An Examination of Hospice Use Among Children

儿童临终关怀使用情况的调查

• 批准号: 8730230
• 负责人: Lisa C. Lindley
• 金额: $ 9.29万
• 依托单位: UNIVERSITY OF TENNESSEE KNOXVILLE
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-09-04 至 2016-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8730230
• 关键词: 21 year old; Address; Affect; Age; Applications Grants; Area; Businesses; California; Caring; Cessation of life; Characteristics; Child; Child Care; Child health care; Childhood; Clinical; Clinical Psychology; Communication Research; Communities; Comorbidity; Data; Data Analyses; Development Plans; Diagnosis; Disease; Doctor of Philosophy; Eligibility Determination; Ethnic Origin; Face; Faculty; Family; Future; Gender; Geographic Distribution; Geographic Information Systems; Geographic Locations; Geography; Goals; Health; Health Care Reform; Health Policy; Health Services; Health Services Accessibility; Healthcare Systems; Home environment; Hospice Care; Improve Access; Interdisciplinary Study; Intervention; Knowledge; Lead; Learning; Life; Location; Los Angeles; Lung; Malignant Neoplasms; Medicine; Mentored Research Scientist Development Award; Mentors; Mentorship; Nature; Nurses; Pattern; Perception; Play; Policies; Policy Research; Population; Population Intervention; Public Health; Public Policy; Race; Research; Research Methodology; Research Personnel; Research Project Grants; Resources; Role; Science; Series; Services; Severities; Statistical Methods; Techniques; Terminally Ill; Time; Training; Travel; Underserved Population; United States; Vulnerable Populations; base; career; career development; cohort; design; effective intervention; end of life; hospice environment; improved; innovation; interest; public health relevance; skills; statistics

DESCRIPTION (provided by applicant): The purpose of this K01 Mentored Research Scientist Development Award is to prepare Lisa C. Lindley, PhD, RN for an independent health services and policy research career with a special focus on pediatric end-of-life care. The career development plan entails three objectives to achieve the career goals of the candidate that include: 1) developing a clinical and policy grounding in pediatric end-of-life care; 2) acquiring knowledge of advanced research methods and statistics; and 3) expanding research communication abilities. The development plan will consist of thoughtfully selected coursework and activities under the guidance of an expert mentorship and advisory team including Drs. Shih-Lung Shaw, Maureen Lyon, Jennifer Mack, Paul Erwin, and Don Bruce. The plan will also include conducting a study to examine hospice use among children that will lead to future R-series grant applications. The research project seeks to understand how the characteristics of children influence utilization of hospice care services. Using an innovative geographic information systems approach along with longitudinal administrative data, this study will employ a retrospective cohort design to address the following specific aims: 1) to explore geographic patterns of hospice use among children by describing the geographic distribution of pediatric hospice use, identify geographic clusters of pediatric hospice use, and compare geographic clusters of pediatric hospice use and nonuse; and 2) to examine the effects of child characteristics (i.e., geographic, demographic, health) on pediatric hospice use while controlling for community characteristics. It is anticipated that the results of the study will inform clinicaland policy initiatives on how to improve access to pediatric hospice care.

描述（由申请人提供）：K01 指导研究科学家发展奖的目的是为 Lisa C. Lindley 博士、注册护士做好独立健康服务和政策研究职业的准备，特别关注儿科临终关怀。职业发展计划需要实现候选人职业目标的三个目标，包括：1）建立儿科临终关怀的临床和政策基础； 2）获取先进研究方法和统计知识； 3）扩大研究交流能力。该发展计划将包括在包括博士在内的专家指导和咨询团队的指导下精心挑选的课程和活动。萧士龙、莫林·里昂、詹妮弗·麦克、保罗·欧文和唐·布鲁斯。该计划还将包括开展一项研究，调查儿童临终关怀的使用情况，这将导致未来的 R 系列拨款申请。该研究项目旨在了解儿童的特征如何影响临终关怀服务的利用。本研究将采用创新的地理信息系统方法和纵向管理数据，采用回顾性队列设计来解决以下具体目标：1）通过描述儿科临终关怀使用的地理分布来探索儿童临终关怀使用的地理模式，确定儿科临终关怀使用的地理集群，并比较儿科临终关怀使用和不使用的地理集群； 2) 在控制社区特征的同时，研究儿童特征（即地理、人口、健康）对儿科临终关怀服务使用的影响。预计该研究的结果将为如何改善儿科临终关怀服务的临床和政策举措提供信息。