Decision Aids to Address Prostate Cancer Disparities in Minority Men

决策有助于解决少数族裔男性前列腺癌的差异

基本信息

  • 批准号:
    8771566
  • 负责人:
  • 金额:
    $ 41.77万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2014
  • 资助国家:
    美国
  • 起止时间:
    2014-07-02 至 2019-03-31
  • 项目状态:
    已结题

项目摘要

DESCRIPTION (provided by applicant): African American and some Native American men experience a greater burden of prostate cancer in the United States. Surgery and radiation therapy are effective treatments, but each has different quality of life implications for men and their partners. These treatments, although potentially life-saving impose their own burden related to treatment side effects. Some men may benefit from a monitoring approach called "active surveillance" if they have early, slow-growing prostate cancer. Making the right treatment choice depends of men being given all appropriate options and making sure they have a high quality conversation with their specialty provider. Minority men in particular are not always given the evidence they need to make the right choice for them, and doctors and healthcare systems may not always pay attention to what is important to them. Tools called "decision aids" can improve knowledge and may reduce the burden associated with prostate cancer treatment in minority men. These tools inform men about their disease severity, treatment options, and the quality of life implications of each treatment option. They can be delivered in clinical discussion with specialists or prior to a visit with a specialist. However, decision aids are not routinely usd in specialty practice for prostate cancer. A tablet-based tool we have developed, Prostate Choice, helps men tailor their choice based on their disease risk, life expectancy, and current sexual and urinary function. It can be used in the clinical conversation. Another tool, Knowing Your Options, is a website with comprehensive educational materials that is designed for use prior to visits with specialists. We want to study two kinds of decision aids - ones delivered in te visit with a specialist and one delivered before seeing a specialist as well as the combination of the two decision aids-to see if we can put patients in the best position possible to make the treatment choice that is right for them. We think these tools will reduce known disparities in patient knowledge and may improve the burden of men's symptoms a year after prostate cancer diagnosis. We propose an experiment that delivers the two types of decision aids compared to usual care by assigning 32 specialty practices to get different types of decision aids or usual care. To test the experiment we will enroll 310 men (120 white, 120 African American, 70 American Indian/Alaska Native). From this experiment we will see whether one or the other of the two proposed decision aids or the combination of the two improves men's knowledge most compared to usual care. We will be able to determine whether those effects are the same or different for men from different racial backgrounds and education levels. By testing these tools we will determine whether they can reduce known disparities in patient knowledge and quality of life in minority men.
描述(由申请人提供):在美国,非裔美国人和一些美洲原住民男性的前列腺癌负担更大。手术和放射治疗是有效的治疗方法,但每种方法对男性及其伴侣的生活质量都有不同的影响。这些治疗虽然可能挽救生命,但也会带来与治疗副作用相关的负担。一些男性如果患有早期缓慢生长的前列腺癌,可能会受益于一种称为“主动监测”的监测方法。做出正确的治疗选择取决于男性获得所有适当的选择,并确保他们与专业提供者进行高质量的对话。尤其是少数民族男性, 他们需要证据来为他们做出正确的选择,医生和医疗保健系统可能并不总是注意什么对他们来说是重要的。被称为“决策辅助工具”的工具可以提高知识,并可能减少少数民族男性前列腺癌治疗的负担。这些工具告知男性他们的疾病严重程度,治疗方案以及每种治疗方案对生活质量的影响。它们可以在与专家的临床讨论中或在专家访问之前提供。然而,在前列腺癌的专业实践中,决策辅助工具并不是常规使用的。我们开发的一种基于平板电脑的工具,前列腺选择,帮助男性根据他们的疾病风险,预期寿命以及当前的性和泌尿功能来定制他们的选择。它可以用于临床对话。另一个工具,了解你的选择,是一个网站,提供全面的教育材料,旨在与专家访问之前使用。我们想研究两种决策辅助工具,一种是在专家就诊时提供的,一种是在专家就诊前提供的,以及两种决策辅助工具的结合,看看我们是否能让患者处于最佳位置,做出适合他们的治疗选择。我们认为这些工具将减少患者知识的已知差异,并可能改善前列腺癌诊断后一年男性症状的负担。我们提出了一个实验,提供了两种类型的决策援助相比,通常的护理,通过分配32个专业的做法,以获得不同类型的决策援助或通常的护理。为了测试实验,我们将招募310名男性(120名白色,120名非洲裔美国人,70名美国印第安人/阿拉斯加原住民)。从这个实验中,我们将看到是否一个或另一个提出的决定援助或两者的组合,提高男性的知识相比,通常的护理。我们将能够确定这些影响对于来自不同种族背景和教育水平的男性来说是相同还是不同。通过测试这些工具,我们将确定它们是否可以减少少数民族男性患者知识和生活质量的已知差异。

项目成果

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Simon P Kim其他文献

ACCURACY OF CLAIMS DATA TO IDENTIFY INCIDENT CASES OF BENIGN PROSTATIC HYPERPLASAI
  • DOI:
    10.1016/s0022-5347(08)60018-x
  • 发表时间:
    2008-04-01
  • 期刊:
  • 影响因子:
  • 作者:
    Simon P Kim;John M Hollingsworth;Brent K Hollenbeck;David A Hanauer;Kellie S Paich;John T Wei
  • 通讯作者:
    John T Wei
CLINICAL LOW RISK PROSTATE CANCER: WHAT CAN WE TELL THE PATIENT AT DIAGNOSIS?
  • DOI:
    10.1016/s0022-5347(08)60601-1
  • 发表时间:
    2008-04-01
  • 期刊:
  • 影响因子:
  • 作者:
    Simon P Kim;Jessica Labo;Stephanie Daignault;David P Wood
  • 通讯作者:
    David P Wood
PATIENT AND DISEASE CHARACTERISTICS ASSOCIATED WITH AN ADEQUATE LYMPH NODE DISSECTION DURING RADICAL CYSTECTOMY
  • DOI:
    10.1016/s0022-5347(08)61560-8
  • 发表时间:
    2008-04-01
  • 期刊:
  • 影响因子:
  • 作者:
    Christopher R Hempel;Simon P Kim;David P Wood;Stephanie Daignault;Khaled S Hafez;Cheryl T Lee
  • 通讯作者:
    Cheryl T Lee
LONG TERM OUTCOME AND QUALITY OF LIFE ASSESSMENT FOR PATIENTS WITH HYPOSPADIAS CORRECTED BY TUBULARIZED INCISED PLATE URETHROPLASTY
  • DOI:
    10.1016/s0022-5347(09)60327-x
  • 发表时间:
    2009-04-01
  • 期刊:
  • 影响因子:
  • 作者:
    Zubair H. Sarmast;Simon P Kim;David A Bloom;Jerilyn M Latini
  • 通讯作者:
    Jerilyn M Latini
IS PELVIC LYMPH NODE DISSECTION NECESSARY AMONG ELDERLY PATIENTS WITH BLADDER CANCER UNDERGOING A RADICAL CYSTECTOMY?
  • DOI:
    10.1016/s0022-5347(08)61701-2
  • 发表时间:
    2008-04-01
  • 期刊:
  • 影响因子:
  • 作者:
    Simon P Kim;David P Wood;Khaled S Hafez;Christopher R Hempel;Stephanie Daignault;Cheryl T Lee
  • 通讯作者:
    Cheryl T Lee

Simon P Kim的其他文献

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