Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD) Data Coordination Resource
胎儿酒精谱系疾病合作倡议 (CIFASD) 数据协调资源
基本信息
- 批准号:10680612
- 负责人:
- 金额:$ 19.88万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2022
- 资助国家:美国
- 起止时间:2022-08-10 至 2027-04-30
- 项目状态:未结题
- 来源:
- 关键词:Alcohol consumptionArchivesChildClinicalClinical InvestigatorClinical ResearchCollaborationsCommunitiesConsentDataData CollectionDatabasesDepositionEnsureFetal Alcohol ExposureFetal Alcohol Spectrum DisorderFetal alcohol effectsFutureGoalsHuman Subject ResearchIncidenceInformed ConsentInterdisciplinary StudyInterventionLongevityNational Institute on Alcohol Abuse and AlcoholismParticipantPlant LeavesPoliciesPregnancyPregnant WomenReportingResearchResearch PersonnelResourcesRoleScientistTimeTranslational ResearchUnited StatesUnited States National Institutes of HealthValidationarchived datadashboarddata archivedata dictionarydata exchangedata sharingeffective interventioneffective therapyfirst gradeimprovedinstrumentonline registryprogramsrecruitsuccessuser-friendly
项目摘要
ABSTRACT
Almost 10% of pregnancies world-wide were reported to have prenatal alcohol exposure (PAE) (Popova,
Lange, Probst, Gmel, & Rehm, 2017). In the United States a conservative estimate of Fetal Alcohol Spectrum
Disorders (FASD) in first-grade children was 1-5% (May et al., 2018). These numbers are expected to increase,
given the slight but steady rise in alcohol use among pregnant women (Denny, Acero, Terplan, & Kim, 2020).
NIAAA established the Collaborative Initiative on the Fetal Alcohol Spectrum Disorders (CIFASD) to inform and
develop effective interventions and treatment approaches for FASD through a highly integrated, multidisciplinary
research program involving basic scientists and clinical investigators. Central to the success of CIFASD is strong
central coordination provided through the Administrative Resource and a Data Coordination Resource (DCR).
As part of CIFASD5, the DCR will collaborate with all projects and resources within the consortium to provide
support and management with respect to data collection, storage and sharing. Based on this central role, the
DCR will coordinate the efforts of the CIFASD5 investigators conducting human subjects research to meet the
requirement of depositing data into the NIAAA Data Archive (NDA) and will serve as the primary contact with
NDA in the biannual transfer of data to the NDA. The DCR will be responsible for ensuring data sharing in
CIFASD5 conforms with NIH Policy. In addition, the DCR will support the efforts of the Administrative Resource
in tracking progress of CIFASD5. To meet these goals, the DCR proposes the following specific aims:
1. Create a Data Coordination Resource (DCR) database for CIFASD5.
2. Serve as the CIFASD5 point of contact for the NIAAA Data Archive.
3. Expand the functionality of the DCR database.
4. Support the distribution of archived CIFASD data.
5. Maintain an online registry of consented CIFASD research participants available for recruitment
into other projects.
摘要
据报道,全世界近10%的孕妇有产前酒精暴露(PAE)(波波娃,
Lange,Probst,Gmel,&雷姆,2017)。在美国,胎儿酒精谱的保守估计
一年级儿童的FASD为1-5%(May等人,2018年)。预计这些数字还会增加,
考虑到孕妇饮酒量的轻微但稳定的上升(Denny,Acero,Terplan和Kim,2020)。
NIAAA建立了胎儿酒精谱系障碍合作倡议,
通过高度综合的多学科研究,为FASD制定有效的干预措施和治疗方法。
包括基础科学家和临床研究人员的研究计划。CIFASD成功的核心是强大
通过行政资源和数据协调资源(DCR)提供中央协调。
作为CIFASD 5的一部分,DCR将与财团内的所有项目和资源合作,
