IGF::OT::IGF SUPPORT SERVICES FOR TWO INFORMATION CLEARINGHOUSES, NIAMS, NIH

IGF::OT::IGF 为两家信息交换所、NIAMS、NIH 提供支持服务

• 批准号: 8704185
• 负责人: KIM HOLMES
• 金额: $ 159.76万
• 依托单位: IQ SOLUTIONS, INC.
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-02-15 至 2014-01-14
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8704185
• 关键词: Affect; American; Arthritis; Awareness; Basic Science; Bone Diseases; Chronic Disease; Clinical Research; Commit; Communication; Communities; Contracts; Databases; Development; Disease; Electronics; Event; Exhibits; Goals; Health Care Costs; Health Personnel; Healthcare; Human; Information Dissemination; Institutes; Joints; Language; Learning; Life; Mails; Medical Research; Mission; Muscle; Musculoskeletal; Musculoskeletal Diseases; Musculoskeletal System; National Institute of Arthritis and Musculoskeletal and Skin Diseases; Nature; Oral; Osteoporosis; Pain; Patients; Population Heterogeneity; Press Releases; Productivity; Public Health; Publications; Research; Research Support; Research Training; Resources; Services; Skin; Societies; Structure; Translational Research; United States Dept. of Health and Human Services; United States National Institutes of Health; Visual Aid; Work; Writing; bone; cost; disability; improved; meetings; operation; outreach; programs; response; skin disorder

To provide support to the National Institute of Arthritis and Musculoskeletal and Skin Diseases' (NIAMS) comprehensive program of information dissemination to patients, their health care providers, the research community, and the media through the NIAMS Information Clearinghouse (NIC) and the NIH Osteoporosis and Related Bone Diseases~National Resource Center (NRC) and under the direction of the NIAMS Office of Communications and Public Liaison (OCPL). As a component of the National Institutes of Health (NIH), an agency of the U.S. Department of Health and Human Services (HHS), the NIAMS supports basic, translational, and clinical research; research training; and information programs on many of the more debilitating diseases affecting the American people. Most of these diseases are chronic and many cause life-long pain, disability, or disfigurement. They affect millions of Americans, cause tremendous human suffering, and cost the U.S. economy billions of dollars in health care costs and lost productivity. These diseases include the many different forms of arthritis and numerous disorders of the musculoskeletal system and the skin. The Institute also conducts and supports research on the normal structure and function of bones, joints, muscles, and skin. The NIAMS is committed to a comprehensive program of information dissemination. Research advances are of limited value if they never reach the arena of health care, therefore missing the goal of improving public health for all Americans. The NIC and the NRC help support the NIAMS effort of reaching patients, their health care providers, the research community, and the media with information about medical research advances. In addition, the NIAMS works closely with many voluntary and professional societies to learn their needs and disseminate NIAMS research findings to them. The NIAMS targets much of its information to certain high-need audiences, such as underrepresented and non-English-speaking communities, and it strives to make its information accessible to the vast and diverse populations affected by the diseases within its mandate. The NIAMS contracted with an organization to provide all management, technical, logistical, and administrative services for the continued operation of the NIC, a congressionally authorized national information clearinghouse. This contract included the operations of the NIC and the provision of related information dissemination services to the NIAMS OCPL. The nature of the support services included public inquiry response, materials development, materials management and dissemination, database development, meeting and exhibit support, and communications planning and outreach in support of the NIAMS' mission to disseminate information.

在NIAMS通讯与公共联络办公室（OCPL）的指导下，通过NIAMS信息交换中心（NIC）和美国国立卫生研究院骨质疏松和相关骨病国家资源中心（NRC），为国家关节炎、肌肉骨骼和皮肤疾病研究所（NIAMS）向患者、他们的医疗保健提供者、研究界和媒体传播信息的综合计划提供支持。作为美国卫生与公众服务部（HHS）下属机构美国国立卫生研究院（NIH）的一个组成部分，NIAMS支持基础、转化和临床研究；研究培训;以及关于影响美国人民的许多使人衰弱的疾病的信息项目。这些疾病大多是慢性的，许多会导致终生疼痛、残疾或毁容。它们影响了数百万美国人，造成了巨大的人类痛苦，给美国经济造成了数十亿美元的医疗费用和生产力损失。这些疾病包括许多不同形式的关节炎和许多肌肉骨骼系统和皮肤的疾病。该研究所还开展并支持有关骨骼、关节、肌肉和皮肤的正常结构和功能的研究。NIAMS致力于一个全面的信息传播计划。研究进展的价值是有限的，如果它们从来没有进入卫生保健领域，因此失去了为所有美国人改善公共卫生的目标。NIC和NRC帮助支持NIAMS努力向患者、他们的医疗保健提供者、研究界和媒体提供有关医学研究进展的信息。此外，NIAMS与许多志愿和专业协会密切合作，了解他们的需求，并向他们传播NIAMS的研究成果。国家传染病研究所的大部分信息是针对某些高需求的受众，例如代表性不足和非英语社区，它努力使其信息能够为其任务范围内受这些疾病影响的广大和不同的人群所利用。NIAMS与一个组织签订合同，为国会授权的国家信息交换中心NIC的持续运作提供所有管理、技术、后勤和行政服务。该合同包括NIC的运作和向NIAMS OCPL提供相关的信息传播服务。支助服务的性质包括答复公众询问、材料编制、材料管理和分发、数据库编制、会议和展览支助、通讯规划和外联，以支持国家科学研究院传播信息的使命。