Olera - Online Platform to Increase Access to Personalized Educational and Professional Assistance for AD/ADRD Caregivers

摘要 目前约有580万老年人患有阿尔茨海默氏症，而这些数字仅为 预计在未来几十年内将会增长。对痴呆症患者(PLWD)的大部分护理是 由缺乏正式照看培训的家庭成员提供，因此需要教育、信息和 援助。虽然已经提出了一系列用于护理的技术解决方案来满足这些需求，但 采用率一直很低，可能是因为可用性较差(例如，难以使用)和缺乏情景 关联性。这项拟议研究的长期目标是开发一种基于技术的解决方案， 集成网络和移动平台，将痴呆症护理人员与个性化信息和资源联系起来 社会经济各阶层的人都可以很容易地接触到。拟议的研究将集中于 关于财务管理和法律规划的信息和教育材料。这样的信息将是 有助于护理人员因其直接的护理责任而遇到困难，以及 随着可持续发展部健康状况的发展，这些人的角色和责任发生了转变。这 协作项目涉及行业、学术和社区合作伙伴，面向两个具体的 目标：(阶段1特定目标1)基于新型痴呆护理的数字平台的开发 个性化算法和初步可行性评估。围绕交互设计的框架 思考产品设计方法，阶段1包括迭代过程：构建、度量和学习。一个 由25名痴呆症护理人员组成的试点小组将被招募作为用户反馈小组。我们的里程碑是 转移到阶段2将确保使用来自 适应移动应用评价量表(MARS)和技术采用模型()。(阶段2特定 目的2)评估各种族/族裔人口对开发的数字平台的接受程度。 第二阶段是一项前瞻性可用性研究，以评估拟议数字平台在以下方面的接受度 德克萨斯州三个不同种族/民族的痴呆症照顾者(N=300；n=100非裔美国人， N=100名西班牙裔/拉丁裔，以及n=100名非西班牙裔白人)。研究设计的预期特征将是 使注册参与者能够在约4周的时间内探索和使用开发的数字平台，以提供 对感知的有用性、易用性和价值进行多重评估。在完成这两个项目时 具体目标，我们希望开发出一个可广泛访问的数字平台，以帮助痴呆症患者 护理者通过将护理者与个性化和 得克萨斯州地区的上下文相关信息和资源。如果成功，建议的 商业化计划预计将通过与 专业护理组织可扩展和支持平台，以满足不断增长的需求 痴呆症照顾者的人口。

ABSTRACT There are currently about 5.8 million older adults living with Alzheimer’s dementia, and the numbers are only expected to grow in the coming decades. The majority of care for persons living with dementia (PLWD) is provided by family members who lack formal training in caregiving and thus need education, information, and assistance. While an array of technology solutions for caregiving has been suggested to meet these needs, the adoption rate has been low, potentially due to poor usability (e.g., difficult to use) and lack of contextual relevancy. The long-term objective of this proposed research is to develop a technology-based solution that integrates web and mobile platforms to link dementia caregivers with personalized information and resources that are easily accessible by populations across the socioeconomic spectrum. The proposed study will focus on information and educational materials on financial management and legal planning. Such information will be helpful for caregivers experiencing difficulties due to their immediate caregiving responsibilities, as well as those transitioning in their roles and responsibilities as the PLWD’s health condition progresses. This collaborative project, involving industrial, academic, and community partners, is oriented around two specific aims: (Phase 1 Specific Aim 1) Development of the digital platform based on a novel Dementia Care Personalization Algorithm and initial feasibility assessment. Framed around an interactive Design Thinking product design methodology, phase 1 consists of the iterative process: Build, Measure, and Learn. A pilot group of 25 dementia caregivers will be recruited to serve as a user feedback panel. Our milestone for moving to Phase 2 will be assurance of the feasibility of the digital platform assessed using metrics from the adapted Mobile Application Rating Scale (MARS) and Technology Adoption Model (TAM). (Phase 2 Specific Aim 2) Evaluation of the acceptance of the developed digital platform across racial/ethnic populations. Phase 2 is a prospective usability study to evaluate the acceptance of the proposed digital platform across three different racial/ethnic populations of dementia caregivers in Texas (N = 300; n = 100 African Americans, n = 100 Hispanic/Latinx, and n = 100 non-Hispanic Whites). The prospective feature of the study design will enable the enrolled participants to explore and use the developed digital platform for about 4 weeks to provide multiple assessments of the perceived usefulness, ease of use, and value. At the completion of the two specific aims, we expect to have developed a widely accessible digital platform tailored to assist dementia caregivers in navigating through financial and legal challenges by linking caregivers to personalized and contextually relevant information and resources in the Texas area. If successful, the proposed commercialization plan anticipates further deployment of the developed digital platform by working with professional caregiving organizations to scale and sustain the platform to meet the needs of the growing population of dementia caregivers.