Real-Time Data Capture of the Experiences of Blacks in Cancer Clinical Trials

描述（由申请人提供）：参与癌症临床试验是减少黑人癌症患者癌症差异的有效手段，因为它们提供了从领先的医疗保健提供者和研究人员那里获得高质量医疗保健的机会。很多关于黑人参与癌症临床试验的研究涉及的是没有患癌症的黑人社区成员，或者不是癌症幸存者。目前尚不清楚到底是什么因素影响了黑人癌症患者参与并继续参加癌症临床试验。此外，我们不知道成年黑人癌症患者在临床试验过程中的日常经历。本应用程序提出了一项定性描述性研究，使用面对面和实时电话访谈来确定和描述黑人癌症患者在决定参与和继续研究时认为重要的因素，并提供在他们参与临床研究期间实际发生的事情的丰富描述。这项研究与国家临床研究中心的使命是一致的，即提高科学知识和减少临床研究中的健康差距。

DESCRIPTION (provided by applicant): Participation in cancer clinical trials is an effective means of reducing cancer disparities among Black cancer patients because they provide an opportunity to receive high quality health care from leading healthcare providers and researchers. Much of the research about cancer clinical trial participation among Blacks involves members of the Black community who do not have cancer, or who are not cancer survivors. It is not known what factors actually influence Black cancer patients to participate and remain in cancer clinical trials. Moreover, we do not know the day-to-day experiences of Black adults with cancer as they navigate their way through the clinical trial process. This application proposes a qualitative descriptive study using face-to-face and real-time telephone interviews to identify and describe the factors that Black cancer patients consider important in their decision to participate and remain in research and to provide a rich description of what is actually happening during their clinical research participation. This research is consistent with the mission of NINR to enhance scientific knowledge and reduce health disparities in clinical research.