Olera - Online Platform to Increase Access to Personalized Educational and Professional Assistance for AD/ADRD Caregivers

Olera - 为 AD/ADRD 护理人员提供更多个性化教育和专业援助的在线平台

• 批准号: 10681389
• 负责人: Tokunbo Falohun
• 金额: $ 97.59万
• 依托单位: OLERA INC.
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-05 至 2025-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10681389
• 关键词: Access to Information; Address; Adherence; Adoption; African American; African American population; Algorithms; Alzheimer' s Disease; Alzheimer' s disease caregiver; Alzheimer' s disease related dementia; Anxiety; Area; Caregiver support; Caregivers; Caring; Cellular Phone; Characteristics; Chronic stress; Communities; Confusion; Custom; Decision Trees; Dementia; Dementia caregivers; Development; Education; Educational Materials; Elderly; Ethnic Population; Evaluation; Face; Family Caregiver; Family member; Feedback; Financial Hardship; Focus Groups; Friends; Health; Hispanic; Improve Access; Income; Individual; Industrialization; Information Resources; Knowledge; Latinx; Latinx population; Learning; Legal; Libraries; Link; Logic; Measures; Mental Depression; Methodology; Minority; Minority Groups; Modeling; Not Hispanic or Latino; Occupational activity of managing finances; Persons; Phase; Population; Process; Programming Languages; Pythons; Race; Recommendation; Research; Research Design; Residential Facilities; Resources; Role; Schedule; Services; Small Business Innovation Research Grant; Social isolation; Technology; Texas; Thinking; Training; Training and Education; Vision; caregiver education; caregiving; commercialization; dementia care; dementia caregiving; design; digital platform; education resources; experience; high risk; improved; in-home care; innovation; mobile application; mobile computing; novel; participant enrollment; personalized care; physical conditioning; preference; prospective; psychologic; recruit; sociodemographics; socioeconomics; timeline; usability; web platform; web site

ABSTRACT There are currently about 5.8 million older adults living with Alzheimer’s dementia, and the numbers are only expected to grow in the coming decades. The majority of care for persons living with dementia (PLWD) is provided by family members who lack formal training in caregiving and thus need education, information, and assistance. While an array of technology solutions for caregiving has been suggested to meet these needs, the adoption rate has been low, potentially due to poor usability (e.g., difficult to use) and lack of contextual relevancy. The long-term objective of this proposed research is to develop a technology-based solution that integrates web and mobile platforms to link dementia caregivers with personalized information and resources that are easily accessible by populations across the socioeconomic spectrum. The proposed study will focus on information and educational materials on financial management and legal planning. Such information will be helpful for caregivers experiencing difficulties due to their immediate caregiving responsibilities, as well as those transitioning in their roles and responsibilities as the PLWD’s health condition progresses. This collaborative project, involving industrial, academic, and community partners, is oriented around two specific aims: (Phase 1 Specific Aim 1) Development of the digital platform based on a novel Dementia Care Personalization Algorithm and initial feasibility assessment. Framed around an interactive Design Thinking product design methodology, phase 1 consists of the iterative process: Build, Measure, and Learn. A pilot group of 25 dementia caregivers will be recruited to serve as a user feedback panel. Our milestone for moving to Phase 2 will be assurance of the feasibility of the digital platform assessed using metrics from the adapted Mobile Application Rating Scale (MARS) and Technology Adoption Model (TAM). (Phase 2 Specific Aim 2) Evaluation of the acceptance of the developed digital platform across racial/ethnic populations. Phase 2 is a prospective usability study to evaluate the acceptance of the proposed digital platform across three different racial/ethnic populations of dementia caregivers in Texas (N = 300; n = 100 African Americans, n = 100 Hispanic/Latinx, and n = 100 non-Hispanic Whites). The prospective feature of the study design will enable the enrolled participants to explore and use the developed digital platform for about 4 weeks to provide multiple assessments of the perceived usefulness, ease of use, and value. At the completion of the two specific aims, we expect to have developed a widely accessible digital platform tailored to assist dementia caregivers in navigating through financial and legal challenges by linking caregivers to personalized and contextually relevant information and resources in the Texas area. If successful, the proposed commercialization plan anticipates further deployment of the developed digital platform by working with professional caregiving organizations to scale and sustain the platform to meet the needs of the growing population of dementia caregivers.

抽象的 目前大约有580万老年人患有阿尔茨海默氏症的痴呆症，数字只是 预计将在未来几十年中增长。对痴呆症患者（PLWD）的大多数护理是 由缺乏照料中的正式培训的家庭成员提供的，因此需要教育，信息和 协助。虽然已经建议一系列用于护理的技术解决方案以满足这些需求，但 采用率很低，可能是由于可用性差（例如难以使用）和缺乏上下文 关联。这项拟议研究的长期目标是开发一种基于技术的解决方案 集成的网络和移动平台将痴呆症护理人员与个性化信息和资源联系起来 整个社会经济范围内的人群很容易获得。拟议的研究将重点 关于财务管理和法律计划的信息和教育材料。这样的信息将是 对于护理人员由于即时护理责任而遇到困难的护理人员以及 那些随着PLWD的健康状况的发展而过渡的那些人。这 涉及工业，学术和社区合作伙伴的协作项目围绕两个具体 目的：（第1阶段特定目标1）基于新型痴呆症护理的数字平台开发 个性化算法和初始可行性评估。围绕互动设计构建 思维产品设计方法论，第1阶段由迭代过程组成：构建，测量和学习。一个 将招募25名痴呆症护理人员的试点小组作为用户反馈面板。我们的里程碑 转移到第2阶段将是确保使用来自该数字平台的可行性 改编的移动应用程序评级量表（MARS）和技术采用模型（TAM）。 （特定于2阶段 目标2）评估在种族/民族人群中对开发的数字平台的接受。 第2阶段是一项预期可用性研究，旨在评估跨越的数字平台的接受 德克萨斯州痴呆症护理人员的三个不同种族/民族人口（n = 300; n = 100名非裔美国人， n = 100西班牙裔/拉丁裔，n = 100非西班牙裔白人）。研究设计的前瞻性特征将 使入学参与者能够探索和使用开发的数字平台约4周来提供 对感知的有用性，易用性和价值的多次评估。两者结束时 具体目标，我们希望开发出一个量身定制的可访问痴呆症的广泛访问的数字平台 通过将护理人员与个性化和 德克萨斯州地区的上下文相关信息和资源。如果成功，提议 商业化计划预计通过与 专业的护理组织将平台扩展和维护，以满足不断增长的需求 痴呆症护理人员的人口。