South Texas Alzheimer’s Disease Center Outreach, Recruitment and Engagement Core

南德克萨斯阿尔茨海默病中心外展、招募和参与核心

• 批准号: 10662328
• 负责人: Carole Leone White
• 金额: $ 28.67万
• 依托单位: UNIVERSITY OF TEXAS HLTH SCIENCE CENTER
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-01 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10662328
• 关键词: Address; Adoption; Adult; Advocate; Affect; Aging; Alzheimer' s Disease; Alzheimer' s Disease Core Center; Alzheimer' s disease diagnosis; Alzheimer' s disease related dementia; Behavioral Research; Biomedical Research; Caregiver support; Caregivers; Caring; Clinical; Clinical Trials; Communication; Communities; Consolidated Framework for Implementation Research; Country; Department chair; Disease; Doctor of Philosophy; Early Diagnosis; Education; Elderly; Environment; Family; Family Practice; Feedback; Focus Groups; Frail Elderly; Geographic Locations; Geriatrics; Goals; Health; Health Personnel; Health Sciences; Hispanic; Hispanic Populations; Infrastructure; Institution; Interview; Knowledge; Leadership; Locales; Mexico; Minority; Neurodegenerative Disorders; Palliative Care; Participant; Patients; Physicians; Policy Maker; Population; Population Heterogeneity; Positioning Attribute; Process; Race; Reduce health disparities; Research; Research Personnel; Resources; Scientific Advances and Accomplishments; Scientist; Services; South Texas; Surveys; System; Texas; Training; Translating; Underrepresented Populations; Underserved Population; Universities; Work; community based research; community engagement; community involvement; community organizations; dissemination research; distrust; ethnic diversity; experience; health disparity; human old age (65+); implementation science; improved; interest; member; outreach; participant retention; population health; programs; recruit; research study; rural Hispanic; social; social stigma

Summary Outreach, Recruitment and engagement (OREC) In 2050, Hispanic adults over age 65 are expected to account for 20% of the population, up from 7% in 20101. However, they remain underrepresented in research2,3. The situation is even more critical since Hispanics are disproportionately affected by Alzheimer´s disease (AD). As the community facing entity of the South Texas Alzheimer´s Disease Center (STAC), the Outreach, Recruitment and Engagement Core (OREC) will support inclusive, engaged and sustained participation of diverse older adult populations and their caregivers in South Texas as research participants in social, behavioral, and biomedical research including clinical trials. Furthermore, the OREC will strengthen current infrastructure to disseminate and translate research advances that can impact the engaged communities –local and lay- and has an active mechanism to obtain community feedback on its services and research, to establish true bi-directional communication. The specific aims of the OREC are (1) systematically assess community priorities, needs, barriers to, and interests in AD and related disorders (ADRD) research in South Texas through conduct of open-ended focus groups, in-depth interviews, and surveys (2) expand capacity for community-academic partnerships that will support the recruitment and retention of older urban and rural Hispanics and their families in South Texas and in particular along the US/Mexico border through a) receiving advice and input from a Community Advisory Board (CAB) b) providing technical assistance and training to key STAC members in other cores and c) providing technical assistance and training to key STAC members in other core; (3) work collaboratively with the other STAC cores to recruit, engage and retain participants; and (4) disseminate research findings to the scientific community, health care providers and the communities we serve in South Texas, particularly to elderly and their caregivers. We will achieve these aims through an integrated program to promote a deep understanding of the determinants of participation and engagement of diverse and underserved populations of South Texas and creating and maximizing channels for engagement and community training to facilitate the adoption of best practices promoting participation in research studies. We will create a state-of-the art infrastructure for researchers, health care providers, advocates and policy makers interested in decreasing health disparities affecting older Hispanics affected by ADRD. To accomplish these goals, we have built a team of scientists with extensive experience in community change, community–based research, education, recruitment and retention of Hispanic populations, from two institutions within the University of Texas (UT) system, UT Health San Antonio and the UT Rio Grande Valley. By integrating and leveraging resources, we will create a welcoming study environment and through our partnerships and direct access to health agencies, health care providers, clinicians and community-based organizations of South Texas we are uniquely positioned to maximize recruitment, assessment and retention of Hispanics, a group that is underrepresented in ADRD studies.

Outreach，Recruitment and Engagement（OREC） 到2050年，65岁以上的西班牙裔成年人预计将占总人口的20%， 20101年7%。然而，她们在研究中的代表性仍然不足2，3。情况更为 这一点至关重要，因为西班牙裔人不成比例地受到阿尔茨海默病（AD）的影响。为 南德克萨斯阿尔茨海默病中心（STAC）的社区实体，外展， 招募和参与核心（OREC）将支持包容性，参与性和持续性 德克萨斯州南部不同老年人群体及其护理人员的参与作为研究 参与社会、行为和生物医学研究，包括临床试验。此外，委员会认为， 该中心将加强现有基础设施，以传播和转化研究进展 这可以影响参与社区-当地和外行-并有一个积极的机制， 获取社区对其服务和研究的反馈，以建立真正的双向 通信OREC的具体目标是（1）系统地评估社区 AD和相关疾病（ADRD）研究的优先事项、需求、障碍和兴趣 南德克萨斯州通过开放式焦点小组，深入访谈和调查进行（2） 扩大社区-学术伙伴关系的能力，以支持招聘， 保留在德克萨斯州南部的老年城市和农村西班牙裔及其家庭，特别是 沿着美国/墨西哥边境，通过a）接受社区咨询机构的建议和意见 理事会（CAB）B）在其他领域向科技咨询委员会的主要成员提供技术援助和培训 （c）向其他核心领域的STAC主要成员提供技术援助和培训;（3） 与其他STAC核心合作，招募、吸引和留住参与者; (4)向科学界、卫生保健提供者和 我们在南德克萨斯州服务的社区，特别是老年人及其照顾者。我们将 通过一个综合方案来实现这些目标，以促进对 南方国家不同和得不到充分服务的人口参与的决定因素 德克萨斯州和创建和最大化参与和社区培训的渠道， 促进采用促进参与研究的最佳做法。我们将 为研究人员、医疗保健提供者、倡导者和 政策制定者有兴趣减少影响老年西班牙裔人的健康差距， ADRD。为了实现这些目标，我们建立了一支经验丰富的科学家团队 在社区变革、基于社区的研究、教育、征聘和保留 西班牙裔人口，来自德克萨斯大学（UT）系统内的两个机构 健康圣安东尼奥和UT格兰德河谷。通过整合和利用资源，我们 将创造一个温馨的学习环境，并通过我们的伙伴关系和直接访问， 卫生机构、卫生保健提供者、临床医生和社区组织 德克萨斯州，我们处于独特的地位，以最大限度地提高招聘，评估和保留 西班牙裔，一个在ADRD研究中代表性不足的群体。