Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

• 批准号: 10668256
• 负责人: Miguel Arce
• 金额: $ 14.91万
• 依托单位: COLUMBIA UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-06-15 至 2025-04-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10668256
• 关键词: Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Area; Behavioral Genetics; Benefits and Risks; Biological; Biological Markers; CLIA certified; Cerebrospinal Fluid; Cholesterol Homeostasis; Clinical; Collaborations; Collection; Communities; Community Health Education; Community Outreach; Data; Databases; Dementia; Development; Education and Outreach; Educational Materials; Elements; Endosomes; Ethics; Evaluation; Funding; Future; Goals; Health Personnel; Height; Immune response; Investigation; Logistics; Magnetic Resonance Imaging; Methods; Neurologic; New York; Participant; Pathway interactions; Patient Recruitments; Persons; Play; Population; Population Heterogeneity; Positron-Emission Tomography; Procedures; Registries; Reporting; Research; Resources; Risk; Role; Source; Surveys; United States National Institutes of Health; Universities; Washington; Work; brain health; community organizations; data integration; data management; effectiveness evaluation; ethnic diversity; flexibility; improved; innovation; interest; legal implication; magnetic resonance imaging biomarker; meetings; outreach; programs; racial diversity; recruit; searchable database; social implication; success; trafficking; volunteer

OUTREACH RECRUITMENT & ENGAGEMENT CORE (ORE) PROJECT SUMMARY/ABSTRACT The ORE plays an essential role in achieving the proposed goals of the Columbia ADRC by meeting the outreach, engagement, recruitment and retention needs of the ADRC, focused especially on our local Northern Manhattan community. In the previous cycles of the Columbia ADRC, the ORE Core has successfully met recruitment, outreach, and engagement goals, including the recruitment of ADRC participants from traditionally underserved and understudied populations that reflects the diverse population of Northern Manhattan. In the current application, the Columbia ADRC will focus on investigating Alzheimer’s disease (AD)-associated biological pathways. Accordingly, we will prioritize the collection of biomarker data in the ADRC including cerebrospinal fluid (CSF) and MRIs, posing new challenges for the ORE Core. To help meet these challenges, and to continue to meet the outreach, recruitment, and engagement needs of our local Northern Manhattan, larger New York, and national communities, we propose five initiatives: 1. Leveraging existing Columbia recruitment resources. Columbia has several NIH-funded aging and dementia research and clinical programs that we will collaborate with that have developed extensive recruitment programs; 2. Increasing community outreach, including a new relationship with the largest Heathcare Workers Union in New York, and the development of a new Community Advisory Board to assist us with planning and executing community outreach; 3. Improving metrics and data management. In conjunction with the Data Management Core, we propose to utilize a new registry of potential participants, including information that will allow us to determine the relative recruitment success of different outreach activities; 4. Exploration of the ethical and logistic aspects of return of biomarker results to research participants in conjunction with the Biomarker and Clinical Cores and the Columbia Center for Research on Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavioral Genetics; and 5. Increasing community education by expanding our English and Spanish educational materials, especially materials on the risks, benefits, and information gained, by CSF, MRI, and PET biomarkers. We are confident that the Columbia ADRC ORE Core can continue to meet the evolving needs of the Columbia ADRC, including the continued involvement, engagement, and recruitment of participants from traditionally underserved and understudied populations, and the outreach and engagement needs of Northern Manhattan, the larger New York area, and the larger scientific community investigating Alzheimer’s disease and related dementias.

外展招聘和参与核心 (ORE) 项目摘要/摘要 ORE 通过满足以下要求，在实现哥伦比亚 ADRC 的拟议目标方面发挥着重要作用： ADRC 的外展、参与、招聘和保留需求，特别关注我们当地的北部地区 曼哈顿社区。在哥伦比亚 ADRC 的前几轮中，ORE 核心已成功满足 招募、外展和参与目标，包括从传统领域招募 ADRC 参与者 服务不足和研究不足的人群反映了曼哈顿北部的多样化人口。在 根据目前的申请，哥伦比亚 ADRC 将重点调查与阿尔茨海默病 (AD) 相关的疾病 生物途径。因此，我们将优先收集 ADRC 中的生物标志物数据，包括 脑脊液 (CSF) 和 MRI，给 ORE Core 带来了新的挑战。为了帮助应对这些挑战， 并继续满足当地曼哈顿北部地区的外展、招聘和参与需求， 针对更大的纽约和全国社区，我们提出五项举措： 1. 利用现有的哥伦比亚 招聘资源。哥伦比亚拥有多项由 NIH 资助的衰老和痴呆症研究和临床项目 我们将与已制定广泛招聘计划的机构合作； 2. 增加社区 外展活动，包括与纽约最大的医疗保健工人工会建立新的关系，以及 建立一个新的社区咨询委员会来协助我们规划和执行社区 外展活动； 3. 改进指标和数据管理。与数据管理核心相结合，我们 建议利用新的潜在参与者登记册，包括使我们能够确定的信息 不同外展活动的相对招聘成功率； 4. 伦理和后勤方面的探索 将生物标志物结果与生物标志物和临床核心一起返回给研究参与者，以及 哥伦比亚精神病学、神经病学和精神病学的伦理、法律和社会影响研究中心 行为遗传学； 5. 通过扩展英语和西班牙语来加强社区教育 教育材料，特别是有关通过 CSF、MRI 和脑脊液检查获得的风险、益处和信息的材料 PET 生物标志物。我们相信，哥伦比亚 ADRC 矿石核心能够继续满足不断发展的需求 哥伦比亚 ADRC 的需求，包括持续参与、参与和招募 来自传统上服务不足和研究不足的人群的参与者，以及外展和参与 曼哈顿北部、更大的纽约地区以及更大的科学界调查的需求 阿尔茨海默病和相关痴呆症。