在数据收集、存储和共享方面提供支持和管理。基于这一核心作用,
DCR将协调开展人类受试者研究的CIFASD 5研究者的工作,以满足
将数据存入NIAAA数据档案(NDA)的要求,并将作为主要联系人,
NDA在每两年向NDA传输数据的过程中。DCR将负责确保数据共享,
CIFASD 5符合NIH政策。此外,发展和改革部将支持行政资源部的工作,
跟踪CIFASD 5的进展。为了实现这些目标,发展和改革委员会提出了以下具体目标:
1.为CIFASD 5创建数据协调资源(DCR)数据库。
2.作为NIAAA数据档案的CIFASD 5联系点。
3.扩展DCR数据库的功能。
4.支持分发存档的CIFASD数据。
5.维护可用于招募的知情同意CIFASD研究参与者的在线登记
到其他项目。
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
数据更新时间:{{ journalArticles.updateTime }}
{{
item.title }}
{{ item.translation_title }}
- DOI:
{{ item.doi }} - 发表时间:
{{ item.publish_year }} - 期刊:
- 影响因子:{{ item.factor }}
- 作者:
{{ item.authors }} - 通讯作者:
{{ item.author }}
数据更新时间:{{ journalArticles.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ monograph.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ sciAawards.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ conferencePapers.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ patent.updateTime }}
Leah Wetherill其他文献
Leah Wetherill的其他文献
{{
item.title }}
{{ item.translation_title }}
- DOI:
{{ item.doi }} - 发表时间:
{{ item.publish_year }} - 期刊:
- 影响因子:{{ item.factor }}
- 作者:
{{ item.authors }} - 通讯作者:
{{ item.author }}
{{ truncateString('Leah Wetherill', 18)}}的其他基金
Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD) Data Coordination Resource
胎儿酒精谱系疾病合作倡议 (CIFASD) 数据协调资源
- 批准号:
10468545 - 财政年份:2022
- 资助金额:
$ 19.88万 - 项目类别:
相似海外基金
Sediment Drilling Facility for environmental and genetic archives
环境和遗传档案沉积物钻探设施
- 批准号:
LE240100064 - 财政年份:2024
- 资助金额:
$ 19.88万 - 项目类别:
Linkage Infrastructure, Equipment and Facilities
Aerial Archives of Race and American-Occupied Japan
种族和美国占领的日本的航空档案
- 批准号:
24K03721 - 财政年份:2024
- 资助金额:
$ 19.88万 - 项目类别:
Grant-in-Aid for Scientific Research (C)
CAREER: Understanding biosphere-geosphere coevolution through carbonate-associated phosphate, community archives, and open-access education in rural schools
职业:通过碳酸盐相关磷酸盐、社区档案和农村学校的开放教育了解生物圈-地圈协同进化
- 批准号:
2338055 - 财政年份:2024
- 资助金额:
$ 19.88万 - 项目类别:
Continuing Grant
Designing a Bridging Model Using Learning Content Information LOD to Link School Education and Digital Archives
使用学习内容信息 LOD 设计桥接模型来链接学校教育和数字档案
- 批准号:
23H03695 - 财政年份:2023
- 资助金额:
$ 19.88万 - 项目类别:
Grant-in-Aid for Scientific Research (B)
Doris Lessing's Archives: Communism, Decolonisation and Literary Practice
多丽丝·莱辛档案:共产主义、非殖民化和文学实践
- 批准号:
2888789 - 财政年份:2023
- 资助金额:
$ 19.88万 - 项目类别:
Studentship
Integrated High-Definition Visualization of Digital Archives for Borobudur Temple
婆罗浮屠寺数字档案集成高清可视化
- 批准号:
22KJ3026 - 财政年份:2023
- 资助金额:
$ 19.88万 - 项目类别:
Grant-in-Aid for JSPS Fellows
Research on multilingual data integration for digital archives of Japanese culture
日本文化数字档案多语言数据集成研究
- 批准号:
23K11780 - 财政年份:2023
- 资助金额:
$ 19.88万 - 项目类别:
Grant-in-Aid for Scientific Research (C)
Building a sustainable future for anthropology's archives: Researching primary source data lifecycles, infrastructures, and reuse
为人类学档案构建可持续的未来:研究主要源数据生命周期、基础设施和重用
- 批准号:
2314762 - 财政年份:2023
- 资助金额:
$ 19.88万 - 项目类别:
Standard Grant
A Preliminary Study for Constructing International Network of Image Archives on Afghan Cultural Heritages
构建阿富汗文化遗产国际图像档案网络的初步研究
- 批准号:
23K00915 - 财政年份:2023
- 资助金额:
$ 19.88万 - 项目类别:
Grant-in-Aid for Scientific Research (C)
Reading Writing Lives: Publishing & Preserving Australian Literary Archives
阅读写作生活:出版
- 批准号:
DP230101797 - 财政年份:2023
- 资助金额:
$ 19.88万 - 项目类别:
Discovery Projects