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The Patient Journey for Children with Medical Complexity during Pandemic Era andits implications.

大流行时期医疗复杂性儿童的患者旅程及其影响。

基本信息

批准号：
10515047
负责人：
Onur Asan
金额：
$ 45.68万
依托单位：
STEVENS INSTITUTE OF TECHNOLOGY
依托单位国家：
美国
项目类别：
财政年份：
2022
资助国家：
美国
起止时间：
2022-09-14 至 2024-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10515047
关键词：
Academy Activities of Daily Living Address Ambulatory Care Facilities American Apnea Behavioral COVID-19 COVID-19 pandemic COVID-19 pandemic effects Caregivers Caring Categories Child Child Care Childhood Chronic Clinic Cognitive Complex Consumption Data Data Analyses Data Collection Development Effectiveness Emergency department visit Emotional Environment Ethnic Origin Exposure to Family Caregiver Future Goals Health Health Care Research Health Services Needs Healthcare Home Hospitalists Hospitalization Human Inpatients Institutes Intervention Intervention Studies Laws Mechanical ventilation Medical Medical Errors Medical center Methodology Monitor Multicenter Studies New Jersey Nurses Only Child Outcome Outpatients Output Parents Patient Care Patients Pediatric Hospitals Pediatrics Persons Physiological Population Positioning Attribute Provider Recommendation Records Research Resources Risk Schools Social Distance Specialist Stress Students Surveys Techniques Technology Visit Vulnerable Populations care delivery clinical care coronavirus disease demographics experience graduate student health care service high risk high risk population improved innovation inpatient service lens medical delivery system medical specialties medical vulnerability member novel novel coronavirus pandemic disease patient home care patient population pediatric patients resilience social telehealth undergraduate student virtual healthcare virtual visit

项目摘要

Project Summary/Abstract CMC are a small proportion of children and youth with special health care needs that account for less than 1-5% of all children but consume over one third of health care resources. They are at increased risk of multiple and prolonged hospitalizations, inefficient use of healthcare resources, frequent medical errors, poor health outcomes, significant unmet needs for health services, and stress on family caregivers. This complexity and related problems have been and continue to be even further exacerbated by the COVID pandemic. The rise of the novel coronavirus (COVID-19) changed dynamics and contributed to a paradigm shift in the overall health care practice which will probably have long lasting impact and may be the “new normal”. In this exploratory study, our overarching goal is to understand how COVID-19 Pandemic impacted CMC care patient journey. We will capture the experience of multi stakeholders associated with CMC care including hospitalists, pediatrics outpatient providers, home nurses, CMC caregivers and patients. The findings will help the ongoing efforts to redesign and improve CMC care especially in the light of new challenges introduced by the COVID-19 Pandemic. The aims of the project are to: 1) Perform a multi-stakeholder 360-degree analysis of the COVID experience for CMC patients across different settings in their patient journey using qualitative and human factors techniques. 2) Quantitatively evaluate usefulness and experience of Telehealth use in CMC care, and 3) Evaluate the impact of pandemic on health outcome/utilization CMC using retrospective chart review. The research team is well positioned to address the proposed aims for the CMC population and thus guide identification of potential interventions to improve CMC care. This innovative, in-depth, and rich analysis of the CMC care patient journey during the pandemic using novel human factors methodologies will provide highly valuable information, not only for CMC, but also for other similarly complex care settings and patient populations.

项目总结/摘要 CMC是一小部分有特殊医疗保健需求的儿童和青少年，只有不到1-5%的儿童获得了保健服务，但却消耗了三分之一以上的保健资源。他们是多次住院和长期住院的风险增加，医疗保健利用效率低下资源、频繁的医疗错误、不良的健康结果、大量未满足的健康需求服务，并强调家庭照顾者。这种复杂性和相关的问题已经和 COVID大流行进一步加剧。小说的兴起冠状病毒（COVID-19）改变了动态，并促成了整体模式的转变，这可能会产生长期的影响，并可能成为“新常态”。在这项探索性研究中，我们的首要目标是了解COVID-19大流行如何影响CMC护理患者旅程。我们将收集多方利益相关者的经验与CMC护理相关，包括住院医生，儿科门诊提供者，家庭护士， CMC护理人员和患者。调查结果将有助于正在进行的重新设计和改进工作 CMC特别关注COVID-19疫情带来的新挑战。的该项目的目标是：1）对COVID进行多利益相关者360度分析 CMC患者在其患者旅程中使用定性和人为因素技术。2)量化评估的有用性和经验远程医疗在CMC护理中的应用，以及3）评估流行病对健康的影响使用回顾性图表审查的结局/利用CMC。研究团队处于有利地位解决CMC人口的拟议目标，从而指导潜在的识别改善CMC护理的干预措施。这种创新的，深入的，丰富的CMC护理分析在大流行期间使用新颖的人为因素方法的患者旅程将提供非常有价值的信息，不仅对CMC，而且对其他类似复杂的护理环境也是如此患者人群。