From Bench to Clinic: How Basic, Translational, and Clinical Research in Conjunction with Focused Outreach Continues to be Transformative

从实验室到临床：基础研究、转化研究和临床研究与重点推广相结合如何继续带来变革

• 批准号: 9332024
• 负责人: Richard C Bernstein
• 金额: $ 1.5万
• 依托单位: PENNSYLVANIA STATE UNIV HERSHEY MED CTR
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-04-01 至 2018-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9332024
• 关键词: Address; Affect; African American; Americas; Area; Award; Basic Science; Clinical; Clinical Research; Collaborations; Development; Diffuse; Disease; Environment; Ethnic group; Europe; Event; Faculty; Fatigue; Fees; Fostering; Genetic Markers; Granulomatous; Immune; Individual; Institution; Knowledge; Lung diseases; Mediating; Mind; Mission; Oral; Organ; Participant; Pathogenesis; Patients; Physicians; Postdoctoral Fellow; Public Health; Publications; Quality of life; Research; Research Personnel; Sarcoidosis; Scientist; Students; Training; Translating; Translational Research; Travel; Underrepresented Minority; Underserved Population; United States National Institutes of Health; Vasculitis; Woman; base; bench to bedside; care delivery; career development; common symptom; graduate student; health care disparity; health disparity; improved; interest; meetings; minority communities; neurosarcoidosis; outreach; racial and ethnic; symposium

Abstract The Americas Association of Sarcoidosis and Other Granulomatous Disorders (AASOG) is a physician and physician-scientist directed organization that is dedicated to a better understanding of the pathogenesis and improving treatment of patients with sarcoidosis. This poorly understood disease commonly afflicts underrepresented minorities. AASOG is a subsidiary of the World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG), which is based in Europe and was founded in 1987. AASOG has previously sponsored 7 annual national meetings. I addition to general subjects related to genetics, biomarkers and treatment for sarcoidosis, this 8th annual conference will focus on 2 specific areas: 1) How better to provide access to minority communities for Sarcoidosis treatment 2) A detailed discussion of neurosarcoidosis, with special considerations on fatigue, the most common symptom in sarcoidosis and its affect on quality of life. Conference Title: Combining Transformative Sarcoidosis Research and Outreach to Improve Health Disparities With this framework in mind, many of the invited participants are underrepresented minorities, and many of the attendees are junior faculty or trainees. The focus on underrepresented minorities expands beyond the invited participants in that the low registration fees will make this meeting highly accessible to underrepresented minorities. Trainee participation in the meeting will be further encouraged by waiving registration fees and providing travel awards to 5 students/junior investigators based upon the quality of their research presentations. Furthermore, the highly interactive scientific environment and engagement with well-established research scientists will be contributory to their career development. This meeting will thereby encourage and promote the development of new scientists dedicated to the advancement of sarcoidosis research and treatment and encourage further collaboration among researchers to advance our knowledge of sarcoidosis. Thus, the 2017 AASOG meeting will support a variety of activities that are directly relevant to the scientific missions of the National Institutes of Health and public health.

摘要 美洲结节病和其他肉芽肿性疾病协会（AASOG）是一名医生， 医生科学家指导的组织，致力于更好地了解发病机制， 改善结节病患者的治疗。这种知之甚少的疾病通常会折磨 代表性不足的少数民族。AASOG是世界结节病和其他疾病协会的子公司。 肉芽肿性疾病（WASOG），总部设在欧洲，成立于1987年。AASOG拥有 曾主办过7次全国年会。 除了与遗传学、生物标志物和结节病治疗相关的一般学科外， 会议将重点关注两个具体领域：1）如何更好地为少数民族社区提供机会， 结节病的治疗2）详细讨论神经结节病，特别注意疲劳， 结节病最常见症状及其对生活质量的影响。 会议名称：结合转型结节病研究和推广，以改善健康 差距 考虑到这一框架，许多受邀与会者是代表性不足的少数群体， 参加者为初级教员或实习生。对代表性不足的少数群体的关注超出了受邀者的范围。 与会者认为，低登记费将使代表人数不足的人很容易参加这次会议， 少数群体将通过免除登记费和 根据他们的研究质量，为5名学生/初级研究人员提供旅行奖励 介绍。此外，高度互动的科学环境和与公认的 研究科学家将有助于他们的职业发展。因此，这次会议将鼓励和 促进致力于结节病研究进展的新科学家的发展， 治疗和鼓励研究人员之间的进一步合作，以提高我们对结节病的认识。 因此，2017年AASOG会议将支持与科学直接相关的各种活动。 美国国立卫生研究院和公共卫生的使命。