Parents.Cope: A tool for Parents of Adolescents with T1DM

Parent.Cope：1 型糖尿病青少年家长的工具

• 批准号: 8644972
• 负责人: Lisa D Marceau
• 金额: $ 15万
• 依托单位: NEW ENGLAND RESEARCH INSTITUTES, INC.
• 依托单位国家: 美国
• 财政年份: 2014
• 资助国家: 美国
• 起止时间: 2014-09-23 至 2015-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8644972
• 关键词: Address; Adherence; Adolescence; Adolescent; Affect; Algorithms; Anxiety; Attention; Awareness; Camping; Child; Child health care; Chronic; Chronic Disease; Clinic Visits; Clinical; Complement; Coupled; Development; Diabetes Mellitus; Distress; Elements; Ensure; Evaluation; Family; Focus Groups; Friends; Goals; Grant; Group Interviews; Health; Health Care Visit; Health Professional; Hispanics; Home Page; Hormonal Change; Independent Living; Insulin-Dependent Diabetes Mellitus; Internet; Journals; Lead; Learning; Mental Depression; Metabolic; Metabolic Control; Online Systems; Outcome; Parents; Participant; Perception; Phase; Post-Traumatic Stress Disorders; Prevalence; Procedures; Program Effectiveness; Program Reviews; Psychological adjustment; Psychologist; Psychosocial Influences; Puberty; Publishing; Randomized Clinical Trials; Regimen; Research; Risk; Schools; Self Management; Self-Evaluation Programs; Stress; Suggestion; Symptoms; Tablets; Technology; Time; Treatment Protocols; Youth; base; coping; depressive symptoms; design; diabetes educator; diabetes management; experience; meetings; post-traumatic stress; programs; prototype; psychological distress; psychosocial; public health relevance; social; stress management; tool; user-friendly; vigilance; web site

PROJECT SUMMARY/ABSTRACT Type 1 diabetes (T1DM) is the most common chronic illness in children, affecting 1 in 400 with evidence that its prevalence is increasing worldwide. Parents of children with T1DM are responsible for a labor-intensive and complicated daily regimen that has been described as an overwhelming experience, requiring constant vigilance. The prevalence of anxiety symptoms for parents of children with T1DM range from 21-59%; depressive symptoms from 10-74%; psychological distress from 29-33%; and symptoms of Post Traumatic Stress Disorder (PTSD) from 19-24%. Parental psychological distress has negative health implications for the parent, the overall functioning of the family, the psychological adjustment of their child with T1DM, and diabetes management. Combined with parental stress, children (as they reach adolescence) have an increasing need for autonomy in T1DM management, creating additional concerns about good metabolic control. Most health care visits are thus focused on the adolescent with diabetes, but overlook the equally important health of the parent: their overburdened caretakers. There is currently no program readily available for parents of youth with T1DM in a user-friendly, socioculturally appropriate format, which addresses psychosocial burden. Therefore, the goal of this application is to develop an internet program for parents of early adolescents with T1DM (Parents.Cope) ¿ to promote parental adjustment to this developmental transition, ¿ to decrease parental stress and distress, and ¿ to support appropriate parental transfer of diabetes responsibility from parent to adolescent. We propose to complete three major Aims during Phase I to establish feasibility: Aim 1: Develop the content outline and foundational technology components of the Parents.Cope program. Aim 2: Develop a prototype of Parents.Connect to demonstrate the goals of the complete program. Aim 3: Independently evaluate the feasibility and acceptability of the Parents.Cope prototype using focus groups and interviews involving think aloud procedures.

项目总结/摘要 1型糖尿病（T1 DM）是儿童中最常见的慢性疾病，有证据表明， 它在世界范围内的流行率正在上升。患有T1 DM儿童的父母负责劳动密集型 和复杂的日常生活，已被描述为一个压倒性的经验，需要不断 警惕T1 DM儿童父母的焦虑症状患病率为21-59%; 抑郁症状10-74%;心理困扰29-33%;创伤后症状 压力障碍（PTSD）为19- 24%。父母的心理困扰对儿童的健康有负面影响。 父母，家庭的整体功能，T1 DM儿童的心理调整，以及 糖尿病管理再加上父母的压力，孩子们（当他们进入青春期时） T1 DM管理中对自主性的需求日益增加，从而产生了对良好代谢的额外担忧。 控制因此，大多数卫生保健访问都集中在患有糖尿病的青少年身上，但同样忽视了糖尿病患者。 父母的重要健康：他们负担过重的照顾者。目前还没有现成的方案 以用户友好的、社会文化上适当的形式为T1 DM青少年的父母提供， 心理负担因此，这个应用程序的目标是为父母开发一个互联网程序， 早期青少年T1 DM（父母.科普），以促进父母适应这种发展 过渡，以减少父母的压力和痛苦，并支持适当的父母转移， 从父母到青少年的糖尿病责任。我们建议在第一阶段完成三个主要目标 确定可行性： 目标1：制定Parents.科普计划的内容大纲和基础技术组件。 目标2：开发一个家长原型。连接以展示整个计划的目标。 目标3：独立评估Parents.科普原型使用focus的可行性和可接受性 小组和访谈涉及大声思考程序。

项目成果

An eHealth Program for Parents of Adolescents With T1DM Improves Parenting Stress: A Randomized Control Trial.

针对 T1DM 青少年家长的电子健康计划可改善育儿压力：随机对照试验。

• DOI: 10.1177/0145721719890372
• 发表时间: 2020
• 期刊: The Diabetes educator
• 作者: Whittemore,Robin;Coleman,Julia;Delvy,Roberta;Zincavage,Rebekah;Ambrosoli,JamesA;Shi,Ling;Kato,Bernet;Marceau,Lisa
• 通讯作者: Marceau,Lisa

Development of an eHealth Program for Parents of Adolescents With Type 1 Diabetes.

• DOI: 10.1177/0145721717748606
• 发表时间: 2018-03
• 期刊: The Diabetes educator
• 作者: Whittemore R;Zincavage RM;Jaser SS;Grey M;Coleman JL;Collett D;Delvy R;Basile Ibrahim B;Marceau LD
• 通讯作者: Marceau LD