Innovation through collaboration at the intersection of childhood development and cancer: a platform for the Gabriella Miller Kids First Pediatric Data Resource Center

通过在儿童发育和癌症交叉领域的合作进行创新：Gabriella Miller Kids First 儿科数据资源中心的平台

• 批准号: 9924636
• 负责人: Jena Lilly
• 金额: $ 15.18万
• 依托单位: CHILDREN'S HOSP OF PHILADELPHIA
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/9924636
• 关键词: Affect; Archives; Award; Childhood; Collaborations; Communication; Communities; Community Outreach; Congresses; Data Coordinating Center; Data Scientist; Development; Documentation; Ecosystem; Education; Educational workshop; Exercise; Family; Feedback; Fostering; Foundations; Goals; Grant; Hospitals; Institutes; International; Interview; Intuition; Knowledge; Logistics; Maintenance; Malignant Neoplasms; Office Management; Office of Administrative Management; Online Systems; Patients; Pediatric Research; Persons; Policies; Press Releases; Process; Progress Reports; Reaction Time; Registries; Reporting; Research Personnel; Resources; Schedule; Scientist; Services; Support System; System; Teleconferences; TimeLine; Training; United States National Institutes of Health; Update; Work; clinical conference; data portal; data resource; design; experience; innovation; lectures; meetings; operation; outreach; programs; social media; success; symposium; tool; web portal; webinar

Project Summary: Administration and Outreach Core The Administration and Outreach Core for the Gabriella Miller Kids First Pediatric Data Resource Center (KFDRC) is tasked with (1) managing administrative logistics; (2) facilitating communications among stakeholders of the Kids First Program, and (3) providing education and support to users of the data portal. The Administration and Outreach Core team brings to the Core a wealth of experience in managing international collaborative projects that span across multiple institutes; liaising with a wide range of stakeholders including biomedical researchers, data scientists, clinicians, patients, funders and philanthropists; developing education materials and delivering them at conferences, workshops and webinars; and promoting use of project resources through various channels including conferences, press releases and interviews, and new collaborations. To rapidly support the KFDRC the Administration core will establish a project management office (PMO) supporting all project teams from the onset of activities to accomplish their goals and to facilitate communications among all stakeholders including a web-based administration portal and knowledge asset management strategy. The Outreach team will design intuitive in-application education tools and online user guides/tutorials to support system requirements determined for specific use cases and employ community outreach strategies to foster engagement. These iterative strategies will provide continued systems, process and strategic improvement across the Kids First Pediatric Data Resource Center ecosystem. The Administrative and Outreach Core will work with the Steering Committee, the National Institutes of Health Program Office (NIH PO) and grant partners to execute and deliver the KFDRC resources to the pediatric research community.

项目摘要：行政和外联核心 Gabriella米勒儿童第一次儿科数据的管理和外展核心 资源中心的任务是：（1）管理行政后勤;（2）促进 儿童第一计划的利益攸关方之间的沟通，以及（3）提供教育和 为数据门户用户提供支持。 行政和外联核心团队为核心带来了丰富的经验， 管理跨越多个研究所的国际合作项目;与 广泛的利益相关者，包括生物医学研究人员，数据科学家，临床医生， 患者、资助者和慈善家;开发教育材料并在 会议、讲习班和网络研讨会;通过各种方式促进项目资源的利用 渠道，包括会议、新闻稿和采访，以及新的合作。 为了迅速支持科索沃民主改革中心，行政核心将建立一个项目管理 项目管理办公室（PMO）从活动开始就支持所有项目团队实现其目标 并促进所有利益相关者之间的沟通，包括基于网络的管理 门户网站和知识资产管理战略。 外联团队将设计直观的应用程序内教育工具和在线用户 指南/教程，以支持针对特定用例确定的系统要求，并采用 促进参与的社区外联战略。这些迭代策略将提供 持续改进Kids First Pediatric Data的系统、流程和战略 资源中心生态系统。 行政和外联核心将与指导委员会、国家信息和通信技术委员会和国家信息和通信技术委员会合作， 卫生研究院项目办公室（NIH PO）和赠款合作伙伴执行和提供 KFDRC资源儿科研究社区。