Olera - Online Platform to Increase Access to Personalized Educational and Professional Assistance for AD/ADRD Caregivers

摘要 目前约有580万老年人患有阿尔茨海默氏痴呆症， 预计将在未来几十年内增长。对痴呆症患者（PLWD）的大部分护理是 由缺乏正规教育培训的家庭成员提供，因此需要教育、信息， 援助.虽然已经提出了一系列技术解决方案来满足这些需求， 采用率一直很低，可能是由于差的可用性（例如，难以使用）和缺乏上下文 相关性这项拟议研究的长期目标是开发一种基于技术的解决方案， 整合网络和移动的平台，将痴呆症护理人员与个性化信息和资源联系起来 社会经济各阶层的人都能轻易地获得。拟议的研究将侧重于 关于财务管理和法律的规划的信息和教育材料。此类信息将 帮助照顾者由于他们的直接责任而遇到困难，以及 随着PLWD健康状况的发展，他们的角色和责任正在转变。这 合作项目，涉及工业，学术和社区合作伙伴，是围绕两个具体的导向 目标：（第1阶段具体目标1）开发基于新型痴呆症护理的数字平台 个性化算法和初步可行性评估。围绕交互式设计构建 思考产品设计方法，第1阶段由迭代过程组成：构建，测量和学习。一 将招募25名痴呆症护理人员组成试点小组，作为用户反馈小组。我们的里程碑 进入第二阶段将确保使用来自 采用了移动的应用评级量表（MARS）和技术采用模型（TAM）。（第二阶段具体 目标2）评估开发的数字平台在种族/民族人群中的接受程度。 第二阶段是一项前瞻性可用性研究，以评估拟议数字平台在 得克萨斯州痴呆症护理者的三个不同种族/民族群体（N = 300; n = 100非裔美国人， n = 100名西班牙裔/拉丁裔，n = 100名非西班牙裔白人）。研究设计的前瞻性特征将 让报名参加者探索和使用开发的数字平台约4周， 对感知的有用性、易用性和价值的多重评估。在完成两个 具体目标，我们希望开发一个可广泛访问的数字平台，以帮助痴呆症患者 护理人员通过将护理人员与个性化和 德州地区的相关信息和资源。如果成功，建议 商业化计划预计将通过与 专业的组织来扩展和维持平台，以满足日益增长的需求。 老年痴呆症护理人员。

ABSTRACT There are currently about 5.8 million older adults living with Alzheimer’s dementia, and the numbers are only expected to grow in the coming decades. The majority of care for persons living with dementia (PLWD) is provided by family members who lack formal training in caregiving and thus need education, information, and assistance. While an array of technology solutions for caregiving has been suggested to meet these needs, the adoption rate has been low, potentially due to poor usability (e.g., difficult to use) and lack of contextual relevancy. The long-term objective of this proposed research is to develop a technology-based solution that integrates web and mobile platforms to link dementia caregivers with personalized information and resources that are easily accessible by populations across the socioeconomic spectrum. The proposed study will focus on information and educational materials on financial management and legal planning. Such information will be helpful for caregivers experiencing difficulties due to their immediate caregiving responsibilities, as well as those transitioning in their roles and responsibilities as the PLWD’s health condition progresses. This collaborative project, involving industrial, academic, and community partners, is oriented around two specific aims: (Phase 1 Specific Aim 1) Development of the digital platform based on a novel Dementia Care Personalization Algorithm and initial feasibility assessment. Framed around an interactive Design Thinking product design methodology, phase 1 consists of the iterative process: Build, Measure, and Learn. A pilot group of 25 dementia caregivers will be recruited to serve as a user feedback panel. Our milestone for moving to Phase 2 will be assurance of the feasibility of the digital platform assessed using metrics from the adapted Mobile Application Rating Scale (MARS) and Technology Adoption Model (TAM). (Phase 2 Specific Aim 2) Evaluation of the acceptance of the developed digital platform across racial/ethnic populations. Phase 2 is a prospective usability study to evaluate the acceptance of the proposed digital platform across three different racial/ethnic populations of dementia caregivers in Texas (N = 300; n = 100 African Americans, n = 100 Hispanic/Latinx, and n = 100 non-Hispanic Whites). The prospective feature of the study design will enable the enrolled participants to explore and use the developed digital platform for about 4 weeks to provide multiple assessments of the perceived usefulness, ease of use, and value. At the completion of the two specific aims, we expect to have developed a widely accessible digital platform tailored to assist dementia caregivers in navigating through financial and legal challenges by linking caregivers to personalized and contextually relevant information and resources in the Texas area. If successful, the proposed commercialization plan anticipates further deployment of the developed digital platform by working with professional caregiving organizations to scale and sustain the platform to meet the needs of the growing population of dementia caregivers.