LOvE (LGBT Oncofertility Education) ECHO

LOvE（LGBT 肿瘤生育教育）ECHO

• 批准号: 9931988
• 负责人: Gwendolyn P Quinn
• 金额: $ 8.18万
• 依托单位: H. LEE MOFFITT CANCER CTR & RES INST
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-08-02 至 2021-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9931988
• 关键词: Address; Adolescent and Young Adult; Advocacy; Alcohol or Other Drugs use; American Society of Clinical Oncology; Area; Behavior; Body Image; Cancer Patient; Cancer Survivor; Cancer Survivorship; Caring; Clinical Practice Guideline; Communication; Contraceptive methods; Counseling; Coupled; Data; Data Collection; Disclosure; Discrimination; Distress; Education; Educational Curriculum; Family; Feedback; Friendships; Fright; Future; Gender Identity; Goals; Health; Health Communication; Health Professional; Health education; Heterosexuals; Infertility; Intake; Knowledge; Lesbian Gay Bisexual Transgender; Lesbian Gay Bisexual Transgender Queer; Lesbian Gay Bisexual Transgender Queer Questioning; Love; Malignant Neoplasms; Medical; Medical Care Team; Medical Oncologist; Names; Nurses; Nursing Schools; Oncologist; Oncology Nurse; Online Systems; Outcome; Participant; Patient Education; Patients; Physical Function; Physician Assistants; Physicians; Policies; Prevention; Professional Practice; Provider; Psychologist; Psychosocial Assessment and Care; Publishing; Quality of life; Reporting; Reproductive Health; Reproductive History; Resources; Role; Sampling; Services; Sex Orientation; Sexual and Gender Minorities; Sexuality; Social Functioning; Social Workers; Students; Surveys; System; Testing; Training; Training Programs; Update; Work; Workplace; base; cancer care; cancer diagnosis; cancer health disparity; cisgender; evidence base; experience; fertility preservation; health disparity; health training; improved; interest; learning community; learning strategy; medical schools; medical specialties; medically underserved population; minority health; oncofertility; oncology; oncology program; parent grant; program dissemination; programs; psychosocial; reproductive; satisfaction; service coordination; sexual identity; skills; survivorship; training opportunity

Project Abstract/Summary The American Society of Clinical Oncology (ASCO) published updated clinical practice guidelines extending the responsibility for discussion of infertility and referral for fertility preservation beyond the medical oncologist, to explicitly include other physician specialties and Allied Healthcare Professionals (AHPs) in the oncology care setting. However, it is critical to consider that reproductive health for AYA cancer patients extends beyond infertility and fertility preservation to include several other related interrelated components of physical and social functioning. AHPs may be particularly well suited to the role of discussing reproductive health with AYA given some aspects of their training (e.g., psychosocial counseling, coordination of services, health education) facilitate these discussions with patients. Importantly, AHPs need a general understanding of the potential impact of cancer diagnosis and/or treatment on AYA patients' reproductive health including physical functioning (reproductive capacity, fertility preservation options, contraception needs) and social functioning (body image, sexuality, friendships and romantic partnering). They must also have the skills to communicate about these issues and identify and facilitate referrals for additional services. Yet, few proven, evidenced based training approaches have demonstrated improvements in AHPs' knowledge, skills, and behaviors specific to reproductive health for AYA patients. This team's prior work in the Educating Nurses about Reproductive Issues in Cancer Health (ENRICH) program for oncology nurses is an effective curriculum that has short and intermediate term impacts on knowledge, perceived confidence, and behaviors. However, the focus of content and training to date has been primarily on infertility and fertility preservation. The proposed renewal application seeks to expand and extend the original ENRICH program. The currently proposed Enriching Communication skills for Health professionals in Oncofertility (ECHO) Program aims are to: (1) train 360 AHP (nurses, social workers, psychologists, and physician assistants) over a 5 year period (2) refine and implement the ECHO program to facilitate knowledge about and skills to address reproductive health needs of AYA oncology patients via a web based learning community; (3) evaluate the impact of the program at the participant (e.g., knowledge, practice behavior) and workplace level (e.g., policies, referral systems); and (4) develop a network of trained AHPs to share experiences, resources, and dissemination of the program and content.

项目摘要/总结 美国临床肿瘤学会 (ASCO) 发布了更新的临床实践指南，扩展了 有责任讨论不孕症并转诊至肿瘤内科医师之外的保留生育力的机构， 明确将其他医生专业和联合医疗保健专业人员 (AHP) 纳入肿瘤护理 环境。然而，重要的是要考虑到 AYA 癌症患者的生殖健康不仅限于 不孕症和生育力保存，包括身体和生育能力的其他几个相关的相互关联的组成部分 社会功能。 AHP 可能特别适合与 AYA 讨论生殖健康的作用 鉴于他们的培训的某些方面（例如，心理咨询、服务协调、健康教育） 促进与患者的这些讨论。重要的是，层次分析法需要对潜力有一个总体了解 癌症诊断和/或治疗对 AYA 患者生殖健康（包括身体健康）的影响 功能（生殖能力、生育力保存选择、避孕需求）和社会功能 （身体形象、性、友谊和浪漫伴侣）。他们还必须具备沟通技巧 了解这些问题并确定并促进转介以获得额外服务。然而，很少有证据表明 基于的培训方法已证明 AHP 的知识、技能和行为有所改善 专门针对 AYA 患者的生殖健康。该团队之前在护士教育方面的工作涉及 针对肿瘤科护士的癌症健康生殖问题 (ENRICH) 计划是一门有效的课程， 对知识、感知信心和行为有短期和中期影响。然而， 迄今为止，内容和培训的重点主要是不孕不育和生育力保存。拟议的 续签申请旨在扩大和延伸原有的 ENRICH 计划。目前提议的 丰富肿瘤生育领域卫生专业人员的沟通技巧 (ECHO) 计划的目标是：(1) 培训 360 AHP（护士、社会工作者、心理学家和医师助理）在 5 年期间 (2) 完善和 实施 ECHO 计划，以促进满足生殖健康需求的知识和技能 AYA 肿瘤患者通过基于网络的学习社区； (3) 评估项目的影响 参与者（例如知识、实践行为）和工作场所水平（例如政策、推荐系统）；和（4） 建立一个由经过培训的 AHP 组成的网络，以分享经验、资源和计划的传播， 内容。