Enriching Communication skills for Health professionals in Oncofertility and Trainers in Oncofertility Reproductive Communication and Health

丰富肿瘤生育保健专业人员和肿瘤生育生殖沟通与健康培训师的沟通技巧

• 批准号: 10334098
• 负责人: Gwendolyn P Quinn
• 金额: $ 26.81万
• 依托单位: NEW YORK UNIVERSITY SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-08-02 至 2027-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10334098
• 关键词: Address; Adolescent and Young Adult; Adult; Area; Behavior; Bioethics; Body Image; Cancer Patient; Cancer Survivor; Caring; Communication; Contraceptive methods; Counseling; Decision Making; Disease; E-learning; Education Projects; Educational Curriculum; Educational Status; Elderly; Ethical Issues; Evaluation; Evidence based program; Faculty; Fertility; Geography; Health; Health Professional; Health education; Individual; Infertility; Institution; Knowledge; Learning; Learning Skill; Malignant Neoplasms; Minor; Modification; Monitor; Nurses; Oncologist; Oncology; Online Systems; Outcome; Parents; Participant; Patients; Phase; Physician Assistants; Physicians; Policies; Population; Positioning Attribute; Process; Process Measure; Professional Organizations; Prognosis; Psychologist; Psychosocial Assessment and Care; Publications; Quality of life; Reach Effectiveness Adoption Implementation and Maintenance; Reading; Reporting; Reproductive Health; Reproductive Technology; Resources; Risk; Services; Sex Orientation; Sexual and Gender Minorities; Sexuality; Social Workers; Surveys; Survivors; Technology; Testing; Time; Trainers Training; Training; Training Programs; Workplace; adolescent health; assisted reproduction; base; career networking; cohort; ethnic diversity; experience; fertility preservation; follow-up; hands-on learning; health communication; interest; learning community; lectures; new technology; oncofertility; pilot test; practice setting; profession allied to medicine; programs; psychosocial; racial and ethnic; recruit; reproductive; sexual identity; skills; skills training; success; survivorship; symposium; virtual

Adolescent and young adults (AYA) with cancer and survivors have psychosocial needs that are distinct from older adults, with reproductive health being a chief concern. Reproductive health for AYA patients with cancer and survivors includes potential infertility and need for fertility preservation counseling as well as other interrelated components such as romantic partnering, body image, sexuality, sexual identity and orientation, contraception, and psychosexual adjustment that vary in intensity of concern based on whether the AYA is in treatment or in survivorship. While oncologist physicians primarily treat the disease, allied health professionals (AHPs) involved in the care of AYA including, but not limited to, nurses, social workers, psychologists, and physician assistants often provide psychosocial care, health education, and information related to reproductive health that can impact AYA patients' and survivors decision-making and quality of life. AHPs need communication skills on these issues and resources to identify and facilitate referrals for additional services. Further, we have identified new ethical issues that our trainees encounter such as the challenges of discussing fertility with patients with a poor prognosis, lack of concordance on fertility preservation between minors and parents or between adult partners, and the growing use of posthumous assisted reproduction. Our previous R25 programs ENRICH (Educating Nurses in Reproductive Health Issues in Cancer Health) and ECHO (Enriching Communication skills for Health professionals in Oncofertility) has proven successful in training and skill building for AHPS with 712 learners to date. ECHO is a proven, evidenced-based program demonstrating short and intermediate term impacts on knowledge, perceived confidence, and communication skills. In the proposed renewal application, we seek to expand and extend ECHO in key curricula areas and develop a new cohort of “train the trainers” from our previous ENRICH and ECHO trainees in a new program entitled TORCH (Trainers in Oncofertility Reproductive Communication and Health). ECHO will continue to provide reproductive health communication skills training with expanded curricula in two areas: Sexual and Gender Minorities and Bioethics. TORCH will train prior learners to educate others in the practice setting on the principles of ECHO. Our approaches capitalize on advanced web-based learning technologies we have already developed to facilitate increased interactive learning and skill building. The (ECHO-TORCH) program aims are to: Train AHPs over the 5 year period of the ECHO training Program; Refine and implement the ECHO program to facilitate knowledge about and skills to address reproductive health needs of AYA oncology patients via a web-based learning community; Evaluate the impact of the ECHO and TORCH program at the participant and workplace level (e.g., policies, referrals, numbers trained);. Develop a network of AHPs trainers who disseminate ECHO content

患有癌症和幸存者的青少年和年轻人（AYA）的心理社会需求与 老年人，生殖健康是一个主要问题。AYA癌症患者的生殖健康 和幸存者包括潜在的不孕症和需要生育保护咨询以及其他 相互关联的组成部分，如浪漫的伙伴关系，身体形象，性行为，性身份和取向， 避孕和性心理调整，根据AYA是否处于 治疗或生存。虽然肿瘤科医生主要治疗这种疾病， （AHPs）参与AYA的护理，包括但不限于护士，社会工作者，心理学家， 医生助理经常提供心理社会护理、健康教育和与生殖健康有关的信息。 影响AYA患者和幸存者决策和生活质量的健康问题。AHPs需要 在这些问题上的沟通技巧和资源，以确定和促进其他服务的转介。 此外，我们还确定了我们的学员遇到的新的道德问题，例如讨论 预后不良的患者的生育能力，未成年人之间生育能力保持缺乏一致性， 父母之间或成年伴侣之间，以及越来越多地使用死后辅助生殖。 我们以前的R25计划ENRICH（教育护士在癌症健康的生殖健康问题） 和ECHO（丰富肿瘤生育卫生专业人员的沟通技能）已被证明是成功的， 为AHPS提供培训和技能建设，迄今已有712名学员。ECHO是一个经过验证的循证计划 展示对知识、感知信心和沟通的短期和中期影响 skills.在拟议的续期申请中，我们寻求在关键课程领域扩大和扩展ECHO， 在一个新的项目中，从我们以前的ENRICH和ECHO学员中培养一批新的“培训培训师” TORCH（肿瘤生育、生殖交流和健康培训员）。欧共体人道处将继续 * 提供生殖健康交流技能培训，扩大两个领域的课程： 性别少数和生物伦理。TORCH将培训之前的学习者，以教育其他人在实践中设置的 ECHO的原则。我们的方法利用先进的基于网络的学习技术，我们已经 旨在促进互动式学习和技能培养。ECHO-TORCH计划的目标是 在ECHO培训计划的5年期内培训AHPs;完善并实施ECHO计划 通过以下方式促进AYA肿瘤患者生殖健康需求的知识和技能， 基于网络的学习社区;评估ECHO和TORCH计划对参与者的影响， 工作场所级别（例如，政策、转介、培训人数）;。建立一个高级保健方案培训员网络， ECHO内容