Community Engagement/Outreach Core

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Community engagement is an essential component to the research process. A review of the history of eariier population-based studies, in both majority and minority populations, indicates that requisite to a study's success is the comprehensive involvement of the study population's community. In 1947, Framingham's founders insightfully established an Executive Committee of lay community members who would assist in the study's planning and who would identify publicity venues (Dawber, Meadors, Moore, 1951). To accommodate the unique needs ofthe Native American population, the Strong Heart Study, in its pre-exam activities, made an effort to obtain community involvement in the study's planning (Stoddard, et. al. 2000). Considerable attention was devoted to the production of print media - posters, brochures - that incorporated Native American cultural symbolism. The Coronary Risk in Young Adults study (CARDIA) included in its initial recruitment plan strategies that involved the endorsements of local community leaders and the use of local media (Hughes, Cutter, et. al; 1987). The Jackson Heart Study in its formative years developed the Community Partnership Coalition. The primary purpose of this The primary purpose of this "Partnership" is to provide guidance and direction to the JHS on issues specific to the community and the cohort. Additionally, it was responsible for assisting in the development of recruitment messages to ensure culture and language appropriateness. This body is comprised of local community and faith based organizations (CBOs/FBOs), community advocates and activists, social and civic groups, neighborhood associations, JHS participants, health care providers, governmental agencies, beauty and barber shops, and others interested in and supportive of the JHS.