Enhancing Sexual Orientation and Gender Identity Data Collection across the Duncan Cancer Center

项目摘要 2022年2月公布的一项民意调查显示，7.1%的美国成年人自我认同为LGBTQ，高于2019年的4.1%。 2016年类似的调查。此外，这一比例因年龄而异，婴儿潮一代为2.6%， Z世代美国癌症协会估计， 到2022年，美国将有超过60万人死于癌症。“信封背面” 因此，估计今年将有135，000名LGBTQ美国人被诊断患有癌症 超过4万人将死于癌症然而，这些估计并非基于经验数据 因为癌症登记处不收集关于性取向和性别认同的数据。此外，许多 癌症中心不收集这些数据用于临床或研究用途。虽然研究表明， 癌症危险因素如饮酒、吸烟、肥胖和致癌病毒感染更为普遍 在SGM个体中，我们目前没有数据来了解SGM个体中独特的风险因素， LGBTQ个体也没有什么因素有助于他们的癌症生存经验。的首要目标 本补充材料将采用一种由企业主参与的方法，将SOGI问卷整合到电子 丹·L的医疗记录邓肯综合癌症中心（DLDCCC）附属诊所，并评估其 可行性，可接受性和患者和供应商之间的利用。我们将努力实现以下具体目标： 目标1：a）了解DLDCCC中SOGI数据收集常规的背景障碍和促进因素 B）采用参与式方法确定和调整实施战略（即，SOGI 医疗保健环境中的培训和包含SGM的消息传递和资源），以支持常规收集 电子病历中的SOGI数据。目标2：a）确定SOGI数据评估率， 在DLDCCC的电子病历中纳入SOGI问卷后的反应和质量 B）评估实施SOGI培训和SGM如何影响这些指标- 在诊所提供包容性信息和资源。目标3：a）评估常规的可行性和可接受性 在DLDCCC患者、肿瘤提供者和工作人员中收集SOGI数据; 2）评估可行性， DLDCCC肿瘤学提供者和工作人员对SOGI培训的可接受性。

PROJECT SUMMARY A poll published in February 2022 reported that 7.1% of US adults self-identify as LGBTQ, up from 4.1% in a similar poll in 2016. Additionally, the percentage varied by age with 2.6% among Baby Boomers and 20.8% of Generation Z. The American Cancer Society estimates that there will be more than 1.9 million new cancer diagnoses in the US in 2022, and more than 600,000 people will die from their cancer. “Back of the envelope” calculations would, therefore, estimate that 135,000 LGBTQ Americans will be diagnosed with cancer this year and more than 40,000 will die from their cancer. However, these estimates are not based on empirical data because cancer registries do not collect data on sexual orientation and gender identity (SOGI). Further, many cancer centers do not collect these data for clinical or research uses. While studies have shown that certain cancer risk factors such as alcohol use, tobacco use, obesity, and oncogenic viral infection are more prevalent amongst SGM individuals, we do not currently have the data to understand the risk factors that are unique among LGBTQ individuals nor what factors contribute to their cancer survivorship experience. The overarching goal of this supplement is to use a stakeholder-engaged approach to integrate a SOGI questionnaire in the electronic medical record at Dan L. Duncan Comprehensive Cancer Center (DLDCCC)-affiliated clinics and evaluate its feasibility, acceptability, and utilization among patients and providers. We will pursue the following specific aims: Aim 1: a) To understand contextual barriers and facilitators to routine of SOGI data collection in DLDCCC hospitals; and b) to use participatory approaches to identify and adapt implementation strategies (i.e., SOGI training and SGM-inclusive messaging and resources in the healthcare setting) to support the routine collection of SOGI data in the electronic medical record. Aim 2: a) To determine the rate of SOGI data assessment, response, and quality after incorporating a SOGI questionnaire in the electronic medical record in DLDCCC hospitals; and b) to evaluate how these indicators are affected by the implementation of SOGI training and SGM- inclusive messaging and resources in the clinics. Aim 3: a) To assess the feasibility and acceptability of routine SOGI data collection among DLDCCC patients, oncology providers, and staff; 2) to assess the feasibility and acceptability of SOGI training among DLDCCC oncology providers and staff.