ITCA Capacity Building: Developing the Arizona Tribal Research Review

ITCA 能力建设：制定亚利桑那部落研究审查

• 批准号: 10223679
• 负责人: Travis Lane
• 金额: $ 28.19万
• 依托单位: INTER TRIBAL COUNCIL OF ARIZONA, INC.
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-23 至 2025-07-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10223679
• 关键词: Address; Agreement; Alaska Native; American Indians; Arizona; Awareness; Belmont Report; Biomedical Research; Code; Committee Members; Communication; Communities; Consultations; Data; Data Set; Educational workshop; Ensure; Ethics; Fostering; Genetic; Goals; Government; Health; Indigenous; Individual; Infrastructure; Institution; Institutional Review Boards; Leadership; Link; Morals; Native American Research Center for Health; Notification; Online Systems; Policies; Population; Privacy; Procedures; Process; Protocols documentation; Publications; Recording of previous events; Regulation; Research; Research Ethics; Research Personnel; Research Project Grants; Research Support; Resolution; Resources; Rights; Science; Stereotyping; System; Testing; Training; Tribal Council; Tribes; United States Indian Health Service; Universities; authority; community building; cultural competence; data sharing; digital; distrust; faculty research; health disparity; health record; human subject; improved; interest; intertribal; lightspeed; member; prevent; recruit; tool; tribal Nation; tribal college; tribal community; tribal lands; tribal member; unethical; welfare

NARCH XI Capacity Building Project Abstract The cultural differences of conducting research within the American Indian/Alaska Native communities is becoming a greater concern of ethical and moral approach. A large number of researchers from institutions is vastly increasing with greater interest. However, an ethical approach to research conducted on tribal land is important from implementing a project, collecting the data and data sharing. The American Indian people are culturally connected to with an Indigenous framework of one’s self as a whole especially during research. The historical cases of mistrust of research from non-community members has promoted negative publications and promote stereotypes of AI/AN. The Belmont Report created in 1974 prompted the Indian Health Service to establish Institutional Review Board or other forms of research committees. Several Tribes have created IRBs; smaller tribes do not have the resources nor opportunity. As each tribal government is organized differently, the Inter Tribal Council of Arizona, Inc. (ITCA), goal is to serve as the Institutional Review Board for Member Tribes ensuring the research purpose is appropriate for the protecting and benefit for the tribal members and tribal communities. ITCA has developed a strong relationship with Member Tribes in addition to creating partnerships with research institutions. The purpose of the capacity building project, “Developing the Arizona ITCA Tribal Research Review Board” is to address the concern in creating a research review board to ensure member tribal communities are assisted in providing protection and guidance with thought of benefits of all research presented to the community. Specific Aims. We will: 1. A consultation with ITCA Member Tribes and The University of Arizona partnership will develop a Tribal Research Coalition to review policies, and procedures, along with agreements, and protocols align with data sovereignty rights. 2. Establish a Tribal Institutional Review Board (IRB) consisting of members of Tribal leadership and voluntary committee members collaborating within research institutions providing guidance on research ethics to ensure tribal members and tribal community benefit from research projects in an ethical approach serving ITCA Member Tribes who do not have an institutionalized IRB process within the tribal government. 3. Collaborate with The University of Arizona to create training workshops for tribal and non-tribal members who acknowledge interest in conducting tribal research with any ITCA Member Tribe to increase culturally appropriate awareness and ethical research respecting tribal sovereignty.

NARCH XI 能力建设项目摘要 在美洲印第安人/阿拉斯加原住民社区内进行研究的文化差异是 成为人们更加关注伦理和道德的方法。大量来自机构的研究人员 随着兴趣的增加而大幅增加。然而，在部落土地上进行研究的道德方法是 实施项目、收集数据和数据共享非常重要。美洲印第安人是 在文化上与一个人的整体自我框架联系在一起，特别是在研究过程中。这 非社区成员对研究不信任的历史案例促进了负面出版物和 宣扬人工智能/AN 的刻板印象。 1974 年创建的贝尔蒙特报告促使印度卫生服务部门 建立机构审查委员会或其他形式的研究委员会。多个部落创建了 IRB； 小部落没有资源也没有机会。由于每个部落政府的组织方式不同， 亚利桑那州部落间委员会 (ITCA)，目标是担任成员的机构审查委员会 部落确保研究目的​​适合部落成员的保护和利益，以及 部落社区。 ITCA 除了创建 与研究机构的伙伴关系。能力建设项目的目的是“开发亚利桑那州 ITCA 部落研究审查委员会”旨在解决创建研究审查委员会的问题，以确保 考虑到所有人的利益，协助部落社区成员提供保护和指导 向社区展示的研究成果。 具体目标。我们将： 1. 与 ITCA 成员部落和亚利桑那大学合作伙伴协商，将制定部落 研究联盟审查政策、程序以及协议和协议，以符合 数据主权。 2. 建立一个部落机构审查委员会（IRB），由部落领导层和部落成员组成 自愿委员会成员在研究机构内合作，提供研究指导 道德确保部落成员和部落社区以道德方式从研究项目中受益 为部落政府内没有制度化 IRB 流程的 ITCA 成员部落提供服务。 3. 与亚利桑那大学合作，为部落和非部落成员举办培训研讨会 他们承认有兴趣与任何 ITCA 成员部落进行部落研究，以提高文化水平 尊重部落主权的适当意识和伦理研究。