Do Access Barriers to Autism Care Persist Despite Autism Insurance Mandate?

尽管有自闭症保险规定，获得自闭症护理的障碍是否仍然存在？

• 批准号: 8544496
• 负责人: Li Wang
• 金额: $ 27.36万
• 依托单位: PENNSYLVANIA STATE UNIV HERSHEY MED CTR
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-09-12 至 2015-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8544496
• 关键词: Address; Affect; Area; Autistic Disorder; Behavior; Caring; Child; Child Care; Data; Databases; Eligibility Determination; Employee Retirement Income Security Act; Family; Future; Geographic Locations; Health Benefit; Health Policy; Home environment; Hospitals; Insurance; Insurance Carriers; Insurance Coverage; Knowledge; Lead; Life; Measures; Medical; Mental Health; Neurologic; Outpatients; Parents; Policies; Prevalence; Process; Provider; Relative (related person); Research; Resources; Services; Siblings; Single Parent; Statutes and Laws; Time; Training; Travel; United States; Visit; autism spectrum disorder; autistic children; base; cost; design; developmental disease; flexibility; improved; innovation; meetings; prevent; prospective; rural area; urban area

DESCRIPTION (provided by applicant): Autism spectrum disorder (ASD) is a neurological developmental disorder that affected approximately 1 in 110 children in the United States in 2006, and its prevalence has risen rapidly in recent years. In view of increasingly unmet needs for autism care, more and more states have passed mandates requiring private insurers to provide autism insurance. However, little is known about actual changes in autism services use, costs and health benefits after such mandates take effect. More importantly, access barriers to autism care persist for privately insured autistic children despite autism mandates. Without timely study and informed policy measures to address persistent access barriers, the care of children with ASD may be jeopardized. Using a unique large multi-state private insurance claims database, this research will be: 1) the first study to use post- mandate private insurance claims data to measure actual changes in autism service use, costs and health benefits after autism insurance mandates; and 2) the first study to explore access barriers that persist despite autism mandates. The findings will: 1) help evaluate autism mandates based on actual changes rather than prospective projections; and 2) help decision makers design future autism mandates and identify the next essential steps following the passage of autism insurance mandates to further remove access barriers and better serve children with ASD.

描述（由申请人提供）：自闭症谱系障碍（ASD）是一种神经发育障碍，2006 年美国每 110 名儿童中就有 1 人受到影响，近年来其患病率迅速上升。鉴于自闭症护理需求日益得不到满足，越来越多的州通过了强制要求私人保险公司提供自闭症保险。然而，在此类命令生效后，人们对自闭症服务使用、成本和健康益处的实际变化知之甚少。更重要的是，尽管有针对自闭症的强制规定，但对于私人投保的自闭症儿童来说，获得自闭症护理的障碍仍然存在。如果没有及时的研究和明智的政策措施来解决持续存在的准入障碍，自闭症谱系障碍儿童的护理可能会受到损害。这项研究使用独特的大型多州私人保险索赔数据库，将：1）第一项使用强制执行后私人保险索赔数据来衡量自闭症保险强制执行后自闭症服务使用、成本和健康福利的实际变化的研究； 2）第一项探索尽管有自闭症强制规定但仍然存在的准入障碍的研究。研究结果将：1）帮助根据实际变化而不是前瞻性预测来评估自闭症指令； 2) 帮助决策者设计未来的自闭症规定，并确定自闭症保险规定通过后的下一步重要步骤，以进一步消除准入障碍并更好地为患有自闭症谱系障碍的儿童提供服务。