS files, and the 2004-2007 MAX files) linked to the NLTCS sample for all participants who were alive anytime in the period 2004-2009. Negotiations will be conducted with CMS and NIA to ensure that the linked Medicaid data are assembled in a form that meets the requirements of both agencies with respect to dissemination to approved researchers with CMS Data Use Agreements. This will ensure that these data have the broadest possible dissemination allowed under current law, and will do so in a manner that will quickly enable a broad array of secondary analyses of linked NLTCS-Medicaid data that would otherwise not be feasible. Such secondary analyses have strong potential to further advance research in two NIA priority areas: the dynamics of health and disability; and long-term care. PUBLIC HEALTH RELEVANCE: The NLTCS is the premier source of information on LTC disability among the elderly in the U.S. Medicaid is the largest source of payment for LTC services in the U.S. Making the NLTCS- linked Medicaid records available to the research community will lead to a better understanding of the costs, types, and impacts of the Medicaid services being delivered.

描述（由申请人提供）：2004年国家长期护理调查（NLTCS）是第六轮也是最后一轮具有全国代表性的老年医疗保险参保者纵向调查，也是杜克大学进行的第四轮调查。所有回合的实地行动都由美国人口普查局负责。1982年和1984年两轮由CMS（HCFA）与ASPE一起进行。1989年、1994年、1999年和2004年的研究由杜克大学进行，由NIH/NIA提供资金，由ASPE提供补充资金。从1982年开始，NLTCS的所有轮次记录都与医疗保险记录相关联，并在时间上向前延伸到最近的可用日历年。链接的Medicare文件的部分去识别版本已经并将继续进行编辑和准备，以供符合数据使用协议CMS要求的研究人员使用，这些协议涵盖了根据HIPAA隐私规则使用此类数据。这一为期一年的R 03应用程序的具体目标是执行相应的文件编辑和数据处理，以使类似的数据发布协议能够适用于医疗补助文件（即，2004-2009年MDS和OASIS文件，以及2004-2007年MAX文件）链接到2004-2009年期间任何时间存活的所有参与者的NLTCS样本。将与CMS和NIA进行谈判，以确保链接的医疗补助数据以符合两个机构关于向CMS数据使用协议批准的研究人员传播的要求的形式收集。这将确保这些数据在现行法律允许的范围内尽可能广泛地传播，并将以一种方式快速实现对NLTCS-Medicaid数据的广泛二次分析，否则这些数据将不可行。这种二次分析有很大的潜力，以进一步推进研究在两个国家影响评估的优先领域：健康和残疾的动态;和长期护理。 公共卫生相关性：NLTCS是美国老年人LTC残疾的主要信息来源。Medicaid是美国LTC服务的最大支付来源。将NLTCS相关Medicaid记录提供给研究界将有助于更好地了解医疗补助服务的成本、类型和影响。