Pacific Northwest Undiagnosed Diseases Network Clinical Site

摘要： 未诊断疾病网络（UDN）与那些经历了长期 诊断奥德赛，迄今为止还没有解释他们的医疗条件。作为一个临床研究中心， 在网络中，我们接受并评估参与者，同时制定结束诊断的策略 奥德赛的。所要求的这份补充申请是为活动申请资金， 计划好了我们要求在2023年6月30日之前有更多的时间来完成这些目标。这些 新的目标是：目标1：承担增加的费用，接受来自我们原来的太平洋以外的参与者 西北地区从7/1/22到6/30/22。目标2：招募和评估新参与者3/1/23- 2022年6月30日，原计划和资助的招生于2023年2月结束后，重点关注 招募保险不足和医疗服务不足的个人。总目标 是让更多的参与者可以访问UDN。

Abstract: The Undiagnosed Disease Network (UDN) works with participants who have undergone a long diagnostic odyssey that has thus far not explained their medical condition. As a clinical site in the network, we accept and evaluate participants while developing strategies to end diagnostic odyssey’s. This requested supplement is an application for funds for activities not originally planned. We are requesting additional time, through 6/30/23, to complete these aims. These new aims are: Aim 1: Bear increased costs to accept participants from out of our original Pacific Northwest area from 7/1/22 to 6/30/22. Aim 2: Enroll and evaluate new participants 3/1/23- 6/30/22 after the original planned and funded enrollment ends in February 2023, focusing on recruitment of under-insured and otherwise medically underserved individuals. The overall goal is to make the UDN accessible to more participants.