NIH Osteoporosis and Related Bone Diseases~National Resource Center (NRC)

美国国立卫生研究院骨质疏松症及相关骨病国家资源中心是美国卫生与公众服务部国立卫生研究院(NIH)的一部分，为患者、医疗专业人员和公众提供有关代谢性骨骼疾病的资源和信息的重要链接，这些疾病包括骨质疏松症、骨派杰氏病、成骨不全和甲状旁腺机能亢进症。国家资源中心致力于提高医生、卫生专业人员、患者、服务不足和高危人群(如西班牙裔和亚裔妇女、青少年和男性)和普通公众对预防、及早发现和治疗骨质疏松症和相关骨骼疾病的认识、知识和了解。国家资源中心提供了现有资源和试图找到这些资源的个人(例如，卫生专业人员、患者和公众)之间的联系。它开发了新的材料来填补重要的信息空白，例如男性的骨质疏松症和其他罕见骨骼疾病的患者信息。还提供或计划提供西班牙语和亚洲语言的教材，供识字率低的人群使用，以及为视障人士编写。它分发与代谢性骨骼疾病有关的信息包、小册子、情况说明书和其他材料。

The NIH Osteoporosis and Related Bone Diseases, The National Resource Center, a part of the U.S. Department of Health and Human Services' National Institutes of Health (NIH), provides patients, health professionals, and the public with an important link to resources and information on metabolic bone diseases, including osteoporosis, Paget's disease of the bone, osteogenesis imperfecta, and hyperparathyroidism. The National Resource Center is dedicated to increasing the awareness, knowledge and understanding of physicians, health professionals, patients, underserved and at-risk populations (such as Hispanic and Asian women, adolescents, and men) and the general public about the prevention, early detection and treatment of osteoporosis and related bone diseases. The National Resource Center provides a link between current resources and the individuals (e.g., health professionals, patients, and the public) who are trying to locate these resources. It develops new materials to fill important gaps in information, such as osteoporosis in men and patient information on other rare bone diseases. Materials in Spanish and Asian languages, for low literacy populations, and for individuals with visual impairment are also available or planned. It distributes information packets, pamphlets, fact sheets, and other materials related to metabolic bone diseases.