Racial Disparities in the Health of Caregivers for Persons with Alzheimer's Disease

阿尔茨海默病患者护理人员健康状况的种族差异

• 批准号: 9330762
• 负责人: JULIE M ZISSIMOPOULOS
• 金额: $ 8.25万
• 依托单位: UNIVERSITY OF SOUTHERN CALIFORNIA
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-08-15 至 2018-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9330762
• 关键词: Age; Alzheimer' s Disease; Alzheimer' s disease risk; American; Behavior; Brain Diseases; Caregiver support; Caregivers; Caring; Continuity of Patient Care; Cross-Sectional Studies; Data; Data Set; Dementia; Demographic Aging; Disease; Elderly; Emotional; Ethnic Origin; Ethnic group; Evolution; Family Caregiver; Family member; Financial cost; Funding; Future; Goals; Health; Health Status; Health and Retirement Study; Health behavior; Healthcare; Home Care Services; Hour; Impaired cognition; Individual; Insurance Carriers; Judgment; Life Cycle Stages; Longitudinal cohort; Medical Care Costs; Medicare; Medicare claim; Memory; Memory Loss; Mental Health; Modeling; Onset of illness; Outcome; Personality; Persons; Policies; Population; Prevalence; Privatization; Race; Research; Research Personnel; Services; Socioeconomic Status; Surveys; Time; United States National Institutes of Health; aging population; beneficiary; caregiving; cohort; economic outcome; ethnic minority population; functional decline; functional status; health disparity; improved; informal care; middle age; model development; models and simulation; physical conditioning; predictive modeling; racial and ethnic; racial diversity; racial health disparity; simulation; socioeconomics

Over the past 50 years, health and functional status of the American population has continued to improve but these improvements have not been equally distributed across races, ethnicities and socioeconomic groups. Perhaps nowhere is the challenge to reduce health disparities more apparent than in Alzheimer's disease (AD) and other dementias. Risk of AD is higher among ethnic minorities, and because many public and private insurers do not cover institutionalized or paid home health care services that individuals with these diseases require, the burdens faced by family caregivers from diverse racial, ethnic and socioeconomic backgrounds is high. The goals of this project are two-fold. First, we will estimate predictive models of cognitive decline, AD onset, other health and functional status changes of middle age and older Americans. We model caregiving for person with AD and analyze and quantify how health and other indicators of well being evolve over the life course for caregivers of family members with AD and contribute to health disparities. Second, we will utilize a dynamic micro simulation model of health, cognitive decline and economic outcomes to quantify health of future populations and burden of AD across diverse groups. Our ability to achieve the proposed aims is enhanced by use of the best data sets available for this research and that are established NIH-funded longitudinal cohorts: the Health and Retirement Study and its sub-study the Aging Demographics and Memory Study. It is further enhanced by a team of researchers with expertise in both dementia and microsimulation.

过去50年来，美国人口的健康和机能状况持续改善，但 这些进步并未在不同种族、族裔和社会经济群体之间平均分配。 也许没有什么地方比阿尔茨海默病 (AD) 更能体现缩小健康差距的挑战 和其他痴呆症。少数族裔患 AD 的风险较高，并且因为许多公共和私人机构 保险公司不承保患有这些疾病的个人的制度化或付费家庭医疗保健服务 要求，来自不同种族、民族和社会经济背景的家庭照顾者面临的负担是 高的。该项目的目标有两个。首先，我们将估计认知衰退（AD）的预测模型 中年和老年美国人的发病、其他健康和功能状态变化。我们以护理为榜样 针对 AD 患者，分析并量化健康状况和其他幸福指标在一生中的演变情况 为患有 AD 的家庭成员的照顾者提供课程，并导致健康差异。其次，我们将利用一个 健康、认知衰退和经济结果的动态微观模拟模型，以量化健康状况 不同群体的未来人口和 AD 负担。我们实现拟议目标的能力是 通过使用可用于本研究且由 NIH 资助建立的最佳数据集来增强 纵向队列：健康与退休研究及其子研究老龄化人口统计和记忆 学习。具有痴呆症和微观模拟专业知识的研究人员团队进一步增强了这一功能。